Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Is Exhausting!

RachelCherie

Recommended Posts

RachelCherie Newbie
RachelCherie
Posted

I find eating completely exhausting! By this I don't mean that after I eat I get tired. And I don't mean that finding or preparing meals is exhausting. What I mean is that the physical act of eating is taxing. I get out of breath, my face turns red, I feel like I'm running a marathon even after just one or two minutes of eating. And it takes me forever to eat even small things it is so physically draining. I have looked to see if other people have this problem but all I can find is people who get tired after eating and that's not what I'm talking about. I'm wondering if anyone else out there gets worn out by the simple act of eating? 

(I was diagnosed with Celiac disease mid-Feb but have not seem to have found much relief from abdominal pain nausea and diarrhea since going gluten free..)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Were you checked for anemia?

Anyway, the learning curve is steep for celiac disease. Most folks on this forum take up to two to three years to feel better. Be sure to read our Newbie 101 section under "Coping". It contains valuable information about cross contamination, etc.

I hope you feel better soon.

LauraTX Rising Star
LauraTX
Posted

Getting checked for anemia is a good idea.  Do you have any lung or heart conditions?  I have asthma, can't breathe well through my nose, and one of the first signs I get when my asthma is not in control is I will have to stop eating and gasp for air because I get so out of breath during a meal.  I have to eat slowly and breathe well in between bites.  Then up my medication to get it under control.  I have searched online and not found anything really in the lines of that issue.  Just a manifestation of my asthma that I now know is a sign to get it under wraps.

celiac sharon Apprentice
celiac sharon
Posted

Actually there a whole slew of nutrients, including iron that could be causing fatigue. Also, like others said, it really takes time to feel well for some, although I STARTED feeling better in about a week. Just not complete relief even now, four years later. What puzzles me, is it sounds like you DONT have fatigue in other aaspects, if I hear you right? Only with the physical act of eating? Looking into respiratory and heart problems as Laura said is a good place to start. But I would still check all your nutrients.

w8in4dave Community Regular
w8in4dave
Posted

My face used to turn Bright red when I ate, no longer does. I had a Gluten free beer one day and Bam my face turned bright red. You may have other intolerances , I found I had Soy, corn, and also lactose intolerant, I can have some lactose now. and a tinge of corn now. But not much! That causes bathroom issues. Hope you find the answer to your problems.

RachelCherie Newbie
RachelCherie
Posted
  • Author

I started seeing a DO a little over a year ago, originally for chest pain. She ran an EKG and stress test, spirometry etc. No indication of heart or lung problems. She also did extensive blood work (like 10 pages worth of results). Found high cortisol level and thus attributed chest pain to high stress/anxiety. She's run my blood almost every other month since then. None of them have ever shown any signs of anemia. I do have low vitamin D and B and omega 3s. Taking some supplements for that. On my most recent test after a couple weeks of being gluten free my cortisol is down, but my thyroid numbers are up. 

 

I do experience a lot of fatigue in general, just the thing about eating seems more bizarre to me. 
 

When I first started reading I heard most people feel at least somewhat better after a couple weeks and its just disappointing that I don't. It is good to know that I'm not alone and there are others out there who took a while to get there. I just work really hard on this new lifestyle and I'm eager to start seeing the effects. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.