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Blood Test Results

TruePrep

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TruePrep Newbie
TruePrep
Posted

I got the results back from my celiac blood screen...

 

Immunoglobulin A:  226

 

Tissue Transglutaminase Antibody IgA: <1

<4 No antibody detected

> or = 4 Antibody Detected

 

So my doctor said it came back "completely negative" but as far as I can see they performed ONE antibody test? So frustrating, as I would like to have a complete blood panel done and now I will have to continue this process. 

 

Any insights as to what these numbers are/mean and what my next step is would be greatly appreciated :) 

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heliosue Apprentice
heliosue
Posted

You'll find others on this forum who know and understand a whole lot more about the blood test results than I do, however, I had a full Celiac panel done and my only positive was the TTG, IgG test which came back as a strong positive.  There are definely other blood tests that would be helpful in making a realistic diagnosis.

TruePrep Newbie
TruePrep
Posted
  • Author

Thanks, that's what I thought... I actually just  got an appointment to see a gastroenterologist TODAY, so I am brining a copy of my results and I'm going to request a FULL blood screen. Any other questions I should ask or things I should know before I go??

cyclinglady Grand Master
cyclinglady
Posted

Try to get the full screen. Remember, I tested positive on the DPG IGA test only and negative on all the rest yet my biopsies revealed severe intestinal damage. Plus, you need to be eating gluten for 8 to 12 weeks. I recall that you had been gluten-free for a while and then only ate gluten for two weeks prior to the blood test. That can be an issue too.

Best of luck!

TruePrep Newbie
TruePrep
Posted
  • Author

Thank you very much; I plan to request the full blood screen... Fortunately, this doctor is listed on the Celiac Disease Foundation website so I am *hoping* he knows what to do and what the proper protocol is for testing & diagnosis  :rolleyes:

 

I will keep you posted!

nvsmom Community Regular
nvsmom
Posted

Good luck!  Many labs and doctors will only do the tTG IgA test, my doctor being one of them   :rolleyes:   I hope you find answers.

TruePrep Newbie
TruePrep
Posted
  • Author

Well, I just got back from the gastroenterologist and it went really well... He ordered a Celiac Plus panel from Prometheus Labs that tests for all the antibodies (it lists: tTG IgA recombinant antigen, EMA IgA, total serum IgA, DGP IgA, DGP IgG) and also includes genetic testing (HLA DQ2/DQ8) so I'm pretty happy! :) I think that's pretty much all you can test for, right?

 

He said to wait a few more weeks before taking the tests since I was on a fairly low gluten diet before. I am 3 week into my gluten challenge so perhaps I will wait another 3 weeks before getting this bloodwork because I want it to be as accurate as possible. 

 

This certainly isn't a fast or easy process, but I am happy to be able to thoroughly investigate this and eventually know where I stand either way...

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nvsmom Community Regular
nvsmom
Posted

That sounds really good!  :)  I hope the last few weeks of gluten aren't too hard on you.

TruePrep Newbie
TruePrep
Posted
  • Author

Thank you! Now that I got the full panel ordered, I am obsessing about how long to continue my gluten challenge before getting tested... lol

 

I was not on a gluten-free diet before, but it was somewhat gluten-lite. I am so anxious to get the results, but I want to make sure they are accurate so I think I will aim for 6-8 weeks of this gluten challenge. I'm 3 weeks in already, and I feel better than I did initially when I was going really gluten-heavy. Now I'm just aiming for about 2 slices of bread daily which isn't nearly as bad. The waiting will be the hardest part...  :D

nvsmom Community Regular
nvsmom
Posted

LOL  Waiting is, most definitely, one of the hardest parts about getting a diagnosis. ;)

jbeilfuss Newbie
jbeilfuss
Posted

That's awesome that your GI doc ordered the complete panel - glad for you.  I'm still new here too and not officially diagnosed.  I did have two positive blood tests though and have my biopsy this Thursday.  I had gone gluten free for almost two weeks prior to the blood testing so my GI doc wanted me to do an 8 week challenge (ugh! it's been rough a few days).  I have chronicled some of what I have done over the past 8 weeks to prepare for this Thursday on my original thread here from February if you want to check out one newbie's experience.  I'll post more after the endoscopy and once I get the results.

 

Good luck!

TruePrep Newbie
TruePrep
Posted
  • Author

I will check out that thread, thanks jbeilfuss! I (think) I have decided to do 8 weeks of gluten challenge before getting my blood draw. 12 weeks just seems like an eternity, and I was not completely gluten free before so I'm thinking 8 weeks of daily consumption may be enough? I am just wanting to move the process along but I also don't want to have any doubts about the accuracy of the tests, so I change my mind daily about when to take the tests... lol In the meantime I will keep eating my sandwiches and perusing this forum :) 

frieze Community Regular
frieze
Posted

i would say your doc is a keeper.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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