Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Psychosomatic Symptoms


nonnarae

Recommended Posts

nonnarae Rookie

Does anyone else have a problem with stomach cramps just from smelling wheat bread? Since my dx I have really had problems when I go to the grocery. 1st I am seriously paranoid about being glutened. The migraine, hot poker stomach and instant tired are awful. It has gotten tot he point where even walking through the bakery at the store makes my stomach sort of crampy. It goes away once I leave the area or cant smell the baked goods anymore. It has been nice on one hand. I don't crave gluten foods; however, its pretty bad going tot he grocery.

 

Does anyone else have this issue?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Anxiety levels can run high when you are either undiagnosed or just diagnosed! I blamed it on menopause, but a lot of it was from celiac disease. Talk to my hubby and he will tell you that I am normal again (thanks to gluten-free and hormone replacement )

Just wash your hands when you get home from the store to protect you from gluten and germs! Take this time to have family and friends help you shop, clean house, etc. Anything that will help you relax. You should be babied! I fractured my back two months into my diagnosis. Amazingly, my family stepped up and I learned to let things go. Eventually, you will be back to normal!

nvsmom Community Regular

I get a bit nervous around bread too.  I feel much better when I am out of the bakery aisle of the supermarket. LOL  

 

For me it is just nerves. I KNOW being near it won't hurt me but I don't relax by it... Sort of like I know the spider can't hurt me but if it lands on me, I still react (much) stronger than I should.  ;)

mamaw Community Regular

I've been gluten-free  for  twelve  years  now  very strict...very clean eating.. But I still  get a  weird ill feeling  when I go past an Auntie Ann pretzel  place... I can be in fast food  &  everything  else  just  this one  gets me!

she-phipps Newbie

I wonder if it's not the smell but maybe particles in the air?  If you're that sensitive, even being in the same room as dough that's tossed around all day long in flour could leave you inhaling it's dust and then experiencing a reaction. Have you ever looked at your kitchen after baking?  There's always a fine dusting almost everywhere (except my dust is gluten free in my own kitchen). ;-)

 

My friend's son has an anaphylactic allergy to wheat and he can't be in the same room even when a cake is being mixed without a reaction.

notme Experienced

I wonder if it's not the smell but maybe particles in the air?  If you're that sensitive, even being in the same room as dough that's tossed around all day long in flour could leave you inhaling it's dust and then experiencing a reaction. Have you ever looked at your kitchen after baking?  There's always a fine dusting almost everywhere (except my dust is gluten free in my own kitchen). ;-)

 

My friend's son has an anaphylactic allergy to wheat and he can't be in the same room even when a cake is being mixed without a reaction.

if you are breathing flour dust from baking that can be in the air, it's a thing.  because you breathe it into your mouth and then swallow it (ingesting it) and then a reaction can be a reality.  the bread aisle at the wal-mart = not so much.  because they aren't actually baking it or mixing it, you can just smell the aroma.  so, dust = maybe a possibility of a real reaction, smelling it is not without anything to actually ingest.  

 

wheat allergy isn't celiac, although i'm sure the reaction is serious.  somebody with a wheat allergy maybe cannot walk down the bread aisle, i do not know, but for celiac, you have to actually have particles that are ingested.

mamaw Community Regular

It's  the  smell   I   run past  one  holding  my breath every time I pass  one... I  also  cover  my  nose  with my hand... Believe  I look like  Mario A  running  past  one of these  joints!!!!!! I also  walk  longer  distances to avoid  one of these  places....up close....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

lolz newsflash:   WOMAN PASSES OUT FROM HOLDING BREATH IN BAKERY  that would be me...........

 

reality is, if you live in The World, you stand a chance of getting cc'd from just about anywhere.  think about it, do people wash their hands *after* they eat their meal/sandwich?  nope.  but they sure do open doors and turn on lights, etc.  

mamaw Community Regular

Arlene , maybe  we need to  start  a  new  support  group!!!!!! :wub:

  • 2 weeks later...
nonnarae Rookie

I at least know that I am not alone in my issues! I am talking about at my local Smith's. They do bake all their own cakes and breads. Uggghh I hope I am not that sensitive. 

 

How do you eat out?

nvsmom Community Regular

How do you eat out?

 

I hardly ever do.  Maybe once per year.

mamaw Community Regular

I do  eat  out  & only go to restaurants  that have  a gluten-free menu....I am very selective, I always  remind  them  to  make  my salad  in a clean bowl ( some are  made  in BIG  bowls in the am) change  gloves, no croutons....Meat  prepared  on  foil, baked  potato or  sweet potato  in foil.  individual  butter  packets....  they may  think I'm overkill  but  I  don't  get  gluten   !!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.