Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Psychosomatic Symptoms


nonnarae

Recommended Posts

nonnarae Rookie

Does anyone else have a problem with stomach cramps just from smelling wheat bread? Since my dx I have really had problems when I go to the grocery. 1st I am seriously paranoid about being glutened. The migraine, hot poker stomach and instant tired are awful. It has gotten tot he point where even walking through the bakery at the store makes my stomach sort of crampy. It goes away once I leave the area or cant smell the baked goods anymore. It has been nice on one hand. I don't crave gluten foods; however, its pretty bad going tot he grocery.

 

Does anyone else have this issue?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Anxiety levels can run high when you are either undiagnosed or just diagnosed! I blamed it on menopause, but a lot of it was from celiac disease. Talk to my hubby and he will tell you that I am normal again (thanks to gluten-free and hormone replacement )

Just wash your hands when you get home from the store to protect you from gluten and germs! Take this time to have family and friends help you shop, clean house, etc. Anything that will help you relax. You should be babied! I fractured my back two months into my diagnosis. Amazingly, my family stepped up and I learned to let things go. Eventually, you will be back to normal!

nvsmom Community Regular

I get a bit nervous around bread too.  I feel much better when I am out of the bakery aisle of the supermarket. LOL  

 

For me it is just nerves. I KNOW being near it won't hurt me but I don't relax by it... Sort of like I know the spider can't hurt me but if it lands on me, I still react (much) stronger than I should.  ;)

mamaw Community Regular

I've been gluten-free  for  twelve  years  now  very strict...very clean eating.. But I still  get a  weird ill feeling  when I go past an Auntie Ann pretzel  place... I can be in fast food  &  everything  else  just  this one  gets me!

she-phipps Newbie

I wonder if it's not the smell but maybe particles in the air?  If you're that sensitive, even being in the same room as dough that's tossed around all day long in flour could leave you inhaling it's dust and then experiencing a reaction. Have you ever looked at your kitchen after baking?  There's always a fine dusting almost everywhere (except my dust is gluten free in my own kitchen). ;-)

 

My friend's son has an anaphylactic allergy to wheat and he can't be in the same room even when a cake is being mixed without a reaction.

notme Experienced

I wonder if it's not the smell but maybe particles in the air?  If you're that sensitive, even being in the same room as dough that's tossed around all day long in flour could leave you inhaling it's dust and then experiencing a reaction. Have you ever looked at your kitchen after baking?  There's always a fine dusting almost everywhere (except my dust is gluten free in my own kitchen). ;-)

 

My friend's son has an anaphylactic allergy to wheat and he can't be in the same room even when a cake is being mixed without a reaction.

if you are breathing flour dust from baking that can be in the air, it's a thing.  because you breathe it into your mouth and then swallow it (ingesting it) and then a reaction can be a reality.  the bread aisle at the wal-mart = not so much.  because they aren't actually baking it or mixing it, you can just smell the aroma.  so, dust = maybe a possibility of a real reaction, smelling it is not without anything to actually ingest.  

 

wheat allergy isn't celiac, although i'm sure the reaction is serious.  somebody with a wheat allergy maybe cannot walk down the bread aisle, i do not know, but for celiac, you have to actually have particles that are ingested.

mamaw Community Regular

It's  the  smell   I   run past  one  holding  my breath every time I pass  one... I  also  cover  my  nose  with my hand... Believe  I look like  Mario A  running  past  one of these  joints!!!!!! I also  walk  longer  distances to avoid  one of these  places....up close....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

lolz newsflash:   WOMAN PASSES OUT FROM HOLDING BREATH IN BAKERY  that would be me...........

 

reality is, if you live in The World, you stand a chance of getting cc'd from just about anywhere.  think about it, do people wash their hands *after* they eat their meal/sandwich?  nope.  but they sure do open doors and turn on lights, etc.  

mamaw Community Regular

Arlene , maybe  we need to  start  a  new  support  group!!!!!! :wub:

  • 2 weeks later...
nonnarae Rookie

I at least know that I am not alone in my issues! I am talking about at my local Smith's. They do bake all their own cakes and breads. Uggghh I hope I am not that sensitive. 

 

How do you eat out?

nvsmom Community Regular

How do you eat out?

 

I hardly ever do.  Maybe once per year.

mamaw Community Regular

I do  eat  out  & only go to restaurants  that have  a gluten-free menu....I am very selective, I always  remind  them  to  make  my salad  in a clean bowl ( some are  made  in BIG  bowls in the am) change  gloves, no croutons....Meat  prepared  on  foil, baked  potato or  sweet potato  in foil.  individual  butter  packets....  they may  think I'm overkill  but  I  don't  get  gluten   !!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    4. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.