Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Keep Getting Sick And Don't Know Why!


mareahf

Recommended Posts

mareahf Apprentice

I have been gluten free for 6 years now and was doing really well until I got a bad glutening about 6 months ago. Since then I have gotten better only to get sick over and over again. I would get sick for about a week then feel better for about a week and get sick again! This has been happening for months now.

I went to my wellness dr and he suspected I have a soy allergy now so I have been avoiding soy for a week but I'm sick again! I have been eating some processed foods but I always make sure it is certified gluten free and I check for soy now too. I don't think it's cross contamination, I'm pretty good about that.

I also wonder if it is my anxiety. I get bad anxiety when glutened and since I have been sick so much I've been have lots of anxiety. Do you think my anxiety is causing my diarrhea?

I'm just so sick of being sick now and miss the days I felt healthy and happy.

Has anyone had a similar experience? Any suggestions on what I should do? How many of you developed a soy allergy years after tolerating soy ?

For now I'm going to eat clean, no processed food, and talk to my shrink about upping my anxiety meds.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are your anxiety meds generic? If they are binders can be changed at any time. Check with the company that makes them. Their name should be on the label but it may be in very small print. Also look into anything else that you might have changed when this happened. Pet food, supplements, do you have gluten eaters in your home, if so could they have become less careful? Do you have a significant other? If so are they gluten free or careful to brush their teeth before you kiss?

I hope you can figure this out soon. Do also make sure that your doctor has checked for any other problems you may have just in case it isn't gluten or soy causing the issue but an illness. 

Googles Community Regular

I started having intermittent problems with D and it ended up being dairy that was causing problems. I removed that and things got better. Good luck. 

fran641 Contributor

After a year of gluten-free I began having strong reactions to dairy out of the blue. Turns out my gallbladder is acting up and may have to come out soon. The doc said sudden onset of dairy reaction is common when the gallbladder goes bad. The D is awful when I have any dairy. Hope you can figure out what is triggering your responses this long after being gluten-free.

mareahf Apprentice

Thank you your suggestions.

I called the manufacturer for my medicine (sertraline by greenstone) and they said they could NOT verify that it is gluten free or soy free because they use some products that could be made from wheat or soy. So now I'll look for an alternative.

In the past I found out I have polyps in my gallbladder so I will get that checked again soon to see if their are any changes or concerns.

I will also cut out dairy to see if that helps.

LauraH Newbie

You could be developing microscopic colitis, which is inflammation in the large intestine that can be caused by celiac disease.   It's possible that the glutening you mention triggered more inflammation that now is being made worse by foods that had been safe for you before - like an already skinned knee will keep being re-injured if you crawl on carpet, but if it wasn't skinned already it wouldn't be a problem.   The problem with MC is that a lot of things can cause symptoms, not just the major culprits (grains, dairy, soy, sugar).  For me anything raw, fibrous, nuts,  and even many cooked veggies make my D worse.  I can get it under control for a week or so, but then something will irritate my intestines and it takes a good week of totally safe foods (chicken, well cooked apples, well cooked carrots, broth, bananas, some cheeses) to solidify things back up.   

 

Only a biopsy can diagnose it (ahem, sound familiar?), but maybe read up on it a bit and try cutting back on fibrous veggies and fruits and raw stuff and see if it settles down.  

 

It's funny, when I eat out, the celiac disease is the least of my problems - I can get gluten-free menu items most places, but it's nearly impossible to find stuff that is safe for microscopic colitis :-(  

knitty kitty Grand Master

Ask your doctor if you could be having an anticholinergic reaction to your antidepressant.

Celiac disease messes up the metabolism and the drug doesn't get cleared out of the body properly. The build up has horrible effects.

When it happened to me, it started with terrible diarrhea and increasing anxiety. The dose was increased and everything got worse. I can't even write how horrible it was.

Symptoms are hot as a hare, dry as a bone, red as a beet, bloated as a toad, blind as a bat, and mad as a hatter. Not fun at all.

Hope you can just cut out dairy and feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matthias posted a topic in Coping with Celiac Disease
      0

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    3. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    4. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.