Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free And Feeling Better Than Ever


Kittydanger

Recommended Posts

Kittydanger Rookie

Hi! I'm new to the board, and new to my gluten-free life. I went gluten-free about 12 days ago, and by 3 days in I knew I would never eat wheat/gluten again. I'm 32 and have had a bizarre constelation of "conditions" and symptoms since puberty that seemed to be taking a greater toll on me with each passing year.

Anxiety

Depression
IBS

Scalp rash that made me lose my hair at times
Seasonal allergies
Chronic exhaustion
Excessive sweating (used prescription strength antiperspirant)
Pregnancy induced hypertesion 3x (despite not being over-weight and generally a healthy person)
Worsening acne with each passing year
A strange burning sensation in the right side of my chest after eating - in my ribcage under my right breast for 3 years


The exhaustion was the symptom that made me finally try to go gluten-free. I've tried eliminating sugar in the past, which helped some. I went on the Paleo diet (also did this duing my last pregnancy and it was the first time I was able to carry a baby to 40 weeks). I went off of the Paleo diet after my LO was born and my blood pressure skyrocketed, I ended up in the ER on blood pressure medication, couldn't breastfeed because of low supply and developed debilitating panic (all with the re-introduction of gluten containing foods)

Since I've strictly eliminated gluten all of my health problems have ceased. I am truly amazed at how good I feel. I have three young children and my exhaustion was so bad. I had connected it to eating, but I wasn't sure exactly what I was eating that was causing it, so I had actually started avoiding eating for most of the day in order to not crash into a terrible fog of exhaustion.

I have not been diagnosed with celiac but I think it's highly likely that I do in fact have it. I also have one son with high-functioning autism and another with unexplained bouts of vomiting which we had been to the GI doctor about and haven't been able to pinpoint the cause of. All of my children will be going off gluten soon.

I would love to hear if anyone here has had these same symtoms or issues and how you're feeling now.




 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

If you have insurance it might be a good idea to get back on gluten so you can be tested. Celiac runs in families and with three kids, you might want to know for sure so you can get them tested too. If you just take the family gluten-free you won't have official diagnoses for them or you. That wouldn't matter so much except if anyone is hospitalized at some point they won't take your gluten-free diet seriously.

 

And it can be REALLY important for school. With an official DX the school has to accomodate your kids (all the way through college). Without it they don't.

Kittydanger Rookie

If you have insurance it might be a good idea to get back on gluten so you can be tested. Celiac runs in families and with three kids, you might want to know for sure so you can get them tested too. If you just take the family gluten-free you won't have official diagnoses for them or you. That wouldn't matter so much except if anyone is hospitalized at some point they won't take your gluten-free diet seriously.

 

And it can be REALLY important for school. With an official DX the school has to accomodate your kids (all the way through college). Without it they don't.

Thank you! That's definitely something to consider, although the thought of eating gluten again :wacko:

kareng Grand Master

Testing might also be helpful so that you know how careful you need to be.  A Celiac MUST be very careful.  But if you are not Celiac, your life may be a lot easier - take a burger off a bun, not worry if your meat is grilled where they just had something marinated with soy sauce, a kid could occasionally eat a cupcake at a birthday party, etc

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,109
    • Most Online (within 30 mins)
      7,748

    Kathy001
    Newest Member
    Kathy001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.