Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free And Feeling Better Than Ever


Kittydanger

Recommended Posts

Kittydanger Rookie

Hi! I'm new to the board, and new to my gluten-free life. I went gluten-free about 12 days ago, and by 3 days in I knew I would never eat wheat/gluten again. I'm 32 and have had a bizarre constelation of "conditions" and symptoms since puberty that seemed to be taking a greater toll on me with each passing year.

Anxiety

Depression
IBS

Scalp rash that made me lose my hair at times
Seasonal allergies
Chronic exhaustion
Excessive sweating (used prescription strength antiperspirant)
Pregnancy induced hypertesion 3x (despite not being over-weight and generally a healthy person)
Worsening acne with each passing year
A strange burning sensation in the right side of my chest after eating - in my ribcage under my right breast for 3 years


The exhaustion was the symptom that made me finally try to go gluten-free. I've tried eliminating sugar in the past, which helped some. I went on the Paleo diet (also did this duing my last pregnancy and it was the first time I was able to carry a baby to 40 weeks). I went off of the Paleo diet after my LO was born and my blood pressure skyrocketed, I ended up in the ER on blood pressure medication, couldn't breastfeed because of low supply and developed debilitating panic (all with the re-introduction of gluten containing foods)

Since I've strictly eliminated gluten all of my health problems have ceased. I am truly amazed at how good I feel. I have three young children and my exhaustion was so bad. I had connected it to eating, but I wasn't sure exactly what I was eating that was causing it, so I had actually started avoiding eating for most of the day in order to not crash into a terrible fog of exhaustion.

I have not been diagnosed with celiac but I think it's highly likely that I do in fact have it. I also have one son with high-functioning autism and another with unexplained bouts of vomiting which we had been to the GI doctor about and haven't been able to pinpoint the cause of. All of my children will be going off gluten soon.

I would love to hear if anyone here has had these same symtoms or issues and how you're feeling now.




 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

If you have insurance it might be a good idea to get back on gluten so you can be tested. Celiac runs in families and with three kids, you might want to know for sure so you can get them tested too. If you just take the family gluten-free you won't have official diagnoses for them or you. That wouldn't matter so much except if anyone is hospitalized at some point they won't take your gluten-free diet seriously.

 

And it can be REALLY important for school. With an official DX the school has to accomodate your kids (all the way through college). Without it they don't.

Kittydanger Rookie

If you have insurance it might be a good idea to get back on gluten so you can be tested. Celiac runs in families and with three kids, you might want to know for sure so you can get them tested too. If you just take the family gluten-free you won't have official diagnoses for them or you. That wouldn't matter so much except if anyone is hospitalized at some point they won't take your gluten-free diet seriously.

 

And it can be REALLY important for school. With an official DX the school has to accomodate your kids (all the way through college). Without it they don't.

Thank you! That's definitely something to consider, although the thought of eating gluten again :wacko:

kareng Grand Master

Testing might also be helpful so that you know how careful you need to be.  A Celiac MUST be very careful.  But if you are not Celiac, your life may be a lot easier - take a burger off a bun, not worry if your meat is grilled where they just had something marinated with soy sauce, a kid could occasionally eat a cupcake at a birthday party, etc

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.