Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety/recovery

Check12344

Recommended Posts

Check12344 Newbie
Check12344
Posted

I have been living in a state of panic for the last year. I am 23 and formerly extremely ambitious and social. I am now hermit like and my sole ambition is to get better.

My IgA (gliadin)test was high, as was my IgM (Lyme) test although all western blot (more accurate) Lyme tests were completely negative.

I have been Gluten free for 1.5 months. My dizziness, overly emotional reactions have subsided with this diet, yet I continue to have extreme anxiety. How long did it take your anxiety to subside?

I am 100% gluten free, on a variety of supplements and just can't kick it. Any advice is appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


across Contributor
across
Posted

I'm so sorry you're going through this! For me, the anxiety went away quickly  -- but not all of it. I found that like many celiacs, dairy also gives me problems. When I cut out gluten and ALL dairy, I went from being extremely anxious and self-condemning to having a calm and peaceful mind. For this, I thank God!

Mrlkandee Newbie
Mrlkandee
Posted

Hey all,

 

I have the same reaction as the original poster. 

I'm 23, was diagnosed this past winter, have been gluten-free since March. 

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them. 

 

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

Check12344 Newbie
Check12344
Posted
  • Author

Hey all,

I have the same reaction as the original poster.

I'm 23, was diagnosed this past winter, have been gluten-free since March.

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them.

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

After 3-6 months it's time to look for answers. If you truly have gotten rid of all gluten maybe check other food sensitivities/vitamin deficiencies. Also, maybe you have an ongoing gut infection that needs to be repaired by antibiotics. Many people on here wait a year, but I'm more of an act first, and seeing a GI or naturopath may help you progress

cyclinglady Grand Master
cyclinglady
Posted

Hey all,

 

I have the same reaction as the original poster. 

I'm 23, was diagnosed this past winter, have been gluten-free since March. 

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them. 

 

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

I answered in another post, but I think you need to really make sure you are gluten free.  Check meds, stop eating out for now, look at your kitchen (do you live with gluten eaters?).  

Finallyglutenfree Newbie
Finallyglutenfree
Posted

Check if you might be sensitive to all grains. I am and have the same problem. Wheats the worst, obviously, but rice gives me anxiety!

MsMarginalized Rookie
MsMarginalized
Posted

Wow, y'all!  I'm fortunate that I've not had the panic attacks you describe, but then again, I've had major depressive disorder for over 20 years.

 

I just finished Jennifers Way by Jennifer Esposito. She describes her panic attacks and other issues that went hand-in-hand with her un-diagnosed (& then newly diagnosed) Celiac. 

 

I realize how Celiac is a RANGE (maybe like Autism?) my Celiac can be bad when I get gluttened but not to the degree that some folks have. 

 

Maybe some of the things Jennifer does & has found can help? (if we are allowed to put in links, I would put in one over to amazon.com....that's where I got a kindle version of her book)  some forums I've been on don't allow that & I'm too new here to rock any boats.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,140
    • Most Online (within 30 mins)
      7,748
    Staticgypsy
    Newest Member
    Staticgypsy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.