Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Returning - Oats?


mbledtke

Recommended Posts

mbledtke Newbie

Hello!

 

I was diagnosed with Celiac about 1.5 years ago.  Within a few weeks of stopping gluten, I had relief of so many issues that I never even realized were Celiac related - aside from the gut issues, the big ones were the foggy headedness, anxiety, and hair loss (mostly in the shower).  Within about 2 weeks I felt like a few person!
 

My issue is that starting in the month of April, many of these symptoms have come back (hair loss, anxiety, mentally foggy).  Around that time, I had a back injury and was on several medications (pain killers, muscle relaxants, anti inflammatories - all of which were gluten-free), so I blamed my issues on the meds.  I've been off the meds for about 6 weeks now, and the symptoms still remain.  

 

These symptoms are exactly how I felt before going gluten-free.  I contacted my doc and asked for another celiac blood panel, to see if I was somehow getting "glutened" without realizing it.  My labs came back today and all of my levels are the lowest they have even been - all well within a normal range.  

 

My question is - I have always suspected that I may be sensitive to oats - even certified gluten-free oats.  Does anyone else have this issue?  In April, I started taking Juice Plus supplements and Vega shakes for breakfast - both of which are gluten-free, but both have Oat Bran as an ingredient, as I recently discovered.  Could this be the source of my issues?  Does anyone else have oat sensitives?   Could the symptoms mimic what gluten does to my body?

 

Thanks for any insights - I'm desperate to get back to feeling like "me".

 

Moni

Silver Lake, WI

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I do not have oat issues and can eat certified gluten-free oats without any problems but the oats most likely used in those supplements and shakes are not certified......unless they specifically state that is what they use. I have never seen certified oat bran in anything, just oat bran, and this is why we have to check the oat added foods/supplements carefully. Reactions to oats can mimic a wheat gluten reaction, as does dairy.

Hope you feel better soon and can figure this out!

ravenwoodglass Mentor

You could try dropping both those items and see if your symptoms resolve. You could always challenge them again when you are feeling well to see if the same thing happens.

GF Lover Rising Star

Yup, cut the oat bran.

 

:)

squirmingitch Veteran

I concur.

cap6 Enthusiast

Absolutely cut out that oat bran!!

mbledtke Newbie

Thank you all.  I'm not as much thinking CC from uncertified gluten-free oats - I would think that my blood panel would have showed that after 4 months, right?  Do you think it could just be the oats themselves, not gluten at all?  I remember reading somewhere that in some Celiacs oats can mimic gluten, and the body can respond the same way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

  Do you think it could just be the oats themselves, not gluten at all?  

Yes. 

Gemini Experienced

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

squirmingitch Veteran

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

I agree with this. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Celiac.com Sponsored Post's article in Celiac.com Sponsors
      1

      The NIMA Gluten Sensor Is Back and Rebuilt for Greater Confidence

    2. - Aretaeus Cappadocia commented on Scott Adams's article in Research Projects, Fundraising, Epidemiology, Etc.
      1

      Italy Tests Nationwide Screening to Catch Hidden Celiac Disease in Children

    3. - trents replied to AristotlesCat's topic in Super Sensitive People
      116

      Gluten Free Coffee

    4. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      42

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      42

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,092
    • Most Online (within 30 mins)
      7,748

    LVanderbeck12
    Newest Member
    LVanderbeck12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @Peace lily, can you be more specific about which coffee manufacturers have told you that their coffee is probably not safe for celiacs? What you say is contrary to just about everything I find when I research this issue on the internet, even taking into account cross contamination. The exception seems to be when flavorings are added that may contain grain products made from wheat, barley or rye. This individual tested numerous coffees with a Nima gluten sensor and found no issues: https://www.goodforyouglutenfree.com/is-coffee-gluten-free/. There may also be an issue with cross reactivity for some celiacs:  https://www.glutenfreesociety.org/is-coffee-safe-on-a-gluten-free-diet/ . Keep in mind that when you ask questions of food companies concerning whether or not a product is gluten free or "safe for celiacs" you may be getting an ultra-cautious response due to the fact that they are careful to cover their backsides when the product hasn't been specifically tested for gluten content or is not being marketed as such. 
    • Caligirl57
      Excellent advice! Thank you, I will try that.
    • Caligirl57
      Thank you Knitty Kitty, I will get this checked out.  kind Regards, Caligirl57
    • Peace lily
      I have to agree with you,cross contamination is a big factor for me also I have cealiac and thyroid condition.2 years for me on cealiac. Am I’m still having issues. Went to my gastroenterologist in this past nov. said everything looks good . I am looking into coffee now and what I’ve read cross contamination is possible. I’m stumped. I’m so sick of being sick at times. peace lily🥲
    • Mettedkny
      You already got some great recommendations. Just want to second that Mallorca (and Spain in general) is one of the best and easiest places for celiacs to travel. I have been to Mallorca multiple times and have never experienced any cross contaminations and there are SO many easy to buy options in regular supermarkets. Hope you have a wonderful trip.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.