Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Returning - Oats?

mbledtke

Recommended Posts

mbledtke Newbie
mbledtke
Posted

Hello!

 

I was diagnosed with Celiac about 1.5 years ago.  Within a few weeks of stopping gluten, I had relief of so many issues that I never even realized were Celiac related - aside from the gut issues, the big ones were the foggy headedness, anxiety, and hair loss (mostly in the shower).  Within about 2 weeks I felt like a few person!
 

My issue is that starting in the month of April, many of these symptoms have come back (hair loss, anxiety, mentally foggy).  Around that time, I had a back injury and was on several medications (pain killers, muscle relaxants, anti inflammatories - all of which were gluten-free), so I blamed my issues on the meds.  I've been off the meds for about 6 weeks now, and the symptoms still remain.  

 

These symptoms are exactly how I felt before going gluten-free.  I contacted my doc and asked for another celiac blood panel, to see if I was somehow getting "glutened" without realizing it.  My labs came back today and all of my levels are the lowest they have even been - all well within a normal range.  

 

My question is - I have always suspected that I may be sensitive to oats - even certified gluten-free oats.  Does anyone else have this issue?  In April, I started taking Juice Plus supplements and Vega shakes for breakfast - both of which are gluten-free, but both have Oat Bran as an ingredient, as I recently discovered.  Could this be the source of my issues?  Does anyone else have oat sensitives?   Could the symptoms mimic what gluten does to my body?

 

Thanks for any insights - I'm desperate to get back to feeling like "me".

 

Moni

Silver Lake, WI

 

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

I do not have oat issues and can eat certified gluten-free oats without any problems but the oats most likely used in those supplements and shakes are not certified......unless they specifically state that is what they use. I have never seen certified oat bran in anything, just oat bran, and this is why we have to check the oat added foods/supplements carefully. Reactions to oats can mimic a wheat gluten reaction, as does dairy.

Hope you feel better soon and can figure this out!

ravenwoodglass Mentor
ravenwoodglass
Posted

You could try dropping both those items and see if your symptoms resolve. You could always challenge them again when you are feeling well to see if the same thing happens.

GF Lover Rising Star
GF Lover
Posted

Yup, cut the oat bran.

 

:)

squirmingitch Veteran
squirmingitch
Posted

I concur.

cap6 Enthusiast
cap6
Posted

Absolutely cut out that oat bran!!

mbledtke Newbie
mbledtke
Posted
  • Author

Thank you all.  I'm not as much thinking CC from uncertified gluten-free oats - I would think that my blood panel would have showed that after 4 months, right?  Do you think it could just be the oats themselves, not gluten at all?  I remember reading somewhere that in some Celiacs oats can mimic gluten, and the body can respond the same way?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

  Do you think it could just be the oats themselves, not gluten at all?  

Yes. 

Gemini Experienced
Gemini
Posted

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

squirmingitch Veteran
squirmingitch
Posted

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

I agree with this. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...