Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Returning - Oats?


mbledtke

Recommended Posts

mbledtke Newbie

Hello!

 

I was diagnosed with Celiac about 1.5 years ago.  Within a few weeks of stopping gluten, I had relief of so many issues that I never even realized were Celiac related - aside from the gut issues, the big ones were the foggy headedness, anxiety, and hair loss (mostly in the shower).  Within about 2 weeks I felt like a few person!
 

My issue is that starting in the month of April, many of these symptoms have come back (hair loss, anxiety, mentally foggy).  Around that time, I had a back injury and was on several medications (pain killers, muscle relaxants, anti inflammatories - all of which were gluten-free), so I blamed my issues on the meds.  I've been off the meds for about 6 weeks now, and the symptoms still remain.  

 

These symptoms are exactly how I felt before going gluten-free.  I contacted my doc and asked for another celiac blood panel, to see if I was somehow getting "glutened" without realizing it.  My labs came back today and all of my levels are the lowest they have even been - all well within a normal range.  

 

My question is - I have always suspected that I may be sensitive to oats - even certified gluten-free oats.  Does anyone else have this issue?  In April, I started taking Juice Plus supplements and Vega shakes for breakfast - both of which are gluten-free, but both have Oat Bran as an ingredient, as I recently discovered.  Could this be the source of my issues?  Does anyone else have oat sensitives?   Could the symptoms mimic what gluten does to my body?

 

Thanks for any insights - I'm desperate to get back to feeling like "me".

 

Moni

Silver Lake, WI

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I do not have oat issues and can eat certified gluten-free oats without any problems but the oats most likely used in those supplements and shakes are not certified......unless they specifically state that is what they use. I have never seen certified oat bran in anything, just oat bran, and this is why we have to check the oat added foods/supplements carefully. Reactions to oats can mimic a wheat gluten reaction, as does dairy.

Hope you feel better soon and can figure this out!

ravenwoodglass Mentor

You could try dropping both those items and see if your symptoms resolve. You could always challenge them again when you are feeling well to see if the same thing happens.

GF Lover Rising Star

Yup, cut the oat bran.

 

:)

squirmingitch Veteran

I concur.

cap6 Enthusiast

Absolutely cut out that oat bran!!

mbledtke Newbie

Thank you all.  I'm not as much thinking CC from uncertified gluten-free oats - I would think that my blood panel would have showed that after 4 months, right?  Do you think it could just be the oats themselves, not gluten at all?  I remember reading somewhere that in some Celiacs oats can mimic gluten, and the body can respond the same way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

  Do you think it could just be the oats themselves, not gluten at all?  

Yes. 

Gemini Experienced

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

squirmingitch Veteran

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

I agree with this. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      GI DX celiac despite neg serology and no biopsy

    2. - Scott Adams replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      suggest gluten free food

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      GI DX celiac despite neg serology and no biopsy

    4. - olivia11 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      suggest gluten free food

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,743
    • Most Online (within 30 mins)
      7,748

    Ella H
    Newest Member
    Ella H
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Yes, if you are convinced gluten is causing you problems then it would seem to come down to NCGS but you may also have other intolerances.
    • Scott Adams
      There are huge categories of gluten-free foods, are there any particular types of foods that you are trying to find?
    • Roses8721
      Ended up demanding HLA and I’m negative for both. So assuming this is NCGs now? PCP seems unsure and GI is referring to genetics which I don’t get.  about to lose my mind
    • olivia11
      suggest me best gluten free food thank you
    • olivia11
      You are definitely not alone aftertastes and denser interiors are really common with gluten-free baking. Oat and tigernut flours are great choices, and tweaks like extra egg or adjusting hydration are exactly the kind of trial and error that usually leads to better texture over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.