Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Trust All "gluten Free" Labels?


CeliacMommaX2

Recommended Posts

CeliacMommaX2 Enthusiast

When my kids were initially diagnosed, I was told (by the dietition) that if it says "gluten free" then it's safe even if it has the "made in a facility with wheat, etc".  Is this true?  I've gotten very paranoid as my daughter has still not gained weight after 4 months gluten free.

 

I just have no idea what products to trust.  I have a hard time telling if my kids are reacting to a certain food... they are only 3 & 5 and can't really tell me "I think I reacted to those crackers".  What if a products doesn't actually say anything about "manufactured in a facility..." but they were and it just isn't on the label.

 

Thanks for your thoughts!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



caro7 Newbie

I am not really an expert on labels but, I do not buy anything that is made in a facility that process wheat.  I feel it is safer not to take chances, your children are so young they cannot tell you if they have minor problems. Stay with whole foods or certified gluten free. At least that is my opinion.

bartfull Rising Star

Companies do not have to disclose whether or not they process wheat in the same facility or equipment. You could be eating something on a regular basis that is made in the same facility and not even know it.

 

Here's they way I handle it. Same facility? I don't worry about it. The chances of CC are tiny. As has been pointed out here many times, unless your entire family is gluten-free your own kitchen is a "same facility".

 

Same EQUIPMENT? That's a different story. I've worked at enough places of all kinds to know that many employees will take shortcuts and some will try to get away with doing as little work as possible. Therefore I don't trust them to clean the machinery well enough to keep me safe.

 

Now here's the good news - there are some companies who will always tell you. Kraft Foods, Con Agra, Nestle's and some others. They don't pay for testing in order to keep their prices down, but their labels will clearly list any gluten ingredients and clearly have the facility/equipment warning. And these are parent companies whose brands cover just about any type of food you can think of. You can google them and find out what brands they are comprised of.

Hellbender Newbie

My opinion, after testing many products with a gluten test kit, is that foods labeled gluten-free usually are. Read carefully though. My wife bought a little cheese cake that was labeled gluten-free. On close examination the boldly written gluten free label was describing the cooking powder used in the cake, one ingredient. Wheat was another ingredient so the product did contain gluten.

The flip side is supplements like multivitamins and glucosamine. Some labeled gluten-free may conain gluten. 

Be aware that the test I use measures down to 10ppm which means that even though the product contains gluten it may still be a legal amount to wear the label, eg. 10ppm<G<20ppm.

BTW. does anyone know if supplements are held to same standards as food?

Dan

w8in4dave Community Regular

Well I think the law is 20PPM for labeling gluten-free, sometimes that is to much for certain people. Alot of people can eat gluten-free oats for example. Others cannot. I do not eat gluten-free boxed stuff, but once every so often. Like crackers or such.  I eat whole foods. Eat freash meat and veggies. I do eat gluten-free rice. It's the only rice I eat. I am very careful with CC . I do the cooking I cook hubbs food first and then my own in my pans with my utensils. It may seem to be a PITA to some but it works for us. Don't fall for the gluten-free isle. I feel 20 ppm and how much of it you eat, you will be eating to much Gluten. Just my opinion. Also if your concerned about a certain food you can call the company. 

bartfull Rising Star

There is one company I know of that makes gluten-free food in a dedicated gluten-free facility. Against The Grain. They don't even let employees bring gluten for lunch. And Ronzoni makes a gluten-free pasta that is made in a dedicated gluten-free facility in Italy.

cap6 Enthusiast

Gluten free products are generally safe, it is all the additives in the product that tend to cause problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

My 2 cents. if you're that worried about cross contamination then don't eat out unless you grill the chef & manager. Even then I won't eat out unless it's a totally gluten free place.

Annaem Enthusiast

I am learning the gluten-free label doesn't mean much. Some things say safe from gluten or naturally gluten free. I also find supplements unless checked by a third party the gluten-free status means nothing. I also joined a new site called gluten free watch dogs via Facebook. They actually will test things with lab testing. The gluten-free test kit we use at home is not sensitive to barley :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.