Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Opinions And Help Please


MommaBear

Recommended Posts

MommaBear Newbie

Hi,

 

New to the board. I have been googling my symptoms and it brought me here. I have recently had blood work for Celiacs and all of my numbers came back in the normal range. However, I am at a loss on where to go from here. If anyone has any info that can lead me in the right direction I would be forever grateful. My currently symptoms are:

-Anemia & Vitamin D Deficient (am currently taking 50,000mg of D2).

-Have diarrhea with bouts of constipation. (tmi sorry)

-My stomach hurts after I eat, sometimes my mouth actually burns/tingles also.

-I have eaten bagels and gotten a large lump in my throat (like it was closing up) but most times its like I am out of breath.

-I get bloated after I eat.

-Wheat seems to get me more than anything else, but sometimes after I eat gluten thing free things I get a metal taste in my mouth. Also am lactose intolerant.

-I get really tired after I eat. (last week I had pasta for lunch and dinner, I literally became so tired I slept from Friday night to Sunday morning only waking up for about 5 hours on Sat). I have no energy at all.

-Cannot lose weight. I work out 6 days a week for months and am not losing any weight. I have remained at this weight for years.

 

That's all I can think of now. If anyone knows where I should look next I would appreciate the help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LookingforAnswers15 Enthusiast

Hi MommaBear,

 

sorry that you are feeling this way. I really do not know nearly as much as some people on here and I am sure that they will give you a great advice. Inability to loose weight, vitamin D deficiency, feeling tired could be connected with thyroid. If I am not mistaken people with Hashimoto may feel this way. Look it up and see if your symptoms match and get tested. As I said, some incredible people on here will be able to help you better since they truly know more than some doctors.

 

Hope you feel better soon. 

cyclinglady Grand Master

Exactly what celiac tests were given? Often just an IGA deficiency and a TTG iga screening tests are given. Some people (like me) test negative on the TTG tests. I only had one positive on the DGP IGA, yet I had moderate to severe intestinal damage based on my biopsies. Here is the complete panel:

-Tissue Transglutaminase (tTG) IgA and (tTG) IgG

-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

Welcome to the forum!

MommaBear Newbie

Thank you for your responses. They have tested my thyroid (twice) and my numbers were normal. For the blood tests my results were:

 

Immunoglbln M Serum 91 - 414 mg/dL 300 Gliadin IgA 0 - 19 units 6 Gliadin IgG 0 - 19 units 3 Transglutaminase IgA 0 - 3 U/mL <2 Tissue Transglut Ab 0 - 5 U/mL

<2

 

I am waiting for a referral to an allergist. If that doesn't help, I really don't know where else to turn.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - StuartJ replied to The Logician's topic in Related Issues & Disorders
      28

      Gluten Sensitivity

    2. - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    3. - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    4. - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    5. - Rogol72 replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,355
    • Most Online (within 30 mins)
      7,748

    Hungryforgluten
    Newest Member
    Hungryforgluten
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StuartJ
      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
×
×
  • Create New...