Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Allergic To Wheat?

Cyanste

Recommended Posts

Cyanste Newbie
Cyanste
Posted

I tried looking around for some answers but it doesn't seem like there's much on this question. When I got my blood work done, I also got allergy testing done and my Ige for Wheat came out very positive.

Is it possible to be both celiac and allergic to wheat? Is this unusual?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

There are several folks here who have both. I'm sure they'll chime in soon.

 

Have you (before you went gluten-free) had allergic type reactions to wheat? You know, hives, breathing problems, that sort of thing? You should have an epi pen. Exposure to wheat on the celiac side can make you sick and damage your gut, but on the allergy side it can kill you quickly.

 

Be extra careful!!

Cyanste Newbie
Cyanste
Posted
  • Author

I did have some episodes with difficulty breathing that didn't go away with albuterol, hmm... I will check with my pcp.

squirmingitch Veteran
squirmingitch
Posted

Yes, you can be both celiac and allergic to wheat & I second what Bartful said about getting an epi pen.

StephanieL Enthusiast
StephanieL
Posted

Epi Pen STAT!  Seriously, with the things you described you need a set (always carry - ALWAYS!)  I hope you get things figured out!

Hank444 Newbie
Hank444
Posted

Really wondering if I am allergic to Gluten or the Roundup weed killer that farmers use on wheat and other foods .

I seem to have gluten sensitivity .I have not tested myself yet with  fully organic bread that has gluten in it. I have night sweats after eating wheat and  bottom of feet go numb along with stomach sloshing around more than usual and lower intestines feel irritated/painful when pressing on them any.

Not had any allergy tests done,but some in my family have many allergies.

If your test came back positive,I would not doubt it if you already have celiac symptoms or problems.

I felt like I had food poisoning when I ate too many wheat products.

cyclinglady Grand Master
cyclinglady
Posted

Really wondering if I am allergic to Gluten or the Roundup weed killer that farmers use on wheat and other foods .

I seem to have gluten sensitivity .I have not tested myself yet with  fully organic bread that has gluten in it. I have night sweats after eating wheat and  bottom of feet go numb along with stomach sloshing around more than usual and lower intestines feel irritated/painful when pressing on them any.

Not had any allergy tests done,but some in my family have many allergies.

If your test came back positive,I would not doubt it if you already have celiac symptoms or problems.

I felt like I had food poisoning when I ate too many wheat products.

 

 

 

Hank,

 

I would encourage you to visit the University of Chicago's celiac website.  It contains valuable information about celiac disease.  First of all  there is no allergy to gluten!  Celiac disease is an autoimmune disorder like Multiple Sclerosis or Lupus.  The body attacks the small intestinal tract damaging villi.   It is the only AI disorder that is triggered by gluten which is found in wheat, rye and barley.  Any medical doctor can order a celiac blood panel to test for celiac antibodies but you need to be consuming gluten daily.  

 

If testing is negative, you might have Non-celiac gluten sensitivity (symptoms but no intestinal damage).    Unfortunately, there is no specific test for that just adhering to the gluten free diet to see if all symptoms resolve.  

 

You could be allergic to wheat (not gluten) but that typically presents with breathing issues, swelling, hives, , passing out, anaphylaxis, itchy skin or eyes, sneezing, asthma, etc.  An allergist could help with a wheat allergy diagnosis.  

 

This is a great site for information too!  Ask away!  

 

Take care!  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hank444 Newbie
Hank444
Posted

 

 

I also did not say on this topic but I had pain in my side where my gallbladder is after I had too many processed wheat products.Pain has been there over 2 months and I had a Hida scan to check the function and they said it was 28% working,doc said need to be at least 35% to keep it.My gallbladder is feeling less numb and my bloating and constant burping has gone mostly away since I went on a gluten free diet for a little over 1 month.I have lost weight since the pain in my side came about and doctor wants to take my gallbladder out in 4 days from now.I'm not sure I should have it done.I'm feeling better than I was a month ago.Not sure if I should postpone the surgery or not.  I had an ultrasound done and I only have 2 small polyps in my gallbladder and no gallstones.

cyclinglady Grand Master
cyclinglady
Posted

Hank,

I think you should discuss your concerns with your doctor about your gallbladder. I wish you well!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748
    Newest Member

    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.