Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety, ocd since gluten free / medicine absorption / slippery elm


Dsa

Recommended Posts

Dsa Newbie
Hi all,

I posted a similar posting over in the research forum but thought it may be more fitting here:

I was diagnosed with celiac disease last year June and have been on a strict diet ever since. However since about a month after my diagnosis and diet change I have experienced am onset of ocd and anxiety. I am on topamax and lamictal for unclarified migraine / epileptic type symptoms (not seizures) and have been for a few years :

Is it possible that since going gluten free the medicine is absorbed differently (I.e more purely?)

I have long suspected that I may be suffering from some form of hypothyroidism, but I have had repeated tests and now just had a full panel - which returned normal.

I've been thinking about trying slippery elm to try repair stomach lining / villi, because I believe my medicine dosage may be too high now, and slippery elm may put the absorption back in line to before I went gluten free (I.e when not much was being absorbed) is this a possibility? 



Has anyone else experienced this ? I find doctors don't know much about this stuff.

Thanks all,


 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Did you get your thyroid tested for Hashimoto's thyroiditis?  It is harder to get diagnosed as some of the test results come back in "normal" ranges, if the doctor did not order the tests for the auto immune disease.

I was diagnosed with Hashimoto's before going gluten free.  I did have to adjust the medication level to a lower dose, as my get was absorbing better.

None of us are real doctors so please get your medication levels evaluated by your doctor and do not start any supplements without medical guidance.

I also suggest you get you vitamin and mineral levels tested.  Celiacs can be deficient in so many nutrients.  i.e. Vitamin B 12 deficiency can have anxiety as a symptom.  Most "silent" Celiacs get diagnosed from severe anemia.

Most of the gluten free food substitutions are not vitamin and nutrient fortified like the gluten counterparts you were eating.  Discuss with your doctor about a gluten free vitamin supplement.

The bold type is part of the new system bugs.  I couldn't get it to turn off after an accidental bump.

knitty kitty Grand Master

This might be interesting to you

Open Original Shared Link

Open Original Shared Link

Do get your vitamin levels tested.

I would not recommend slippery elm because it produces a slime that is difficult to break down.

 

Dsa Newbie

Hi and thank you for your responses, it is much appreciated.

I went for a few blood tests last week - my S-TSH, S-FT4, and S-FT3 are all within normal range as well as TG and TPO anti bodies (also well within normal) So I suppose I have covered that?

As far as vitamins are concerned, I have been taking slow mag magnesium and B12 with folic acid for a while in the mornings - I have recently added Metagenics Cortico B5 B6 to assist with adrenal function.

 

I hope the Cortico will help perhaps.

 

Thanks again,

 

D

 

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.