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Positive ttg help

Flowerpower135

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Flowerpower135 Newbie
Flowerpower135
Posted

My son almost by a fluke was tested for celiac and got a positive ttg (tested at 50) He also has low iron. He really doesn't have any true GI symptoms. Could it be a false positive 

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squirmingitch Veteran
squirmingitch
Posted

There is such a thing as silent celiac where one has no symptoms yet they still get the gut damage & everything else that can go along with celiac. 

Testing for kids is funny though. I will let those more experienced in the nuances of testing kids answer more fully to you. However, with the low iron it sure is a celiac indicator. It really would help if you could post all the celiac tests he had along with his results as well as reference ranges. To say his ttg was 50 really doesn't tell us anything as all labs have their own reference ranges & those can vary a good bit.

Flowerpower135 Newbie
Flowerpower135
Posted
  • Author

Thanks!  I honestly don't know all the tests. The pediatrician didn't give me the results paperwork (which is annoying). He just called and told us about the ttg. He said it was "a strong positive as normal would have been around a 6". We are going to a GI where I hope he explains more fully. 

Flowerpower135 Newbie
Flowerpower135
Posted
  • Author

Thank you. Also low hemoglobin and iron

cyclinglady Grand Master
cyclinglady
Posted

The low hemoglobin and the low iron is often a sign for celiac disease.  That fit my profile and is what tipped off my doctor.  I was shocked.  I had no typical celiac symptoms just the low hemoglobin and low iron.  Turns out I had more issues.  Keep us posted and ask any questions.  We are here to help!  

Oh, be sure to get and keep all copies of his lab work.  It is a good thing to do for everyone in your family.   Finally, keep in mind that celiac disease is an autoimmune disorder  that is genetic.  All first-degree relatives should be tested even if they do not have symptoms.  

GF-Cheetah Cub Contributor
GF-Cheetah Cub
Posted

My daughter is a silent celiac, she has no symptoms.

We also had a high ttg number from a blood test.   We then met a GI doctor, and performed an Endoscopy, and the celiac was confirmed.  We were very surprised.

So, you should have an endoscopy done.   It is only a 15 minute procedure, and they do put the patient to sleep for this procedure.   I hope your son does not have celiac, but if he does, it is better to find out as soon as possible.   My daughter did not grow an inch for a little over a year.   She went from one of the taller kids to one of the shorter in her class.

Flowerpower135 Newbie
Flowerpower135
Posted
  • Author

thanks!

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cyclinglady Grand Master
cyclinglady
Posted

Going to the library and getting a few celiac disease books might help educate your husband .  Even watching a few You Tube videos might help your him.    Education is your best defense.  I think your husband is afraid to be sedated.  It is scary decision to make for a small child.  Heck, my husband doesn't want our dog to be sedated for her annual teeth cleaning.  Luckily, I found a dog dental hygienist who does not sedate.  I digress..... Hubby did not want me to have a C-Section either even though our baby in a transverse position because of a large fibroid tumor.  I just agreed with "Let's go natural" and winked to the doctor.  Really?  How was the baby supposed to come out?  Hip first?  No worries.  Other factors prevented a natural delivery.  I survived (and baby too) the sedation.  

Get yourself tested but make sure you have been consuming gluten daily first (8 to 12 weeks).  

I think your husband just needs some reassurance.  Make sure all his concerns are addressed by the GI.  Write them down and take notes!

Hang in there, Mom!

squirmingitch Veteran
squirmingitch
Posted

You can give your hubs some reading material. Here is one to show him celiac symptoms aren't all GI symptoms:

Open Original Shared Link

And here's one on why so many doctors don't know what they're talking about when it comes to celiac disease:

Open Original Shared Link

And here's one about who should get tested for celiac disease:

Open Original Shared Link

And here's one about associated AI disorders:

Open Original Shared Link

And here's the biggie - he can read to his hearts content & learn a lot:

Open Original Shared Link

And these next 2 are about what happens when celiac disease goes untreated:

Open Original Shared Link    --- this 1 has a lot more info. than just that

Open Original Shared Link

 

 

Flowerpower135 Newbie
Flowerpower135
Posted
  • Author

Thanks!

squirmingitch Veteran
squirmingitch
Posted

Well, let's just hope the GI is as savvy as your Ped is. Hooray for your ped catching this however, I would really rather have seen him do the complete celiac panel -- not that his positive tTG-IgA isn't enough but sometimes people test high on one & not the other so they can easily be missed when the doc only runs one of the tests in the celiac panel.

If the GI isn't savvy then you might have problems with your hubs on this.

Well, you are armed with a lot of information now so make your list of questions for the GI & grill him/her good & don't let them get off with hemming & hawing. I think you've caught this really early with your son & that's great!

Please let us know how it goes.

Flowerpower135 Newbie
Flowerpower135
Posted
  • Author

i will :)  thanks!

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