Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's wrong with me?):


Maddi

Recommended Posts

Maddi Community Regular

So I've never been an allergic person other than allergic to pollen. Well, this morning I decided to give soy milk a try since I havent been eating dairy and I need to get calcium somehow. BIG MISTAKE. I had a cup full of soy milk with Chia seeds. Within an 30 minutes of d

rinking it I started getting really nauseous then within an hour I started getting itchy eyes, throat, ears, and mouth. Then I started sneezing like crazy and my eyes and head started hurting. Now my nose is really stuffy. Is this an allergy to soy? I had less than an ounce last week  (to taste it) and I don't recall having any problems. Anyone else with issues with soy? Is this common? 

 

Oh and one more thing last summer I started being intolerant to casein...well I'm imagining it's casein because I can't drink Lactaid or goat's milk bc I get the same reaction (extreme sleepiness and fatigue with a headache). I'm not quite sure what's happening but I'm becoming more and more intolerant/allergic to foods and supplements. I'm going to talk to my gastro about this tomorrow. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You are  still in the infant  stage  of  healing  celiac. some  people  have  found  they  are sensitive  to  many other  food  items... Doctors  sometimes  tell patients  to stay away from  any  type of  dairy for at  least 6 months... Dairy  is also broken down at the tips of the villi .....There  are  many  who react  to  soy products, I  for one  can not tolerate  any soy....or MSG which is another beast....

I would  suggest  eating  only  grass fed  beef, organic  chicken, wild  caught  fish,  veggies &  fruits  until  your  gut  settles  down. It  does  sound  very limited but  it  works....When  your  gut  is  better  it  will tell you what it likes & dislikes. You maybe  surprised that  things  you never thought  were an issue  are  &  things  you thought  were  nasty  are  now  okay... plus  cravings  do  go away .....good luck

cyclinglady Grand Master

People with celiac disease often have food intolerances due to intestinal damage.  I know you are not officially diagnosed, but you are attempting the gluten-free diet.  Like the rest of us, you are discovering that you have developed intolerances or allergies along the way.   The most common is lactose, but corn and soy are other top offenders.  Eat plenty of leafy greens (I sautee them for breakfast) and consider a calcium supplement for now.  

Talk to to your doctor about your concerns, but remember, it takes time to heal.  Lots of it.  Do not try too change so many things in your diet or what you supplement all at once.  Introduce new things slowly.  Chances are you just consume too much soy at one time.  Everyone is different.  Often with intolerances you can have a little of the offending food.  Problem is you do not know how much is too much!  It could be an allergy.  Often allergies are minor.  It is like a cup.  Fill it too full and you react.  Of course, you should discuss with your doctor because allergies can be deadly, but that is rare!  I am allergic to NSAIDS (anaphylactic) so I never take them.  I am mildly allergic to horses.  Do I ride, yes!  I just take an antihistamine to avoid the sneezing, itching, runny nose,etc.).  

eat those simple foods that MaMaw suggested.  That is my fall-back diet when I get glutened!  Eat them for a month or longer until symptoms resolve.  Keep a food and symptom diary.  Remember, what is healthy for some (like garlic and onions) could cause allergic or intolerance reactions.  (I used the onion/garlic example because they make me sick! ). 

knitty kitty Grand Master

It may be the chai seeds.  You said you were allergic to pollen. Chai seeds can trigger that pollen allergy response. I'm suspicious chai seeds may be cross contaminated in the field as well.

Maddi Community Regular

Thanks for the suggestions. I didn't know Chia seeds could be CC. Although my reaction wasn't how I normally react to gluten well besides the nausea I got 30 minutes after I drank the soy milk with the seeds. I am now getting what seems like ibs type issues (no D, but pain under my belly button and sooooo much morning sickness... not pregnant, currently on my period). Hopefully it's just a new period symptom bc I'm having A LOT of gas. Weird. I never really had abdominal pain before going gluten free. 

GF Lover Rising Star

Maddi, stick to simple foods while you heal.  Anything can make you sick.  Don't start eliminating foods until there is a reason.  

I think you need to settle into the new diet, don't eat out and heal.  Keep anxiety and stress low as this can also effect your immune system

Colleen

mommida Enthusiast

Keep a food journal.  Include your activities to find a possible airborne allergen, like horse back riding.  If you are trying a new food, like the soy milk, small amounts~ in pure form~ for 3 days as a challenge.  Keep note of your reactions, symptoms, and B.M.s.

I don't really have much faith in allergy testing, but it may be something for you to consider.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,442
    • Most Online (within 30 mins)
      7,748

    Nony
    Newest Member
    Nony
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.