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Bloods are fine but still feeling horrific!

Jae

By Jae
in Coping with Celiac Disease

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Jae Newbie
Jae
Posted

Hi,

I was diagnosed with Coeliac a month ago, and therefore had two weeks of B12 injections every other day, which did seem to help with my lethargy, concentration, mood etc, however the last few days I have been feeling terrible, my head pounds, I am so exhausted, agitated and restless. I thought I would just go and get my B12 tested they would say its deficient earlier than expected come in for a top up and you will feel right as rain... however the bloods were normal (I am due to have top ups on a two monthly basis) so why do I feel this way, I have completely avoided gluten, as far as I am aware I haven't been glutened. Is this normal? will I always feel this rubbish? is there a usual span of time that you feel rubbish after cutting out gluten! I can not concentrate at work and it obviously has an affect on my patience and home life due to my mood and irritability... please tell me this will pass!

thank yousad.gif

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cyclinglady Grand Master
cyclinglady
Posted

It will pass.  Really.  You are just starting out.  It can take some people weeks, months or years to feel well.  I improved at about six months.  At one year I was back on my bike riding.  At two years I was feeling pretty normal (am old and have to take that into consideration ?).  So, give it time and hang in there!  

Jays911 Contributor
Jays911
Posted

Everybody is different.  I felt tremendously better after three days.  Then after a couple of weeks, I felt worse.  That lasted for a few weeks, and now I feel great most of the time.  It just varies.  Stay the course.

nvsmom Community Regular
nvsmom
Posted

I agree. Hang in there and it will get better.

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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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