Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

weight loss / muscle recovery


angeles99

Recommended Posts

angeles99 Rookie

Hi all,

 

Have been gluten free for 2 weeks now after being diagnosed via positive bloods and biopsy.

Wanted to ask how long roughly before my body will be able to start absorbing nutrients again as I've lost so much weight and muscle over the past couple of years. I'm no longer able to workout since December 2013 due to a neuropathic pain condition and extreme breathing problems (I believe these are unrelated to the celiac disease). I desperately need to put back on some weight and muscle. Once my gut heals should I be able to put on muscle as normal in the past? Is the inability to put on muscle caused by not being able to absorb nutrients? I also feel that my growth was stunted due to having undiagnosed celiac disease. Should mention I'm a 22 year old male

 

Many thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nicki Raeleen Rookie

Im 19 and i was diagnosed about 4 years ago. I didn't have to much damage, but i would give it a 6 months and if there is no improvement go back to your doctor. Something i found really comforting was making small goals.

What i would suggest is to go to the store a buy a scale; track yourself. Ensures are one thing i loved what i was recovering. They come in different flavors and are great to take to work/ school, just remember to bring some gum because they can make your breath smell!! :lol: Don't rush your recovery. Everyone takes a different amount of time. 

I would start making little goals that are challenging. One thing that became really hard for me was walking up and down my stairs at home without stopping ( I live in a 3 story house), witch was very upsetting because i played 3 sport. I wasn't able to get back to my full athletic potential for about a year. I was then able to hold a solid weight. 

If you are truly worried about the neuropathic pain and breathing problems, go to a doctor. Don't walk out until you have a good answer and you understand what is going on. NEVER be afraid to ask questions, even if you think they are stupid. It took me more then 8 months to be diagnosed with celiac, and it was because i didn't do my researcher and i didn't ask questions. 

cyclinglady Grand Master

Give yourself months to a year!  Nikki gave you excellent advice!  Be sure to talk to your doctor about your breathing problems.  Has anemia been ruled out?  

 

angeles99 Rookie

Thank you both for your answers.

 

@Nicki Raeleen Good to know after a year you are able to maintain a solid weight. I have been going to every kind of doctor since December 2013 searching for answers regarding my pain and breathing. It all came up after a nasal surgery... Celiac was just something I randomly brought up to my GP because of my weight/muscle loss and gut issues (to be honest they were the least of my problems). Sure enough I had celiac though... Its frustrating though because I have to be the one to bring something up to my doc, if I didn't stumble across an article online I would have never known to ask for the tests. Why can't they be trying to help look for things, obviously I didn't go to medical school so how am I supposed to know whats going on?? I guess we're left to inform ourselves at the risk of sounding crazy. Sorry just venting....

 

@cyclinglady Don't know if I have been tested for anaemia. What other tests should I have regarding the muscle / weight loss. Proteins etc? Anything I should track over the year?


Thanks again.

cyclinglady Grand Master

Always, always get copies of your lab results!  Check your hemoglobin and ferritin (iron stores).  When I was severely anemic I could not catch my breath.  You could ask for other vitamin and mineral levels too, so that you can supplement (gluten-free of course).  Mostly you need time.........to heal.  

 

 

cap6 Enthusiast

There is no one answer to this question for sure.  Time.  All I can say is time.  And, as I've said before, the older you are when diagnosed and the longer you have been sick, the longer the recovery time. 

I am five years since diagnosed.  In the beginning I was no longer able to open a wine bottle. :(  My point being, there was no longer any strength in my hands. It took me about three years to recover my strength, heal my gut, learn how to eat clean (only) foods.  But, that said, everyone is so very different.  You may make larger, faster strides than someone else.  I was 58 when diagnosed and very sick.  Age (a huge factor), length of illness all took a toll and hampered the recovery time.   Age alone can slow one down.  Add an illness and recovery drags on. 

You are young and if you carefully follow the diet (life style) you should see improvement.  Remember, your gut is like a raw sore.  It needs time to heal.  Youth is on your side.  You will start to absorb nutrients as you heal and will buff up again!

 

angeles99 Rookie

@cap6 thank you! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,442
    • Most Online (within 30 mins)
      7,748

    Nony
    Newest Member
    Nony
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.