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Medical Details

Random Guy

By Random Guy
in Coping with Celiac Disease

Recommended Posts

Random Guy Apprentice
Random Guy
Posted

I hope I don't offend any of the very well informed people on this here message board by this post, becuase I really do appreciate all of the info i've gotten here over the past few days.

I am looking for medical explainations of celiac disease. Detailed medical descriptions incuding:

the process of what happens after ingestion of gluten and in what order. What are the 'this always happens' things, and what are the 'may happen' things?

sure, blood tests and biopsies are used to test, but what is it all about? What causes the immune response? What causes damage to organs? What are the causes and effects that lead to the neurological problems, and cancer?

oh, and how i love to read clinical studies.

all the info here is interesting and a great start, but i need to delve more deeply into the details.

seems to me lots of you know lots of stuff. where'd you all educate yourselves?

anyone want to suggest some reading?

thanks

-rg

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ravenwoodglass Mentor
ravenwoodglass
Posted
I hope I don't offend any of the very well informed people on this here message board by this post, becuase I really do appreciate all of the info i've gotten here over the past few days.

I am looking for medical explainations of celiac disease.  Detailed medical descriptions incuding:

the process of what happens after ingestion of gluten and  in what order.  What are the 'this always happens' things, and what are the 'may happen' things?

sure, blood tests and biopsies are used to test, but what is it all about?  What causes the immune response?  What causes damage to organs?  What are the causes and effects that lead to the neurological problems, and cancer?

oh, and how i love to read clinical studies.

all the info here is interesting and a great start, but i need to delve more deeply into the details. 

seems to me lots of you know lots of stuff.  where'd you all educate yourselves?

anyone want to suggest some reading?

thanks

-rg

<{POST_SNAPBACK}>

I would suggest getting your hands on a copy of 'Dangerous Grains' I've gotten 2 copies off of an internet auction site used and cheap and I am sure it is available in some bookstores and libararies.

I know some very knowledgeable people will be on to answer your questions more fully but essentially in sensitive people the protein gliadin in gluten containing grains acts as a systemic poison.

Carriefaith Enthusiast
Carriefaith
Posted

I'm not offended at all :) I learned everything from reading a lot of various information on celiac disease such as books, web sites, pamphlets, scientific journal articles ect. Here are some articles that may interest you:

Open Original Shared Link

Open Original Shared Link

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debbiewil Rookie
debbiewil
Posted

This is from another celiac forum, but it should give you plenty of information to start with.

(And if you make it through all of 'em, let me know. I've only read about half so far.)

Open Original Shared Link

Debbie

Jnkmnky Collaborator
Jnkmnky
Posted

Dangerous Grains is a good, readable book. All of the medical refs are in the back of the book. It's not very clinical in the reading, though.

Judyin Philly Enthusiast
Judyin Philly
Posted
This is from another celiac forum, but it should give you plenty of information to start with.

(And if you make it through all of 'em, let me know. I've only read about half so far.)

Open Original Shared Link

Debbie

<{POST_SNAPBACK}>

WOW Debbie, what a site. New to this newbie

thanks so much

Judy in Philly

tarnalberry Community Regular
tarnalberry
Posted
I hope I don't offend any of the very well informed people on this here message board by this post, becuase I really do appreciate all of the info i've gotten here over the past few days.

I am looking for medical explainations of celiac disease.  Detailed medical descriptions incuding:

the process of what happens after ingestion of gluten and  in what order.  What are the 'this always happens' things, and what are the 'may happen' things?

sure, blood tests and biopsies are used to test, but what is it all about?  What causes the immune response?  What causes damage to organs?  What are the causes and effects that lead to the neurological problems, and cancer?

oh, and how i love to read clinical studies.

all the info here is interesting and a great start, but i need to delve more deeply into the details. 

seems to me lots of you know lots of stuff.  where'd you all educate yourselves?

anyone want to suggest some reading?

thanks

-rg

<{POST_SNAPBACK}>

use pubmed (www.pubmed.com) and you'll have access to abstracts and some full text articles from all the common peer-revied medical journals. it'll take plenty of searching, but there's plenty in there. google will also find you some good sites, though it'll take a bit of sifting. (I'm afraid I don't have the good sites I've already found bookmarked.)

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ravenwoodglass Mentor
ravenwoodglass
Posted
This is from another celiac forum, but it should give you plenty of information to start with.

(And if you make it through all of 'em, let me know. I've only read about half so far.)

Open Original Shared Link

Debbie

<{POST_SNAPBACK}>

What a great reference. I am immediately going to post a link on all the boards I visit. Thanks

angel-jd1 Community Regular
angel-jd1
Posted

Here is the list of research sites that I have posted on my site USASillyYaks. I hope some of them are benificial to you. Hopefully all of the links work, if not I appologize! ha

-Jessica :rolleyes:

All Allergy

Your Gateway to All Asthma, Allergy and Intolerance Information on the Web

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Auto-Immune Disorder Checklist

list of symptoms of multiple disorders

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Biopsy Pictures from The University of Utah:

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Celiac Care Resources

safe food lists, restaurant lists, info and more

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Celiac Disease Fact Sheet from the National Institute of Health

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Celiac Disease Web Ring

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Celiac Solutions

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Celiac.com

LOADS of information and a great message board!!

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Celiac.org

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Celiac/Coeliac, Dermatitis Herpetiformis (DH), Wheat/Gluten-Free

Links to other sites and info.

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Children's Digestive Health and Nutrition Foundation

a comprehensive source of information and educational tools for people with celiac disease, their families and the medical professionals that treat them.

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Clan Thompson

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Detecting Celiac Disease in your Patients found in the Journal of American Family Physicians

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gluten-free Links

tons of links for different things

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Gluten Free Info Site

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Gluten Free and more!! Nu-World Family

Info and make a gluten free pledge for life

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Gluten Freedom

Danna Korn author of Wheat Free Worry Free Website

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Gluten Intollerance Group of North America

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Mayo Clinic

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MedLine Plus on celiac Disease

medical publications and articles on celiac disease

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Michigan Pharmacists Article on Celiac Disease

great article ...need adobe acrobat to open

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National Institute of Diabetes, Digestive, and Kidney Diseases

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Pictures of Damage

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Planet Celiac

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Special Diets Resource Guide

Info, T-shirts

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The Gluten-Free Prescription Diet

basic info.

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Utah gluten-free

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Wheat Free Zone

Open Original Shared Link

When Food Becomes the Enemy from the Mayo Clinic

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kelliac Rookie
kelliac
Posted
WOW Debbie, what a site. New to this newbie

thanks so much

Judy in Philly

<{POST_SNAPBACK}>

I agree with Judy in Philly--WOW!!! Perhaps we should all copy this link, paste it in word and give it to every doctor we see. They should be reading what's out there as well. Obviously (as we on this site know) gluten sensitivity is rampant and unfortunately underdiagnosed because the people that can help us (physicians) are not getting the info they need. Thank you, Debbie, for the great info.

Nevadan Contributor
Nevadan
Posted
I'm not offended at all  :) I learned everything from reading a lot of various information on celiac disease such as books, web sites, pamphlets, scientific journal articles ect. Here are some articles that may interest you:

Thanks Carrie,

Those are some really good links in your post higher up on this thread.

George

Random Guy Apprentice
Random Guy
Posted
  • Author

thanks very much for all of these links

sure is a lot ot digest, so to speak

thanks

-rg

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