Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten withdrawal?

Momma2PirateNPrincess

Recommended Posts

Momma2PirateNPrincess Rookie
Momma2PirateNPrincess
Posted

Hi all! I started another post Thursday in this section but don't see it anywhere. Hope it's ok for me to start a new one! 

I'm new to the gluten-free diet. Today is day 9. I haven't officially been diagnosed with Celiac just gluten sensitivity via saliva. I've had some issues that came out of nowhere almost 5 months ago. Now day 9 and things aren't much different. In fact I feel a little worse (more exhaustion, more off balance spells). I'm trying really hard to convince myself this gluten-free lifestyle is worth it but since I'm seeing no improvement it's SO hard! I know 9 days is nothing but 2 gluten-free friends said they felt better overnight. Maybe my expectations are off :/

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flowerqueen Community Regular
flowerqueen
Posted

 

Not everyone feels better overnight. Some people that have had problems for years and then go gluten free, a lot of damage has already been done, so it makes sense that it takes longer to improve their health.  In the case of coeliacs, which may or may not be the same for you,  damage is done not only to the gut, but other areas are affected, for example, anaemia, malabsorption of nutrients, hair loss, bone thinning, muscle weakness etc., and these things don't disappear overnight. 

I found my gut problems improved, but also had withdrawal symptoms, including vomiting after meals. 

Everyone is different and you can't compare yourself with others. Carry on with your gluten free eating plan as things should settle down eventually. 

cyclinglady Grand Master
cyclinglady
Posted

Were you not able to get a celiac blood test?  The saliva test is not even accepted by celiac experts.  It can be difficult to adhere to the diet if you are not confident about your diagnosis.  Depending on the amount of damage, healing can take months to years for a celiac.  

Flowerqueen offered excellent advice!  Eating whole foods and avoiding processed gluten free foods is best for expediting the healing process too!  

Momma2PirateNPrincess Rookie
Momma2PirateNPrincess
Posted
  • Author

I'm seeing a functional dr. He ran a bunch of blood tests and discovered low vit D, immflamation in my body and problems digesting protein. However none of the blood test was for gluten issues. He had me do a 24 HR saliva test which also tested for gliadin (sorry if I misspelled that!) He didn't seem too concerned about celiac being a possibility but did say if things haven't improved in a couple months he'd order further testing. 

I don't eat much processed gluten free food except a piece of bread in the morning and the occasional bun, pancakes, muffin or bowl of steel cut oats (all gluten-free of course). 

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,680
    • Most Online (within 30 mins)
      7,748
    MagsM
    Newest Member
    MagsM
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Help needed

      By nanny marley · Posted

      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
    • Mari
      Cruise and GliadinX

      By Mari · Posted

      Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten.  Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with Celiacs is that normal digestion will only break down gluten to the point where the small fragments will still cause a reaction. GliadinX will break down the fragments so that they are too small to start the autoimmune reaction.  The label on my bottle reads'it works in the stomach' and that is ver concentrated so 1 capsule is the recomm Hope this helps/Have a lovely cruise.ended dose for each meal. 
    • StevieP.
      Cruise and GliadinX

      By StevieP. · Posted

      Thanks so much for that information!! That helps me out alot!!
    • Scott Adams
      Help needed

      By Scott Adams · Posted

      It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (like Crohn’s or colitis) is typically because it can irritate an already inflamed colon. Since you don’t yet have a confirmed diagnosis—but your brother has colitis—it might be worth calling your gastroenterologist’s office today to clarify if you should skip the senna given your symptoms and family history. Some clinics have an on-call nurse who can advise quickly. For the prep itself: Plenvu is strong, so if your bowels are already loose, the senna might be overkill. Stick to clear liquids tomorrow (broth, apple juice, etc.) and stay near a bathroom! For anxiety, remember the procedure itself is painless (you’ll likely be sedated), and the prep is the hardest part. Bring a phone charger or book to the clinic, and treat yourself afterward to something gentle on your stomach (like mashed potatoes or yogurt). Hang in there—this is a big step toward answers. You’re doing great advocating for yourself!
    • Scott Adams
      Wheat Straw Dishes

      By Scott Adams · Posted

      Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating cross-contact risks. To be safe, I’d recommend reaching out to the company directly to ask: 1) If their wheat straw material is tested to confirm it’s free of gluten proteins, and 2) Whether the production line avoids cross-contamination with gluten-containing ingredients. Many brands now cater to gluten-free consumers and will provide detailed answers. If you’re uncomfortable with the uncertainty, alternatives like bamboo, ceramic, or glass dishes are inherently gluten-free and worry-free. Always better to double-check—your diligence is totally justified!
×
×
  • Create New...