Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten withdrawal?


Momma2PirateNPrincess

Recommended Posts

Momma2PirateNPrincess Rookie

Hi all! I started another post Thursday in this section but don't see it anywhere. Hope it's ok for me to start a new one! 

I'm new to the gluten-free diet. Today is day 9. I haven't officially been diagnosed with Celiac just gluten sensitivity via saliva. I've had some issues that came out of nowhere almost 5 months ago. Now day 9 and things aren't much different. In fact I feel a little worse (more exhaustion, more off balance spells). I'm trying really hard to convince myself this gluten-free lifestyle is worth it but since I'm seeing no improvement it's SO hard! I know 9 days is nothing but 2 gluten-free friends said they felt better overnight. Maybe my expectations are off :/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowerqueen Community Regular

 

Not everyone feels better overnight. Some people that have had problems for years and then go gluten free, a lot of damage has already been done, so it makes sense that it takes longer to improve their health.  In the case of coeliacs, which may or may not be the same for you,  damage is done not only to the gut, but other areas are affected, for example, anaemia, malabsorption of nutrients, hair loss, bone thinning, muscle weakness etc., and these things don't disappear overnight. 

I found my gut problems improved, but also had withdrawal symptoms, including vomiting after meals. 

Everyone is different and you can't compare yourself with others. Carry on with your gluten free eating plan as things should settle down eventually. 

cyclinglady Grand Master

Were you not able to get a celiac blood test?  The saliva test is not even accepted by celiac experts.  It can be difficult to adhere to the diet if you are not confident about your diagnosis.  Depending on the amount of damage, healing can take months to years for a celiac.  

Flowerqueen offered excellent advice!  Eating whole foods and avoiding processed gluten free foods is best for expediting the healing process too!  

Momma2PirateNPrincess Rookie

I'm seeing a functional dr. He ran a bunch of blood tests and discovered low vit D, immflamation in my body and problems digesting protein. However none of the blood test was for gluten issues. He had me do a 24 HR saliva test which also tested for gliadin (sorry if I misspelled that!) He didn't seem too concerned about celiac being a possibility but did say if things haven't improved in a couple months he'd order further testing. 

I don't eat much processed gluten free food except a piece of bread in the morning and the occasional bun, pancakes, muffin or bowl of steel cut oats (all gluten-free of course). 

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Coping with Celiac Disease
      8

      Draft gluten-free ciders… can they be trusted ?

    2. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

    4. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      64

      How Come Gluten Didnt Bother Me In Italy

    5. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,708
    • Most Online (within 30 mins)
      7,748

    RaDonna
    Newest Member
    RaDonna
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.