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This isn't that bad!

tooth-whisperer

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tooth-whisperer Apprentice
tooth-whisperer
Posted

Hi all,

I'm very early to this, don't even know if I have celiac yet but highly suspicious.  Wife and I went to Trader Joe's lastnight and I grabbed up all the gluten-free items I could get my hands on (at least of what we were shopping for).  So far the ginger snaps, brown rice and quinoa pasta, and TJ's brand sandwich bread are actually very good!  I can tell a slight difference between the gluten-free products and their regular counterparts, but I have to say, not in a bad way, just different.  They're quite tasty, and I told my wife I think I like them more in some ways.  The bread reminds me of english muffin bread, it makes great toast.  I'm sure it's not all rainbows and unicorns when it comes to substitute foods, but I'm digging it so far.

Now to call the GI's office and see how soon they can get me tested, so I can get off the G for a while and keep discovering this new food...

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notme Experienced
notme
Posted

if you haven't been tested yet, you need to continue to consume gluten otherwise your test results may be incorrect.  the blood test is for detecting antibodies and if your body isn't fighting, the test won't detect any or not enough.  here is some suggested reading:

just a couple of hundred other things involved with being completely gluten free :)  lolz - welcome to the forum.

 

 

 

squirmingitch Veteran
squirmingitch
Posted

Great advice from notme! Please be sure to follow the links contained in the Newbie 101 that notme! linked you to. You'll need to get a new toaster or toaster bags, and a new, dedicated cutting board, dedicated condiments or squeeze bottles of them all and do numerous other things. Better let your wife read it too. 

tooth-whisperer Apprentice
tooth-whisperer
Posted
  • Author

Thank you both for the info.  I did in fact go back to eating gluten just tonight, because I am going to talk to my internist about the celiac panel tomorrow, and put myself on the cancellation call list at the GI office to try and get in sooner.  I want to get this figured out!  If I've been mostly off for 5-6 days, how long do I need to be having gluten again before I have my blood tested?

squirmingitch Veteran
squirmingitch
Posted

Open Original Shared Link

Since you've only been off for 5 or 6 days & I'm betting you got cross contamination during that time then I don't think you need to go a full 12 weeks but I nor anyone else can exactly how much having been off will affect you. It's so hard to say. The thing is, you want to be SURE and don't want to ever doubt your test results. I certainly wouldn't get the panel drawn in the next week. If it were me; I wouldn't do it for a bare minimum of 3 weeks.

You can look at it this way.... you could go through Christmas & New Years pigging out on all your favorite gluen foods to say (possibly) goodbye to them forever. 

tooth-whisperer Apprentice
tooth-whisperer
Posted
  • Author
2 minutes ago, squirmingitch said:

Open Original Shared Link

Since you've only been off for 5 or 6 days & I'm betting you got cross contamination during that time then I don't think you need to go a full 12 weeks but I nor anyone else can exactly how much having been off will affect you. It's so hard to say. The thing is, you want to be SURE and don't want to ever doubt your test results. I certainly wouldn't get the panel drawn in the next week. If it were me; I wouldn't do it for a bare minimum of 3 weeks.

You can look at it this way.... you could go through Christmas & New Years pigging out on all your favorite gluen foods to say (possibly) goodbye to them forever. 

Yeah, I kind of figured it's my time to go a little crazy!  Today I informed the partners at my dental practice that if my symptoms get too uncomfortable, I might need to take some time off, and they're understanding folks.  One of the things I've been most concerned about is missing work, but we have a few dollars in the bank and I think being able to relax at home and just lay down and nap when I don't feel well will make it a lot easier.  I normally work 45-50 hours a week, which was fine until discomfort and anxiety were piled on as well.

squirmingitch Veteran
squirmingitch
Posted

Yep, have a last wild fling! Drink your fill of you most favorite beer. Eat those fabulous Christmas baked goods with total abandon.

It's good that your partners are on board with the fact that you may need to take time off. 

Please keep us updated on what happens.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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