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New Endoscopy


flsunshine

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flsunshine Newbie

I just had an Endoscopy a couple of days ago. I am awaiting the results (Biopsy).  I was told I had stomach inflammation. Stomach aches, bloating. I have felt I have Celiac Disease Or some sort Of Gluten Sensitivity. I realized I had a lot of the other symptoms also when I started researching Celiac. I didn't realize all the other symptoms that go along with it. I have migraines - I take daily Topamax for Migraines, and then Immitrex prn. I have been told I have IBS, I have chronic back ache, fatigue. I am a 45 year old female, to put it bluntly seems to be going through menopause - as periods just stopped suddenly last year..I read that can also be part of it. So I am not trying to self diagnose, but anyone else have these symptoms? I just feel tired, run down. I want to be more active but my body doesn't want to. I am slightly overweight, but don't eat a lot, but feel hungry even after I eat - I will sometimes feel full after I eat a few bites, but then feel hungry later on. If it isn't Celiac then I am not sure. Thanks for any response :)


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koshjelly Newbie

Good call on getting the endoscopy! Too many people just go on a gluten free diet (usually not a super strict one) and never actually know.  

Certainly sounds like it could be celiac. You'll have to wait and see I guess. Good luck!

Jessica77 Newbie

My daughter was diagnosed with Celiacs. She's 17 but had a lot of your symptoms. She was always tired, stomach aches, she could not even finish a meal without having to run to the bathroom.  Hope you find out soon... The good news is after she went gluten free she started to feel so much better. Good luck to you!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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