Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight gain stopped again after first 6 months for my 5 year old...


CeliacMommaX2

Recommended Posts

CeliacMommaX2 Enthusiast

My now 5 year old was diagnosed almost a year ago.  In the first 6 months after going gluten free, we saw a 3 lb weight gain and she grew 2 inches.  Her numbers were a little bit improved, but not near normal still.  She has not gained any more weight since September and I think she may have grown one inch.  Should I be concerned?  We'll have more blood work in about 2 months.  I'm just worried and paranoid she's getting gluten somewhere in her diet that I'm overlooking...  I think I'm being crazy cautious (no eating out, entirely gluten free home, pack food if we visit anyone).

Any thoughts would be appreciated!  Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

It sounds like she has had some growth and that is good news!  What do you mean she still is not normal?  Is that based on growth charts?  Is she still off the chart in both height and weight?  

I am sure you are doing a great job keeping her gluten free.  The test in two months will tell if she is steadily improving.  Your  doctor can check her growth too.

My kid so far does not have celiac disease, but she was always in the 5% section in weight and 50% in height.  She cracked 10% finally when she went to kindergarten.  I attribute her weight gain to the junk food she was exposed to along with the fact that she comes from little people!  She is a buff high school water polo player now -- all muscle but still slender!  

 

frieze Community Regular

growth is not going to be a constant upward grade, month by month.  plateaus happen.

mommida Enthusiast

If you think there is still some underlaying issue, go back to the doctor for further testing.

StephanieL Enthusiast

A year isn't a ton of time of time for healing. I would see how the next set of labs looks.  

It was 5 years after dx before the Dr's were really even a little worried about my kiddos growth and adding a nutritional supplement. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,004
    • Most Online (within 30 mins)
      7,748

    Ellen Watts
    Newest Member
    Ellen Watts
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • wellthatsfun
      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these...
×
×
  • Create New...