Why don't I ever feel good......... EVER.

[All-Natural]

Im, not sure how all of this works of if this forum is for what I need but I'll give it a shot.  I've been diagnosed with celiac disease for over four years now.  Over these years I have struggled quite a bit but only recently I have been hit with CONSTANT fatigue, bloating, headaches, and I am always always tired.  Can anyone tell me possibly what the issue is.  I know whats wrong but I don't know much about it I guess.  I've been doing research online lately and what I am getting a lot of is that a gluten free diet is not the only thing that I need to be doing?  It is all confusing, I just cannot handle feeling like crap everyday for the rest of my life.  I used to be happy go lucky all of the time and I just want to get back to that state.  Keep in mind that I also "suffer" from a casein intolerance, or something, what ever it is my body doesn't like it.  (I don't know if that helps or not but I figured I would throw that out there.)  Im a first timer here so be gentle and I appreciate all the help I can get.  

[cyclinglady]

Welcome to the forum!  

Have you had any follow-up antibodies celiac testing?  You should first rule out any gluten sneaking into your diet before investigating other possible issues.  When intestinal villi damage occurs, it can prevent the necessary enzymes to digest foods easily (like lactose (milk sugars)).  So, many celiacs often have temporary or sometimes permanent intolerances to foods like soy, corn, lactose,etc.  It is also recommended that you eat a whole food diet and avoid processed foods and eating out as much as possible at least until you are feeling better.  

I think a visit to your GI is needed.  ?

[lisas11lisa]

Welcome!!..We have been diagnosed about the same length of time..U sound alot like I did..Have u ever had your Ferritin level ckd??..It is ur iron stores..I am iron deficient anemic..and have to have periodic iron infusions..also..just had to have my gall bladder removed..it also can cause alot of trouble ..keep reading...I search everything I can..goodluck!!

[kareng]

I would make sure that you don't have a completely different medical issue.  Not everything is because of Celiac.

[manasota]

Perhaps keeping a food diary (writing down every single thing you ingest) might help?  It has helped me many times.  It has even helped me SIX YEARS after being diagnosed and going gluten free!!

Good luck!

[bartfull]

I would start with the Newbie 101 page pinned to the top of the coping section here. You may well be getting cross-contamination. And yes, a food diary. And also yes, try to stick to whole foods.

If you must eat processed foods, try to stick to Kraft or Con Agra products because of their labeling policies, or to certified gluten-free foods.

And as Karen said, it might be something totally different so a follow-up with the doctor might be in order.

[sunflower1860]

I have at least 2 issues going on.   I found out I had celiac last fall.   But, when I had my gallbladder removed several years before some ducts were left in.  The bile just drips and drips causing diarrhea after eating.   I was given some medication for that and it's helped.  But yes, there are more things than celiac, more allergies, sensitivities and it's frustrating.  I wanted to feel better, like normal.  There are more of those days now, but still too many when I don't.   I think a diary is a great idea.  

[DebbieAnnC]

For my daughter, we eliminated everything but meat, fish, veggies and fruits for two weeks. Then we slowly added in things about once every 5 days.  We found out she cannot tolerate corn! That means no corn syrup, which is in everything. Oats, even certified gluten free, are also an issue. Casein is an issue for a lot of people but not for her. She also was deficient in L-theanine, ferritin (makes you very tired), and zinc. L-theanine deficiency made her anxious. Maybe you could try an elimination diet and get tested for deficiencies.