Nursing Home Care—The Great Challenge for the Celiac

[Scott Adams]

The woman's voice, polite but firm came over the line: "We cannot accommodate your mother." "You can't accommodate her?" I wondered if I'd heard wrong.

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[cyclinglady]

This is my worst nightmare!  Forget my kid's college education, I'll need to save for caregivers!  

[Gemini]

36 minutes ago, cyclinglady said:

This is my worst nightmare!  Forget my kid's college education, I'll need to save for caregivers!  

Long term care insurance!  I am looking into the cost for this because if you buy the right kind, they will pay for in home care.  It has made all the difference with my father, who is suffering from dementia.......probably from undagnosed Celiac! 

[squirmingitch]

I seriously doubt my hubs & I can afford long term care insurance. He is a disabled Vietnam veteran & the disability compensation does not stretch very far.

This is something I have feared ever since finding out I have celiac and then another hit when we discovered the hubs does as well. I am terrified that nursing homes will not be prepared for a celiac and the diet we require without cross contaminating us left & right. I envision the return of the awful celiac rash and them putting me in restraints because I can't stop scratching myself. It's a nightmare that plays over & over in my mind. They'll probably rub Aveeno lotion all over me. Let's coat her lesions in oatmeal! Hell!!!!! Sheer hell!!!!

On top of requiring a gluten-free diet, what about those of us who can not tolerate certified gluten-free oats? Those of us who can not tolerate soy? The list goes on.

What about people who have anaphylactic reactions to peanuts or shell fish or eggs or dairy, tree nuts or any number of foods? Are these people being cared for now? I doubt it if they can't even handle diabetics or kidney diets.

Bleak. I see the future as very bleak.

[SLLRunner]

This article almost made me cry.