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So Glad I Found This Forum!


traveljunkie

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traveljunkie Rookie

Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!


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Lisa Mentor

Welcome. I too have gain a vast knowledge from this site. I am now teaching my doctor about Celiac Disease.

I'm impressed that you have solved your gluten intollerance on your own. Good for you.

Feel free to post anytime.

Lisa B.

nettiebeads Apprentice
Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!

<{POST_SNAPBACK}>

I'm very thankful for this forum also. I was on my own for 9 yrs before breaking down and sought support online. Thank God I found this place!! My knowledge of celiac disease has improved considerably and so has my health. Welcome to the site, and please feel free to post any questions. None are to gross or silly! After all, it's only your health!

Annette

jenvan Collaborator

glad you've fount it helpful! don't know what i would have done without it :) ah, the dreaded IBS mis-diagnosis...join the club of those of us with the same experience!

traveljunkie Rookie

Thanks, everyone! I know this will be just the first of many posts. Look forward to chatting with you all!! Been through a lot and have lots of stories to share!

beelzebubble Contributor

welcome :)

i'm glad you found this site too. it's been a source of very necessary information and comfort to me these last few years. i know it will be to you too.

i just have to ask, just in case...have you done a round of probiotics to help your intestines get healthy after being on the antibiotics? i've found that it really helps. i know it was a while ago, but chances are you are still out of whack if you haven't taken steps to correct it.

anyway, be well.

bubble

traveljunkie Rookie

Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!


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KaitiUSA Enthusiast

Hope you find the forum helpful. Welcome :)

stef-the-kicking-cuty Enthusiast

Diagnosed with IBS... Ha, doesn't that sound familiar :P . Welcome to the board and feel free to ask every question no matter how stupid it may seam to you.

Hugs, Stef

judyk Newbie

I'm new here, too. I've had this problem for years. My mother was

allergic to wheat but I don't think they knew about celiac then. I was

tested for gall bladder and then my doctor had the blood test done.

No celiac! But I still vomit. Although my diarrhea has improved the

last couple days. The up side is I'm losing weight.

I was disappointed that nothing showed in my tests but from what I

have read on this site..sometimes it doesn't show.

I cheated Thanksgiving and this a.m. Yes, I got sick so back to wheat

and milk free.

JudyK

stef-the-kicking-cuty Enthusiast

Hello Judy,

welcome in our little "celiac community". Just listen to your body. If the test results didn't show anything, but you feel better on wheat and milk free, then do it. You might have read this already somewhere in here, but here it is again. Celiacs are sometimes (especially at the beginning of their diet) intolerant to milk. In a couple of weeks (or months) though, when the little hair in your small intestines are fine again you might be able to drink milk again. You might wanna give it a try in 6 months or so.

Hugs, Stef

Claire Collaborator
Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!

Try raw milk cheese (unpasteurized). Also very aged cheese. See if you can handle this. No processed cheese. Claire

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      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
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