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So Glad I Found This Forum!


traveljunkie

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traveljunkie Rookie

Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!


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Lisa Mentor

Welcome. I too have gain a vast knowledge from this site. I am now teaching my doctor about Celiac Disease.

I'm impressed that you have solved your gluten intollerance on your own. Good for you.

Feel free to post anytime.

Lisa B.

nettiebeads Apprentice
Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!

<{POST_SNAPBACK}>

I'm very thankful for this forum also. I was on my own for 9 yrs before breaking down and sought support online. Thank God I found this place!! My knowledge of celiac disease has improved considerably and so has my health. Welcome to the site, and please feel free to post any questions. None are to gross or silly! After all, it's only your health!

Annette

jenvan Collaborator

glad you've fount it helpful! don't know what i would have done without it :) ah, the dreaded IBS mis-diagnosis...join the club of those of us with the same experience!

traveljunkie Rookie

Thanks, everyone! I know this will be just the first of many posts. Look forward to chatting with you all!! Been through a lot and have lots of stories to share!

beelzebubble Contributor

welcome :)

i'm glad you found this site too. it's been a source of very necessary information and comfort to me these last few years. i know it will be to you too.

i just have to ask, just in case...have you done a round of probiotics to help your intestines get healthy after being on the antibiotics? i've found that it really helps. i know it was a while ago, but chances are you are still out of whack if you haven't taken steps to correct it.

anyway, be well.

bubble

traveljunkie Rookie

Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!


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KaitiUSA Enthusiast

Hope you find the forum helpful. Welcome :)

stef-the-kicking-cuty Enthusiast

Diagnosed with IBS... Ha, doesn't that sound familiar :P . Welcome to the board and feel free to ask every question no matter how stupid it may seam to you.

Hugs, Stef

judyk Newbie

I'm new here, too. I've had this problem for years. My mother was

allergic to wheat but I don't think they knew about celiac then. I was

tested for gall bladder and then my doctor had the blood test done.

No celiac! But I still vomit. Although my diarrhea has improved the

last couple days. The up side is I'm losing weight.

I was disappointed that nothing showed in my tests but from what I

have read on this site..sometimes it doesn't show.

I cheated Thanksgiving and this a.m. Yes, I got sick so back to wheat

and milk free.

JudyK

stef-the-kicking-cuty Enthusiast

Hello Judy,

welcome in our little "celiac community". Just listen to your body. If the test results didn't show anything, but you feel better on wheat and milk free, then do it. You might have read this already somewhere in here, but here it is again. Celiacs are sometimes (especially at the beginning of their diet) intolerant to milk. In a couple of weeks (or months) though, when the little hair in your small intestines are fine again you might be able to drink milk again. You might wanna give it a try in 6 months or so.

Hugs, Stef

Claire Collaborator
Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!

Try raw milk cheese (unpasteurized). Also very aged cheese. See if you can handle this. No processed cheese. Claire

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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