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Need some straight answers!!

Jasmine05

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Jasmine05 Newbie
Jasmine05
Posted

I apologize for the long post, but it's my first one!!   In January, I had some routine blood work done.  My grandmother is celiac and I have been having stomach issues for a few years, so I asked my doctor to test for celiac.  After getting the results she called me in and told me I have celiac.   She said that I would need to have a biopsy to confirm it, but she was pretty certain I had it.   Knowing what I do from gramma, I decided to cut gluten out and see how I felt.  Within a couple of weeks my stomach issues seemed to vanish.  I started having regular BMs and the excessive bloating was gone.   My skin cleared up and my joints stopped aching.   I was about 95% gluten free.  After 2 months I had lost 8 lbs and was feeling great.   I finally received a date for my biopsy.  June 10th.  So I know I need to be eating gluten to have an accurate result.   I'm struggling to force myself to eat it.   My question is how much do I have to eat.  I get different answers from everybody I talk to.   Family doctor says a week before to start eating it.   Dietician says to have 4 servings a day for 4-6 weeks before ( I might die if I have to endure that....well not really die but definitely suffer).  The internet gives me all kinds of different answers!  Any advice?  

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SLLRunner Enthusiast
SLLRunner
Posted

Welcome, @Jasmine05 :)

A link to answer your questions:  Open Original Shared Link

  • Prior to blood testing we recommend 12 weeks of eating gluten.
  • Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.

 

Jasmine05 Newbie
Jasmine05
Posted
  • Author

Thank you @SSLRunner I think I can handle two weeks!!!

etbtbfs Rookie
etbtbfs
Posted

Since you have had testing and symptoms subsided when you went off gluten, why do you have to bother with biopsy?

cyclinglady Grand Master
cyclinglady
Posted
45 minutes ago, etbtbfs said:

Since you have had testing and symptoms subsided when you went off gluten, why do you have to bother with biopsy?

Because all the leading experts in celiac disease recommend it?  I know that sometimes folks can not have one due to financial reasons or waiting a year for the endoscopy, but two weeks is a short time. Best to get a baseline on villi damage and to rule out other things (H. Pylori, SIBO, etc).  

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Contact them.
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