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Celiac blood tests abroad


myshell

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myshell Newbie

Hi All, 

I'm hoping for some advice.  I'm living in Korea and for 2 months I've had gastric pain, some diarrhoea, gas and a lot of bloating. I've previously had these symptoms over the years and constipation as well but been told it was probably IBS.  However the symptoms are a lot more profound recently, the gastric pain and bloating are ongoing.  Also I have pain in my hips, ribs and pins n needles type pain in my ankles. I've read some information which mentions these symptoms with celiac and I'm now thinking this is a possibility. I do eat a diet high in pasta and bread. I had tests for autoimmune diseases but not sure if they tested for celiac, I've been told it is not commonly recognised here. Anyway they did some antibody tests which were all negative, the antibodies tested were ANA titration, Anti cardiopilin IgM, IgG and anti ccp antibody.  I would really like some advice as the rheumatologist here was not that helpful and didn't speak good English.  I've done some googling and none of these seem to be for Celiac testing, I plan to see another rheumatologist and take my Korean friend with me to discuss, I'm also due to see a gastroenterologist so hopefully I'll get answers.  In the mean time I was hoping some people on here might have some knowledge to share.  Thank you in advance :)


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cyclinglady Grand Master

I am sorry that you are not well!   I had rib and hip pain.  Turns out it was oteoporosis due to celiac disease. It has resolved now that I am absorbing nutrients better by being gluten free.

Here are the tests that you can share with your doctor. 

Open Original Shared Link

Open Original Shared Link

If possible get the complete panel as noted by theUniversity of Chicago.

Take care!  

 

 

myshell Newbie

Hello, 

Thank you for this, I will discuss with the GI doctor when I see them.  I don't think I had any of these tests as they were more concerned about possible rheumatoid arthritis as I have family history of this.  I am concerned about osteoporosis too as I've been experiencing these symptoms for many years.  Additionally I recently broke my ankle after a simple fall, it just gave way.  In addition I've my arm twice in the past 5 years!

Thanks again, hopefully I get some answers soon.

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    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
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      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
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      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
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      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
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