Relapse of Symptoms?

[Babybop]

Hi everyone. I was wondering if anyone experienced this or had any tips...

So I was feeling fine two weeks ago - my main symptom before diagnosis was extreme nausea - and then last week I woke up and I felt just like I did before going gluten free. I even had a gagging attack where I couldn't stop dry heaving. I don't throw up when this happens - if anything I just cough up mucus or acid (I have a hiatal hernia). I had been glutened the week before when my chicken from Pei Wei was NOT gluten free as marked, and after that was extra careful so I don't think this is gluten (Also, there's 0 chance I'm pregnant, so that's not it either. Ha ha). I did go a little heavy on the dairy in the days before this, so I've cut out dairy, and I feel a little better, but I'm still pretty nauseous (and still gagging every now and then). It's gotten to the point that I'm extremely anxious to eat any food at all because everything makes me nauseous.

It's really disheartening to feel like crap again. If anyone out there has extreme nausea as a symptom, you understand how much life it sucks out of you. I've only been gluten free for 3 months now and I don't know if this is normal for new Celiacs, or what, but has anyone experienced a relapse like this?

[cyclinglady]

But it can be gluten.  You said that you were Glutened the week before you started to feel really bad.  Gluten triggers an autoimmune response that can last for days, weeks or months.  I was glutened last July.  Symptoms were severe.  Vomiting, ab pain, the works (was only anemic and no tummy issues when I was first diagnosed).  Six weeks later, my GI tested my antibodies and they were sky high.  Took a total of three months to get better and to get back dairy (became lactose intolerant again).    Six to regain weight lost!  

 

[ex pastaprincess]

I am new to this also but I recently found out that soy lecithin causes the same problems as gluten for me...  Check for it in the ingredients of everything you eat.  It is ubiquitous. 

[PTArt]

On ‎5‎/‎8‎/‎2016 at 2:36 PM, Babybop said:

Hi everyone. I was wondering if anyone experienced this or had any tips...

So I was feeling fine two weeks ago - my main symptom before diagnosis was extreme nausea - and then last week I woke up and I felt just like I did before going gluten free. I even had a gagging attack where I couldn't stop dry heaving. I don't throw up when this happens - if anything I just cough up mucus or acid (I have a hiatal hernia). I had been glutened the week before when my chicken from Pei Wei was NOT gluten free as marked, and after that was extra careful so I don't think this is gluten (Also, there's 0 chance I'm pregnant, so that's not it either. Ha ha). I did go a little heavy on the dairy in the days before this, so I've cut out dairy, and I feel a little better, but I'm still pretty nauseous (and still gagging every now and then). It's gotten to the point that I'm extremely anxious to eat any food at all because everything makes me nauseous.

It's really disheartening to feel like crap again. If anyone out there has extreme nausea as a symptom, you understand how much life it sucks out of you. I've only been gluten free for 3 months now and I don't know if this is normal for new Celiacs, or what, but has anyone experienced a relapse like this?

Yes, the nausea is a common symptom of mine.  But it wasn't caused by gluten, candida albicans was the culprit.  I had to start avoiding all sugar and starch, use a probiotic and an antifungal.  You never get rid of it, just keep it in check.  If you have been on any antibiotics there is a chance you may have some dybiosis in your gut.  Another culprit for me was the gall bladder, had a large stone which I had removed.  gall bladder problems are common in celiac disease.  Hope it helps.

[GFinDC]

Right, glutening symptoms can go on for  weeks or months.  The autoimmune reaction is not dependent on the food still being in your body.  Your immune system really doesn't want you to get sick from disease or bugs so it keeps attacking for a while after the threat is gone.  That's why it is so important to avoid even trace amounts of gluten in your diet at all times.  The after effects can last for months.

The suggestion to avoid sugar and starches is good.  Carbohydrates are bad when first going gluten-free.  I think it's best to avoid both sugar and carbohydrates for a few months at least.  Carbohydrates turn into sugar in the body and sugar feeds bacteria that can cause symptoms.  When your gut is already having digestive upset it's not good to make things worse.  Many people have to avoid dairy for a while also, as the gut damage takes time to heal.  The body can't properly digest milk sugar without the enzymes made in the gut.

 

[ex pastaprincess]

I have been trying very hard to avoid gluten and soy lecithin.  Had only 1/2 jar of fruit two days ago and yesterday had only 2 Johnsonville brats and 1/2 can of pineapple chunks.  This morning I was so nauseated.  I took a "Gluten Digest" and I finally feel better..  Just so tired of this.  Seeing my doctor today.  Need some answers..  Tired of feeling yucky,,,

[kareng]

 

I have been trying very hard to avoid gluten and soy lecithin.  Had only 1/2 jar of fruit two days ago and yesterday had only 2 Johnsonville brats and 1/2 can of pineapple chunks.  This morning I was so nauseated.  I took a "Gluten Digest" and I finally feel better..  Just so tired of this.  Seeing my doctor today.  Need some answers..  Tired of feeling yucky,,,

If that is all I ate in 2 days, I would feel pretty sick, too.  Why not try to eat foods in a more " natural state"?  Like fresh fruit and veggies, plain meats, rice, etc?  Cook them yourself so you know what is in them.

[cyclinglady]

Karen is right.  Your gut is damaged.  I will repeat....your gut is damaged.   Would you eat what you described after a bout of flu?  No.  Chances are you would eat some soup or jello.  Something you could keep down.  

You are sick.  So, take our advice and eat simple whole foods that you prepare yourself.  Those brats, I bet have lots of additives (nitrates, spices) and the pineapple, I can't eat at all even three years later!  It's an enzyme or whatever that gets me. 

Keep it simple until you feel well.  When you are newly diagnosed, this is not about just going gluten free, you have to heal first.  Read up on leaky gut, zonulin, that Dr. A. Fasano and his team discovered.  It hints at why leaky gut is real and why you have intolerances (hopefully temporary).   He is a leading celiac disease researcher, so this is legit.  Skip the YouTube Commercial!  

 

[ex pastaprincess]

 

If that is all I ate in 2 days, I would feel pretty sick, too.  Why not try to eat foods in a more " natural state"?  Like fresh fruit and veggies, plain meats, rice, etc?  Cook them yourself so you know what is in them.

Thank you for your reply.  I am so nauseated when I think of eating.  Food commercials make me feel sick.  I have been feeling anorexia since I started CPAP over 10 months ago.  My doctor said she did test me for celiac and it was negative.  She is referring me to a GI doc.  I have lost 45lbs since starting CPAP.  The abdominal pain and nausea really has me afraid of food.  I will try to eat what you suggested in very small amounts.  Thank you again.

[ex pastaprincess]

 

Karen is right.  Your gut is damaged.  I will repeat....your gut is damaged.   Would you eat what you described after a bout of flu?  No.  Chances are you would eat some soup or jello.  Something you could keep down.  

You are sick.  So, take our advice and eat simple whole foods that you prepare yourself.  Those brats, I bet have lots of additives (nitrates, spices) and the pineapple, I can't eat at all even three years later!  It's an enzyme or whatever that gets me. 

Keep it simple until you feel well.  When you are newly diagnosed, this is not about just going gluten free, you have to heal first.  Read up on leaky gut, zonulin, that Dr. A. Fasano and his team discovered.  It hints at why leaky gut is real and why you have intolerances (hopefully temporary).   He is a leading celiac disease researcher, so this is legit.  Skip the YouTube Commercial!  

 

 

Thank you.. The video was very informative...  really enjoyed it...  I will really try to eat better...  I just do not want to go thru the pain, etc again...  I never thought I would give up pasta, as an Italian grandmom.  

[cyclinglady]

 

Thank you for your reply.  I am so nauseated when I think of eating.  Food commercials make me feel sick.  I have been feeling anorexia since I started CPAP over 10 months ago.  My doctor said she did test me for celiac and it was negative.  She is referring me to a GI doc.  I have lost 45lbs since starting CPAP.  The abdominal pain and nausea really has me afraid of food.  I will try to eat what you suggested in very small amounts.  Thank you again.

Exactly what tests were negative for celiac disease?  Are you sure you had the complete panel?  I personally test negative on the standard screening TTG.  I do think you should see a GI ASAP!  Ask to have your gallbladder checked too (based on your symptoms).  

I hope you figure it out.