Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gigi's cupcakes - avoid their gluten free cupcakes!


Gardenmamarama

Recommended Posts

Gardenmamarama Newbie

I tested a Gigi's "gluten free" cupcake with a Gluten Tox home testing kit. The cupcake had over 20ppm gluten. Gigi's labels these cupcakes gluten free with a disclaimer that they are made on shared equipment, stored in the same case and are cross contaminated. At over 20ppm and with cross contamination they aren't permitted to call these gluten free at all. 

Unfortunately my daughter with celiac disease ate one of these cupcakes at school - given to her by a well-intentioned mother. I didn't know about it but part of the cupcake came home in my daughter's lunchbox which is how I got the opportunity to test it. I contacted corporate and the local store and will update if I hear a response. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Oh no!  A hard lesson to learn as a celiac kid -- do not accept food from anyone but Mom or Dad!  

Another unfortunate incident as a result of the gluten-free craze!  I have only bought gluten-free baked goods from 100% dedicated gluten-free bakeries.  There are a couple of bakeries in town that offer a gluten-free line and friends have told me about them.  No way.  The gluten-free and regular cupcakes sit side-by-side in the bakery case!  Baked in the same kitchen using the same pans!  Ugh!

i hope she feels better soon!  

kareng Grand Master

The one time I went to Gigi's, they told me they were not for people with Celiac. 

 

The gluten free labelling law doesn't really apply to bakeries and restaurants.  I believe the government statement, that went with the law,  urged places like this to use the same standards, but they have no jurisdiction over them.  I think its a shame to have stuff labelled gluten-free that isn't, but, in this case, its probably not illegal.

Gardenmamarama Newbie

It is a very hard situation for my daughter. Having to say "no thank you" to the kindness someone extended to her. Missing out on the cupcakes. Being the only kid who can't have one while everyone else is diving in.  It breaks my heart. She knows and understands but still - you wish it wasn't so. 

It's also a perfect example of how misleading labels in bakeries and restaurants pose a risk, even for those of us who know to avoid those foods. In our family, we know those items are a risk, but that is because we live this every day. Someone else wouldn't know that. It says it's gluten free so why wouldn't it be gluten free? They've never heard of ppm or cross contamination. 

My daughter has a health plan at school that says she's only allowed to eat food I provide from home. Things can and do fall through the cracks so I am working with the school to get a 504.  It will have the same terms but the school will take it more seriously. It will further isolate my daughter but her health takes priority. I wish teachers and parents would notify me before food is brought for the kids so I can send something for my child, but it doesn't always happen that way. Parents show up all the time with cupcakes and we can't take any risks. 

? sad day for us? But there is hope- hope that there will be treatments for celiac so cross contamination is not a concern. Hope for new labeling laws that extends across all foods sold to the public so there's no confusion about the definition of gluten free. Hope that schools take stronger measures to keep their kids safe. 

 

 

cyclinglady Grand Master

My daughter's best friend is allergic to peanuts and milk.  They have been in class together since the third grade and are in the same Girl Scout troop.    I know how hard it was and still is for her.  Her Mom sent wrapped cupcakes to school that her teacher kept in the teacher's freezer clearly marked. She also kept Skittles and Oreo Cookies (no milk) to hand out at party time.  Perhaps that would help?   

Personally, the parties at school have gotten out of hand.  Okay, I am old, but parents did not bring in goodies for every single little thing.  It is no wonder that our kids are not healthy.  Our state requires all food brought in to be labeled and packaged for food safety (no homemade or bakery items),  but the rules are not enforced.  

I am so sorry about your daughter.  Thank you for working so hard to keep her safe.  This is just as hard on you too!  

 

squirmingitch Veteran
4 hours ago, kareng said:

The one time I went to Gigi's, they told me they were not for people with Celiac. 

 

The gluten free labelling law doesn't really apply to bakeries and restaurants.  I believe the government statement, that went with the law,  urged places like this to use the same standards, but they have no jurisdiction over them.  I think its a shame to have stuff labelled gluten-free that isn't, but, in this case, its probably not illegal.

This situation with your daughter is a real shame! On the other hand, it was a lesson well learned for her. I also feel horrible for the mom who thought she was being so considerate as to make sure your daughter had a cupcake she could eat too. It'a a really tough situation all the way around.

I quoted Karen's post because she is exactly right about the way the labeling law works. Unfortunate but true. Everyone needs to learn this.

I subscribe to the Gluten Free Watchdog & just recently watched a video she posted about this exact type of situation. She explained the difference between something pre-packaged and something fresh baked in a stand alone bakery type situation.

StephanieL Enthusiast

There is no reason to isolate you kiddo in school with a 504. The idea of a 504 is actually to NOT exclude kiddos with non-learning issue issues.  I would really look at what you need to keep her safe and included and work on those things for the 504 plan. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.