Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

need imput

marycake123

Recommended Posts

marycake123 Newbie
marycake123
Posted

:( out that I need to be on a wheat free diet... for what I eat. I should have lost a ton of weight by now.. and haven't lost a lb... don't understand what is going on... I am on a new med.. with my problems it is colestiprol...??? does this pill have anything to do with this??? plz . help, I am getting really depressed over this..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Perhaps you should ask your doctor about the medicine?  Maybe he or she could refer you to a dietician for help with your weight loss.  Just eating wheat free or even gluten free doesn't mean you will lose weight.

Estes Contributor
Estes
Posted

Since going gluten free in March, I have gained 5 lbs. I am short so 5 lbs is bad.  I feel your pain.  My Dr. is happy as she feel that it indicates healing.  I do feel better, just bigger.  Sorry I can't offer help.  I am not on meds.  Just supliments.

Jmg Mentor
Jmg
Posted
8 hours ago, marycake123 said:

:( out that I need to be on a wheat free diet... for what I eat. I should have lost a ton of weight by now.. and haven't lost a lb... don't understand what is going on... I am on a new med.. with my problems it is colestiprol...??? does this pill have anything to do with this??? plz . help, I am getting really depressed over this..

Welcome marycake :)

There is lot's of support and advice available at this site but it would probably be helpful to others if you could provide a little more detail. Have you been diagnosed with celiac? Has the doctor advised you to go on a wheat free or gluten free diet?

Please share a little more of your symptoms and what the doctor has said and I'm sure you'll get some good advice. 

 

  • 1 month later...
adoreyou Newbie
adoreyou
Posted

Hello! 

How long have you been gluten free? A lot of celiac patients gain weight when starting gluten free diets, for various reasons. Surprisingly, many times their diet becomes more unhealthy calorie-wise than it ever was! I am living proof of this. :)

I have several "kick start" diets I recommend to all my gluten-free friends. If you tell me more about yourself and what kinds of foods you like, maybe I can help?

 

 

  • 5 months later...
mily9804 Newbie
mily9804
Posted
On 7/25/2016 at 5:55 PM, adoreyou said:

Hello! 

How long have you been gluten free? A lot of celiac patients gain weight when starting gluten free diets, for various reasons. Surprisingly, many times their diet becomes more unhealthy calorie-wise than it ever was! I am living proof of this. :)

I have several "kick start" diets I recommend to all my gluten-free friends. If you tell me more about yourself and what kinds of foods you like, maybe I can help?

 

 

Hi! I was diagnosed with celiac 1.5 years ago and have gained 30 lbs since. Prior to diagnosis, I ate whatever I wanted and in excess. Obviously my body was unable to absorb all the calories and nutrients. I did not have symptoms prior to diagnosis (silent celiac) and found out from a blood test. The weight gain is really bothering me. I VERY VERY RARELY eat gluten-free bread, pizza, desserts, etc. I usually stick to naturally gluten-free foods (fresh fruits veggies meat fish) as much as possible but the weight just keeps piling on. I also workout regularly. Do you have any advice or recommendations for a kick start diet? I'm very frustrated with this weight gain. 

Would love and appreciate any help!

Jmg Mentor
Jmg
Posted

Hi Mily and welcome :)

You've pre-empted my first suggestion, that gluten-free breads, cakes etc are often higher in calories than their gluten filled counterparts.

Maybe as you're healing your body is able to take more of the calories than you did before and you need to adjust either the amount or the kind of things you eat? Have you come across the GI diet? That shifts foods to those more slowly converted into sugar, works well for a lot of people.

ps you may get a better response by starting a new thread!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted
7 hours ago, mily9804 said:

Hi! I was diagnosed with celiac 1.5 years ago and have gained 30 lbs since. Prior to diagnosis, I ate whatever I wanted and in excess. Obviously my body was unable to absorb all the calories and nutrients. I did not have symptoms prior to diagnosis (silent celiac) and found out from a blood test. The weight gain is really bothering me. I VERY VERY RARELY eat gluten-free bread, pizza, desserts, etc. I usually stick to naturally gluten-free foods (fresh fruits veggies meat fish) as much as possible but the weight just keeps piling on. I also workout regularly. Do you have any advice or recommendations for a kick start diet? I'm very frustrated with this weight gain. 

Would love and appreciate any help!

Hi Mily,

Maybe your thyroid is out of whack?  Might be worth checking on.  That being said, I was really hungry for a while after going gluten-free.  It's actually a good thing for many of us to gain weight after going gluten-free.  Often times, people are undernourished with untreated celiac and need extra calories and nutrients to heal.  If you are experiencing increased hunger, it may pass after a while as your body heals and your guts recovers the ability to absorb nutrients properly.  Then your weight may normalize on it's own with decreased appetite.

Hopefully you have had your vitamin and mineral levels checked and are aware of any nutrient deficiencies.

cyclinglady Grand Master
cyclinglady
Posted
8 hours ago, mily9804 said:

Hi! I was diagnosed with celiac 1.5 years ago and have gained 30 lbs since. Prior to diagnosis, I ate whatever I wanted and in excess. Obviously my body was unable to absorb all the calories and nutrients. I did not have symptoms prior to diagnosis (silent celiac) and found out from a blood test. The weight gain is really bothering me. I VERY VERY RARELY eat gluten-free bread, pizza, desserts, etc. I usually stick to naturally gluten-free foods (fresh fruits veggies meat fish) as much as possible but the weight just keeps piling on. I also workout regularly. Do you have any advice or recommendations for a kick start diet? I'm very frustrated with this weight gain. 

Would love and appreciate any help!

A thyroid check is a good idea!  If it is not that, you should probably check you totally calorie intake.  It takes a lot to work out and burn off excess calories.   But....what is your current weight/BMI/body fat percentage?  Maybe, you are used to the "old you" that was malnourished.   Maybe you are not really overweight.  Just something to think about.....

I  can relate.  I am heavier now (still normal BMI), but I feel so much better!  I was anemic.  Hard to cycle and run when you can not catch your breath.  But I miss my tiny clothes which have been stored away.  ?

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    2. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    3. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
    4. jenniber
      - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    5. RMJ
      - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,123
    • Most Online (within 30 mins)
      7,748
    Donnay21
    Newest Member
    Donnay21
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.