Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Atrial Fibrilation (AFIB)/Increased Pulse Rate


BamaGal

Recommended Posts

BamaGal Newbie

Hi all, it has been a while since I have been on this board.  Been gluten-free for about 10 years now.  Was diagnosed this past Tuesday with AFIB because of rapidly increased pulse rate.  3 known triggers for that disease are: high blood pressure; high cholesterol; and smoker.  I have none of those.  My question is this:  Have any of you experienced/heard of a connection between celiac disease and AFIB?  If so, what are your experiences?  I consider myself young at 47 years old and am very active.  My doctor has put me on light duty until I can get in to see a cardiologist.  I am extremely nervous and would appreciate your stories/experiences.  TIA! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

Hi BamaGal

I hope someone else can help you here with more specific insight but I thought I'd just put this in. I have not been diagnosed with AFIB but when I had my second child ten years ago my heart rate was rapid and all over the place when I was in labour.  Then the run up to the time I was diagnosed with celiac disease, three years ago, I often got palpitations. My ferritin was down to 9; it is down again to this level because of perimenopause issues. The palpitations are back. It made me wonder if there was a link and I have found this.

Open Original Shared Link

I'm no expert but perhaps it might be something worth checking.

Forgive me as I don' have regular internet access just at the moment so I might not be able to come back to you if you have any more questions for me, but hopefully other people can chime in.

 

ironictruth Proficient

I have read about a connection with POTS (mild issues myself), roemheld syndrome and general nervous system issues and celiac. How fast did your heart rate get?  

How scary. I hope they are able to figure it out soon! 

BamaGal Newbie

Thank you both for your responses.  My heart rate got up to 136 per minute, and yes, it was very scary.  I had pneumonia at the time, so I had attributed it to that.  But after further research by the Doctor, it was AFIB.  The cardiologist has called and has moved my appointment up to tomorrow.  Plus ... I have found out that it can be caused by an untreated condition, such as thyroid disease.  We all know that thyroid disease is an autoimmune disease that is associated with celiac disease.  I am hoping that is what it could be. 

Again, thank you all for your words.  I'll keep you posted.  

ironictruth Proficient
38 minutes ago, BamaGal said:

Thank you both for your responses.  My heart rate got up to 136 per minute, and yes, it was very scary.  I had pneumonia at the time, so I had attributed it to that.  But after further research by the Doctor, it was AFIB.  The cardiologist has called and has moved my appointment up to tomorrow.  Plus ... I have found out that it can be caused by an untreated condition, such as thyroid disease.  We all know that thyroid disease is an autoimmune disease that is associated with celiac disease.  I am hoping that is what it could be. 

Again, thank you all for your words.  I'll keep you posted.  

Ask for a thyroid ultrasound. My levels were always normal but my thyroid ultrasound came back abnormal and my Endo told me that the antibodies were attacking my thyroid.

icelandgirl Proficient

Hi Bamagal,

That sounds super scary...((((hugs)))).

It could definitely be thyroid...hyperthyroidism or Graves will increase heart rate.

Please ask that they do a full thyroid panel on you to include: TSH, Free T3, Free T4, TPOAb and TgAb.

Good luck and let us know how it goes!

ironictruth Proficient
44 minutes ago, BamaGal said:

Btw, since my gluten challenge I have had palps and 2 episodes where my heart went nuts, totally out of sync. Very scary stuff. Lots of hugs!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.