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News: Celiac.com: Why Following a Gluten-Free Diet Is Difficult Long-Term


Scott Adams

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Scott Adams Grand Master

Turns out, going gluten-free is the hardest diet to stick with; only 12 percent of ... Bottom line: With the exception of those who have celiac disease, ...

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There is just so much wrong with this article, it's ANNOYING.  ;)  I think if you have Celiac Disease and are symptomatic, then it is not hard to stick to the diet long term. I don't know about you but having diarrhea and vomiting just isn't on my list of fun things to do, not to mention the severe anxiety and myriad of other symptoms that rear their ugly heads when I am even cc'd. I have been gluten-free for 11 1/2 years and, while it is not convenient at times, hard it is not. I realize if you are a person that likes to eat out often, that is going to have to change. You can still eat out safely but not every week or even every month.

The biggest hurdle I have seen from reading posts on this forum is that many people do not take the time to read the correct books and take the time to LEARN the diet correctly.  I see this in the other Celiac's in my family.  It's like Type 1 diabetes....they have classes when you are diagnosed that you have to go to and I really think that needs to happen when people are diagnosed with Celiac. It is as serious of a disease as diabetes is so the medical profession and insurance people need to get a clue.

As for weight loss, anyone can do it.  I know that is going to piss some people off but weight loss is hard and you have to stick to a plan and that is what makes people lose their mojo and quit.  With a good food plan and exercise, I have seen people lose more weight than I weigh myself so I know it can be done. You have to find the motivation to keep you on track, and that part might be harder than the actual diet and exercise.  There is no miracle diet out there and it is work but most things of value take hard work to get there.

The last crank from me..........why is it that if you don't eat a lot of carbs for fiber, they think you are doomed?  Has anyone ever heard of fruits and veggies for fiber?  That is where I get most of my fiber from and constipation is never a problem.  I do eat some whole grain carbs, of course, but way more fruits and veggies. Eat a salad and see what happens......:)

 

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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