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Pegleg84

Celiac AND IBS

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2 hours ago, plumbago said:

Is zonulin triggered by milk? I thought it was mainly gliadin.

They do not known exactly  what causes a person to have to much Zonulin (gluten is one suspect).  Celiacs seem to have too much of it.  But since some 1/3 of adults never heal from celiac disease (https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341), we may also never reduce the amounts of zonulin.   That could explain continued intolerances despite being gluten free.  They think it could be one of  the causes for many autoimmune disorders and food intolerances.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3384703/

this interview might be easier to understand:

https://chriskresser.com/pioneering-researcher-alessio-fasano-m-d-on-gluten-autoimmunity-leaky-gut/

p.s.  Recently they found that 20% of kids do not heal when they thought they did:

https://www.sciencedaily.com/releases/2016/11/161107143029.htm

but....for those worrying, you can feel better.  Working towards complete dietary adherance and stricter laws may be required.  I know that personally, I have never intentionally eaten gluten.  I have never known the source of my  glutenings.    So, I think we need stricter laws and more education.

 

 

Edited by cyclinglady
Oops! 1/3 of adults do not heal......

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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3 minutes ago, cyclinglady said:

They do not known exactly  what causes a person to have to much Zonulin (gluten is one suspect).  Celiacs seem to have too much of it.  But since some 2/3  of adults never heal from celiac disease, we may also never reduce the amounts of zonulin.   That could explain continued intolerances despite being gluten free.  They think it could be one of  the causes for many autoimmune disorders and food intolerances.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3384703/

this interview might be easier to understand:

https://chriskresser.com/pioneering-researcher-alessio-fasano-m-d-on-gluten-autoimmunity-leaky-gut/

 

 

Cyclinglady...is that true?  2/3 of adults never heal from celiac?  I hadn't heard that, but find it scary!


January 2014-Celiac

August 2014- Hashimoto's

"You never know how strong you are, until being strong is your only choice."

Bob Marley

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38 minutes ago, icelandgirl said:

Cyclinglady...is that true?  2/3 of adults never heal from celiac?  I hadn't heard that, but find it scary!

Sorry, that is 1/3.  But symptoms are reduced or eliminated even if there is still intestinal damage.  The sad news is that they used to think kids always healed but 20% do not per research released this past month.   See my modified post for supporting links.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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No lactose or cassein for me. I've gotten to the point that I can handle a teeny bit of cheese every so often, or at least am willing to have a cheese hangover.

I think it's definitely possible that damage from gluten (even getting glutened once or twice a year can indeed have long-lasting consequesnces) is causing IBS symptoms, but the jury's out on that. For now I'm treating it like I have both, and being a: super duper extra careful about possible gluten exposure, b: staying away from my know intolerances, dairy and soy, c: trying to identify other problem foods and things that might trigger IBS symptoms (foods, stress, etc).

I've actually been feeling pretty good in the gut department lately, so that's nice, though it doesn't help me solve the mystery.

Oh, any recommendations for good probiotics that won't break the bank?


~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.

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