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SLLRunner

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SLLRunner Enthusiast
SLLRunner
Posted

As some may recall from my topic "Test Results" started a few months back, I have been through the ringer with getting anyone at Kaiser to listen to me about my digestive issues. I changed insurance, had a long consult with a new GI who specializes in celiac and gluten sensitivity who listened as well as educated me, asked me to try the low FODMAP diet, and then made an appointment with a dietitian  (see her in 2 weeks), and said he has to look at my pathology reports from the endoscope. I will see him in 4 months unless things don't go well.

I have been doing this diet, which is gluten free, and I have never felt better in my life. Three weeks in and I'm not aching as much, my stomach is not hurting (except I made some gluten free cookies from a package and didn't realize they had inulin, which I am not supposed to have right now. Bad stomach ache! Lesson learned), and I am starting to get my energy back. 

I will not eat gluten again, so my focus with the dietitian will be eating gluten free forever. I will never know if I have celiac, but I do know that gluten is the main problem. I will know for sure when I start adding back in foods that are higher FODMAP, such as the asparagus I love so much and can't eat right now.

Family members we are staying with are understanding and accommodating because their daughter is gluten free.

Just wanted to share my success!  

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RMJ Mentor
RMJ
Posted

It is always nice to hear of a success, and someone feeling better!  Yeah!

squirmingitch Veteran
squirmingitch
Posted

Good for you!!! I know this has been such a long painful journey for you SSLRunner but you've reached the end now & I hope you have no more doubts and can live with not having an official dx. After all, your body did give you an official dx, it just isn't signed by a doctor right?

I am thrilled to hear you're feeling so much better!

Yaaaaaaaaaaaaaaaaaaaaaayy!

cyclinglady Grand Master
cyclinglady
Posted

I am so glad for you!  

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    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

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    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

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      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
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      By Charlie1946 · Posted

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    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
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