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SLLRunner

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SLLRunner Enthusiast
SLLRunner
Posted

As some may recall from my topic "Test Results" started a few months back, I have been through the ringer with getting anyone at Kaiser to listen to me about my digestive issues. I changed insurance, had a long consult with a new GI who specializes in celiac and gluten sensitivity who listened as well as educated me, asked me to try the low FODMAP diet, and then made an appointment with a dietitian  (see her in 2 weeks), and said he has to look at my pathology reports from the endoscope. I will see him in 4 months unless things don't go well.

I have been doing this diet, which is gluten free, and I have never felt better in my life. Three weeks in and I'm not aching as much, my stomach is not hurting (except I made some gluten free cookies from a package and didn't realize they had inulin, which I am not supposed to have right now. Bad stomach ache! Lesson learned), and I am starting to get my energy back. 

I will not eat gluten again, so my focus with the dietitian will be eating gluten free forever. I will never know if I have celiac, but I do know that gluten is the main problem. I will know for sure when I start adding back in foods that are higher FODMAP, such as the asparagus I love so much and can't eat right now.

Family members we are staying with are understanding and accommodating because their daughter is gluten free.

Just wanted to share my success!  

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RMJ Mentor
RMJ
Posted

It is always nice to hear of a success, and someone feeling better!  Yeah!

squirmingitch Veteran
squirmingitch
Posted

Good for you!!! I know this has been such a long painful journey for you SSLRunner but you've reached the end now & I hope you have no more doubts and can live with not having an official dx. After all, your body did give you an official dx, it just isn't signed by a doctor right?

I am thrilled to hear you're feeling so much better!

Yaaaaaaaaaaaaaaaaaaaaaayy!

cyclinglady Grand Master
cyclinglady
Posted

I am so glad for you!  

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      Celiac disease symptoms

      By Churro · Posted

      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
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      Celiac disease symptoms

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      Thanks for your insight. I've been eating wheat bread at least 5 times a week for several months. I've been eating chicken or eggs 5 days a week for at least a year. 
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