Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Kashi Gluten Free Waffles safe?


Forman337

Recommended Posts

Forman337 Apprentice

I have a box of Kashi Gluten free waffles and an unsure if they are cross-contamination safe. The box says they're gluten free but it doesn't have the gluten-free verified symbol and I'm worried about cross contamination issues. The ingredients even list whole oat flour, and whole grain sorghun flour. Anyone else tried Kashi Gluten Free waffles? Any bad reactions? My gluten sensitivity is very high so I have to be super careful. Any info would be a great help! Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dharwood Rookie

I am still somewhat new to celiac disease (dx'd in May). My symptoms included stomach issues but since going gluten-free it seems like my muscles, joints, brain fog and depression have been plaguing me. Two weeks ago I probably had the best 5 days in a row since May. Then last week it all came back bad. After reading your post, I checked the freezer and low and behold, my wife had been putting them in my lunch. I have no clue if that's why I feel this way but I darn sure threw them out. I will be following this post to see if you find anything out. Thanks. 

kareng Grand Master

I didn't know they made gluten-free waffles.  Why not ask the company what they do to make sure they are gluten-free - testing?    Segregated manufacturing, etc.  when you find out, please come back and post the answers.

 

there seems to be some odd labeling law, or maybe it's some companies interpretation - but they aren't supposed to add extra words to ingredient lists.  So they aren't supposed to say " gluten free oats" .  They are allowed to call the product gluten-free if the oats are.  I think the law is meant to prevent hard to read ingredients lists like " delicious whole grain corn, nautral sea salt, ..."  

  • 3 months later...
Fbmb Rising Star
On 10/2/2016 at 11:38 AM, Forman337 said:

I have a box of Kashi Gluten free waffles and an unsure if they are cross-contamination safe. The box says they're gluten free but it doesn't have the gluten-free verified symbol and I'm worried about cross contamination issues. The ingredients even list whole oat flour, and whole grain sorghun flour. Anyone else tried Kashi Gluten Free waffles? Any bad reactions? My gluten sensitivity is very high so I have to be super careful. Any info would be a great help! Thanks!

My understanding is that they couldn't say that they are gluten free if they aren't. Is that not correct? 

cyclinglady Grand Master
38 minutes ago, Fbmb said:

My understanding is that they couldn't say that they are gluten free if they aren't. Is that not correct? 

This might help and it is easier to understand than the actual FDA ruling:

https://www.verywell.com/fda-rules-for-gluten-free-labeling-562768

The bottom line is that if the label says it is gluten free, it should have less than 20 parts per million.  But some people react to ANY gluten and 20 parts may be too much.  This is something you have to figure out for yourself (yeah, celiac disease sucks!)  This can be much easier to discover if you have DH (celiac rash).  

For  example, I personally jumped on the gluten-free band wagon after my diagnosis.  It was easy since my hubby had been gluten-free for 12 years prior to my diagnosis.  My learning curve was short as I had been shopping and cooking gluten-free for him.  Problem was my gut was damaged and his had long healed.  I blamed glutenings  on things like gluten-free bread, but it really was an intolerance to xanthan gum (it still bothers me).  Problem solved when I baked for myself.  time went on and  I healed.  Anemia resolved, but then I was diagnosed with diabetes.  I eliminated pretty much all grains and sugary junk.    Wow, I felt so good!  This past holiday season, I indulged in gluten-free baked goods.  Hum.....found out that it really did not make me feel good.  Not exactly a glutening, but off.  (could be elevated blood sugar).  

So, some folks can eat gluten-free foods that are processed and some can not.  The spectrum is wide.  You just need to find out where you fall on that line.  

 

 

 

 

 

 

Fbmb Rising Star
1 hour ago, cyclinglady said:

This might help and it is easier to understand than the actual FDA ruling:

https://www.verywell.com/fda-rules-for-gluten-free-labeling-562768

The bottom line is that if the label says it is gluten free, it should have less than 20 parts per million.  But some people react to ANY gluten and 20 parts may be too much.  This is something you have to figure out for yourself (yeah, celiac disease sucks!)  This can be much easier to discover if you have DH (celiac rash).  

For  example, I personally jumped on the gluten-free band wagon after my diagnosis.  It was easy since my hubby had been gluten-free for 12 years prior to my diagnosis.  My learning curve was short as I had been shopping and cooking gluten-free for him.  Problem was my gut was damaged and his had long healed.  I blamed glutenings  on things like gluten-free bread, but it really was an intolerance to xanthan gum (it still bothers me).  Problem solved when I baked for myself.  time went on and  I healed.  Anemia resolved, but then I was diagnosed with diabetes.  I eliminated pretty much all grains and sugary junk.    Wow, I felt so good!  This past holiday season, I indulged in gluten-free baked goods.  Hum.....found out that it really did not make me feel good.  Not exactly a glutening, but off.  (could be elevated blood sugar).  

So, some folks can eat gluten-free foods that are processed and some can not.  The spectrum is wide.  You just need to find out where you fall on that line.  

 

 

 

 

 

 

So in most cases with gluten-free foods it isn't the traces of gluten that makes you sick, but other ingredients? It's just good to know because any time I feel off or have an issue with something I assume it's gluten and that it's setting me back. But knowing it could be an additive at least lets me know my immune system isn't destroying my intestines after eating something. Of course I always avoid things once I know they don't set well.

cyclinglady Grand Master

It CAN be related to traces of gluten.  It CAN be other ingredients.  It is why we tend to stress Whole Foods when you are first starting out until you see signs of healing (or your antibodies are on a downward trend).  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran
12 hours ago, cyclinglady said:

It CAN be related to traces of gluten.  It CAN be other ingredients.  It is why we tend to stress Whole Foods when you are first starting out until you see signs of healing (or your antibodies are on a downward trend).  

Exactly!

One has to find this out for oneself. Like cyclinglady says.... it could be either.....or even both. I found out I am extremely sensitive to ANY trace gluten. No certified gluten free foods for me even those that don't contain any other "additives". I am presently on the Fasano gluten contamination elimination diet which is very limiting. Only FRESH fruits & veggies, FRESH meats, no cured meats, unflavored milk & yogurt, aged unflavored cheeses, nuts IN THE SHELL, dried beans b/c you can sort & wash them. No canned or frozen fruits & veggies. I am doing better on this diet than I ever was before! In other words, it eliminates any chance of even getting .05 ppm of gluten.

  • 11 months later...
Huh Newbie

Just called Kashi and they verified internal testing of all Kashi products labeled gluten free to be < 20 ppm, they buy gluten-free oats, use good manufacturing practices with separate lines, etc. Not tested by third party which is why you don’t see the “certified” gluten-free label.  Hope that helps, some more sensitive people may still react?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.