Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

heart issues get weirder


ironictruth

Recommended Posts

ironictruth Proficient

Back in March I started getting some skipped beats, a bit unnerving but I figured I was just developing PVCs. In July I actually had some kind of arrhythmia at the gym. I had 2 stress tests, monitors and an ultrasound of the heart and all looks good except for some PVCs. They never caught the arrhythmia.

Fast forward 3 months from my cardiologist making me cry, I am finding that my heart acts very weird after eating. My stomach pain has increased since late August and my heart is much weirder then it was in the previous months. It seems to speed up and skip a lot and go out of rhythm after some meals. I can feel it stop in the pulse in my neck, then speed up, then go back to normal and it will do it again.  Usually begins 20-60 minutes after a meal or a coffee or tea (I am on low acid coffee).

Has anyone experienced this?  I know I had some inflammation in the intestine in late August which I thought would be better by now and I am wondering if perhaps when the food hits the inflammation it does something wacky to the heart? I am just waiting for it to go out of synch and not got back! And why does it NOT do it for my doctors? Argh.

My upper stomach is tender and I have not been able to lie on my right side for sometime due to pressure in the upper right area.

But this heart stuff is freaking me out. Just when I think I was bothered by symptoms before, they get worse!

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi IronicT,

I haven't had those symptoms exactly.  I've had faster heart rate at times, and feeling my heart beat against the inside of my chest.  I've even had my heart go all a flutter when seeing a pretty girl or a shiny new gun! :)

If your symptoms don't cooperate when you are at the doctor, maybe they can equip you with a monitor to record heart events.

Not being able to lay on your right side seems like it should point the doctors at something pretty quick IMHO.  At least it should give them a general area to examine.

I hope you get some  answers soon.

 

ironictruth Proficient
19 hours ago, GFinDC said:

Hi IronicT,

I haven't had those symptoms exactly.  I've had faster heart rate at times, and feeling my heart beat against the inside of my chest.  I've even had my heart go all a flutter when seeing a pretty girl or a shiny new gun! :)

If your symptoms don't cooperate when you are at the doctor, maybe they can equip you with a monitor to record heart events.

Not being able to lay on your right side seems like it should point the doctors at something pretty quick IMHO.  At least it should give them a general area to examine.

I hope you get some  answers soon.

 

Thank you. We did a monitor months ago, just some pvcs. But things are nuch worse. 

obesiac Newbie

Yes ! before self diagnosis I had full on magnesium defieceny symptoms. Palpitations, insomia, Increased heart rate, I couldnt eat. Found out about deficiency online. Took some magnesium and my heartrate went from 114 to 70 within a half an hour. 

Of course something like this is serious and needs to be looked into. Being celiac is complicated . Each case is different. Someone who has gone undiagnosed for a long time has to really take care of themselves and be vigilant about their nutrition. 

I have been battling the particular palpitation issues since self diagnosis, 15 years. When the palpitation episodes increased I took magnesium regularly.  And other supplements. I have made progress as now I hardly get them ( palpitations).

ironictruth Proficient

Thank you. I do take magnesium

frieze Community Regular

ironic, what form of magnesium do you take, and how much?  are you on a PPI?  or other acid inhibitor?

ironictruth Proficient

I was on a ppi for a couple of months in the fall. I did not want to take it but figured i would give it a shot. I was told to discontinue it and a GERD PH test revealed normal acid. So I have been off of it for about 2 months. Some zantac or pepcid following d/c of ppi and now totally off everything. 

400 mg mag oxide at bedtime since early August. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Caroles Newbie

The funny thing with me, 2008 I had the fundoplication  done, where they tie your stomach closer to your esphagus. Last year I had an endoscopy done and I was definite celiac. Sometimes I wonder if it from the acid reflux operation. I do not take any medications for acid reflux because they cause more harm than good. What I have been doing is using a product called "intestinew" in my local vitamin store. This is a powder that I mix with EmergencC, it helps...I also drink green tea with a few drops of frankincense. I feel wonderful! Please read up on the oil of frankincense. I also take a probiotic called THRIVE and I have to Magnesium (glycincate) 120 mg. I take the Magnesium 4 times a day all day. Make sure you take the Thrive at night because it gets all the old stuff out of there.

 

ironictruth Proficient
12 minutes ago, Caroles said:

The funny thing with me, 2008 I had the fundoplication  done, where they tie your stomach closer to your esphagus. Last year I had an endoscopy done and I was definite celiac. Sometimes I wonder if it from the acid reflux operation. I do not take any medications for acid reflux because they cause more harm than good. What I have been doing is using a product called "intestinew" in my local vitamin store. This is a powder that I mix with EmergencC, it helps...I also drink green tea with a few drops of frankincense. I feel wonderful! Please read up on the oil of frankincense. I also take a probiotic called THRIVE and I have to Magnesium (glycincate) 120 mg. I take the Magnesium 4 times a day all day. Make sure you take the Thrive at night because it gets all the old stuff out of there.

 

Thank you!

  • 3 weeks later...
aliciahere Apprentice

Wouldn't be a bad idea to get full bloodwork done. Cbcd, vitamins, thyroid, etc. Thyroid in particular, it can do funny things with your heart if it's low or high. 

ironictruth Proficient
10 hours ago, aliciahere said:

Wouldn't be a bad idea to get full bloodwork done. Cbcd, vitamins, thyroid, etc. Thyroid in particular, it can do funny things with your heart if it's low or high. 

Thank you. My thyroid was normal in August except a nodule and enlarged lymphnode. But I know it needs to be run again. Am waiting on an appointment with an endo. 

Estes Contributor

What problems were caused by the PPI?  

I have heart pain that I thought might be anemia since I have tiny red blood cells (caused by celiac and my malabsorption).  I end up very fatigued every year late January-March.  I sometimes wonder if it could be even be related to vitamin D since I live in a cold climate.  Always trying to heal myself.  I don't feel comfortable taking so many vitamins, I feel like I might OD on something.

I am strict gluten free and have been since last March when I was diagnosed.  I thought I would have it all figured out by now with acid, anemia, vitamin levels.  I am currently feeling fatigue again and wondering if it might be the PPI.  Any words of wisdom on that would be appreciated.

I am on the PPI also because I have eosinophilia esophagitis.  Likely caused by 40 years of eating gluten.  I would like to heal all that and go off the PPI if possible.

cyclinglady Grand Master
21 minutes ago, Estes said:

What problems were caused by the PPI?  

I have heart pain that I thought might be anemia since I have tiny red blood cells (caused by celiac and my malabsorption).  I end up very fatigued every year late January-March.  I sometimes wonder if it could be even be related to vitamin D since I live in a cold climate.  Always trying to heal myself.  I don't feel comfortable taking so many vitamins, I feel like I might OD on something.

I am strict gluten free and have been since last March when I was diagnosed.  I thought I would have it all figured out by now with acid, anemia, vitamin levels.  I am currently feeling fatigue again and wondering if it might be the PPI.  Any words of wisdom on that would be appreciated.

I am on the PPI also because I have eosinophilia esophagitis.  Likely caused by 40 years of eating gluten.  I would like to heal all that and go off the PPI if possible.

Tiny red blood cells may be related to Thalassemia (a genetic anemia which can produce minor symptoms in many cases).  I have Thals and had iron-deficiency anemia.  Was never an issue until I could not keep up with my iron stores (due to celiac disease and menopause)  and my normal hemoglobin levels (which are always slightly below range) dropped very low.  But bodies often adapt.  I just wasn't going to get an Olympic medal!  BTW, Iron will not help with Thalassemia.  Your doctor should run a vitamin panel on you.  Standard  follow-up care for celiacs (includes Celiac antibody testing to help see if you are dietary complaint too).  

I am not suggesting you have Thals.  Just something to consider.  

Open Original Shared Link

frieze Community Regular

mag oxide is the  cheapest and least utile of the magnesium preparations, try mag 64/ mag delay.  or mag citrate caps, or glycinate as some one else mentioned.

kenlove Rising Star

Glycinate always worked best for me

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,018
    • Most Online (within 30 mins)
      7,748

    Laney71
    Newest Member
    Laney71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.