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existnt

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existnt Newbie

Hi guys! I'm new to the site - apologies if I'm posting in the wrong place or something

Female, 18, diagnosed about 4 years ago now. I was a completely silent celiac, and while I had problems with other foods, pasta and gluteny foods were pretty much the only thing I trusted to not cause me any symptoms. Obviously I was very wrong, and I've been keeping gluten free ever since! 

However, a couple months ago I started having some pretty odd bowel movements. (Here comes the tmi stuff, I'm sorry in advance..)

At first it was constipation, and when I did poop it was small, loose, floating, greasy, and yellow. I was also having some upper abdominal pain so I thought it was a liver problem and got checked out - doc said my liver felt inflammed but an ultrasound showed nothing was wrong. 

Then after a while ito became more solid and less greasy again, but the switching from constipation to loose floating and non-floating stools remained. I still experiended a lot of yellowish mucous however.

Now, the last few weeks, they'very turned much much paler. Sort of a light beige-grey. The yellow mucous is still present. I've been having intermittent abdominal pain as well. Both near my liver on my upper right abdomen wrapping around a bit to my back, and a little further down on the left side just above my hip bone. I've also had quite a loss of appetite, and I have nausea that comes and goes. 

Today, it's sort of turned into a pale yellow/grey mush... there is still yellow mucous present. My stomach feels rather sick, but it doesn't feel like a flu or anything like that. I'm not going to the bathroom all that frequently, but again it's either a constipated feeling or an urgent need to go, back and forth (though the stool is always soft).

 

Sorry about the grossness of all this.

Basically, I was wondering if it's possible that I haven't been careful enough recently? Even though I never had any symptoms from gluten before, is it possible that I'm being contaminated somehow and it's causingredients all theset symptoms? I've also been incrediblyou fatigued and weak for the last few weeks but I'm not ill in any other way. And i've been drinking plenty of water.

I should also mention that my other food problems don't cause this stuff either. The other intolerances cause severe pain that starts in between my lower ribs and then just kind of spreads throughout my whole body, makes me very very weak and lethargic, makes breathing pretty difficult due to pain, causes my whole abdomen to swell, and lasts between 1 hour and 8 hours. (Triggered by any green vegetables, leafy or not, as well as bananas, pineapples, tofu, lentils, and avocado. I'm also a pescatarian)

Anyway... thank you for taking the time to read through this, and any advice would be very much appreciated. I'm getting pretty concerned, and, though I haven't checked, I seem to be losing quite a bit of weight.  It's just so terrible to feel so weak and sick all the time, every day... 

I'm glad to be part of the site now, though! Thank you!


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GFinDC Veteran

Hi existnt,

Welcome to the forum! :)

Here is a link to a stool color list.

Open Original Shared Link

You could be having a gluten issue.  Or it could be something else,  Have you had your ttg IgA antibodies tested?  That might tell you if your are getting gluten in your diet somehow.

The other thing that comes to mind is possibly Crohn's Disease.

Anyway, can you think of anything that changed in your diet?  Like new foods, medicines, vitamins etc?

knitty kitty Grand Master

Sounds like it may be a gall bladder problem.  An inflamed gall bladder may produce too much or not enough bile, which could account for the variety of stools described.  Did the doctor examine your gall bladder and its ducts when your liver was checked?  

I hope you feel better.

JamieRmusic Explorer

I recommend you read this book. Open Original Shared Link by Elaine Gottschall. In short, it all boils down to malabsorption of starches.

It will shed light on the whole mucous production issue, and how to solve it. It 99% of the time, for celiac patients, is the cause of excess bacteria that have formed in the intestines. Because the foods couldn't get absorbed, either by flattened or broken microvilli, or already covered walls from mucous. The bacteria then end up eating all that delicious undigested food. They then create this mucous layer, which covers the intestine walls, making absorption of disaccharides and polysaccharides impossible to digest. Further more they start to formate, creating more which in return means more mucous. The stomach will then begin to fill with excess water, and the bacteria in the intestines then re-evacuate to the colon. The foods will then stay there and the bacteria will have a feast. It's not as bad as it sounds like, but without knowing, there is a hard time figuring out the root cause of the problem. The good thing is, these bacteria LIVE of starches, which means, they can be killed off by eating the correct foods, and once more, create harmonic balance between the good and bad bacteria. At later point, you can re-introduce starches again and live a normal happy life :)

I've had countless hospital visits, tubes, probes, stool or blood tests.... you name it, I've probably done it. They found nothing. So, I was left to my own devices, and it took a while to really find the issue. Hopefully I can now help other people not have to spend as much time trying to figure it out. It is a common thing for not only Celiacs, but also patients with Ulcerative Colitis, Crohn's Disease and many more. Actually, intestinal diseases has in fact proven to be the root cause of schizophrenia and many other diseases.

The book is 58 pages long, the rest are SCD recipes. You can also find other great SCD recipes on the net, or cook books on amazon.  

Take it from someone who has lived with that issue for over 5 years straight, who had a bmi of 13-14 at 5.9", just don't ignore it. It will only get worse. It can take everything from a few weeks to a year or two, but the SCD diet is almost  guaranteed to help you. If you got any other questions don't be afraid to reach out. And nothing is too gross anymore, haha. You get used to that s$#& too! (pun intended).

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