Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Best apps?

Mellie901

By Mellie901
in Coping with Celiac Disease

Recommended Posts

Mellie901 Newbie
Mellie901
Posted

Hi all! I'm new here. My husband was just diagnosed as having celiac disease so we're learning about how to best change our diets and lifestyles now. We're meeting with a nutrionist on 2/14 but until then we're trying to figure out what is ok and what's not. I've found a lot on here that's already been so helpful....and just googling different sites. Is there a really good app you guys recommend for finding foods/restaurants/food at restaurants that are gluten free? We currently eat out a lot as we're pretty busy so I'm looking for good places and options to still be able to do. I know cross contamination is an issue of course but....seeing what may work. Also what about an app or site for good recipes? Especially for picky eaters. :-/ Also my husband is diabetic (and had thyroid cancer) so we have to take that into consideration as well. Thanks in advance for any help! :)

One more immediate question I have....is soy supposed to be avoided as well? I thought I might have read that somewhere but I'm not to sure about it. ? My friend that has celiac mentioned something about soy....but the info we've gotten from the Dr so far doesn't say to avoid soy...it actually lists soy as being ok. Just confused on that one.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted

I'm away from my phone but will reply later on apps. 

For recipes you should be fine on paleo sites, that diet is gluten free and there's loads of recipes available online.

The BBC site is good:

Open Original Shared Link

Select 'special' on right side of page and 'gluten free' to filter the results.

Epicurious also has loads of recipes:

Open Original Shared Link

 

25 minutes ago, Mellie901 said:

One more immediate question I have....is soy supposed to be avoided as well? I thought I might have read that somewhere but I'm not to sure about it. ? My friend that has celiac mentioned something about soy....but the info we've gotten from the Dr so far doesn't say to avoid soy...it actually lists soy as being ok. Just confused on that one.

Soy sauce is mostly thickened with wheat and should be avoided. The exception is tamari soy sauce:

Open Original Shared Link

Soy itself doesn't contain gluten so as long as your husband doesn't have a problem with it there shouldn't be a problem. It's quite common for celiacs to develop intolerances to other foods.

You may want to take a look at this thread, lots of good info there :)

 

 

Mellie901 Newbie
Mellie901
Posted
  • Author

oooooh ok. That makes sense...it was probably soy sauce she was talking about then. I did browse the newbie thread. Some good links to check out. Thanks! :) I didn't see any mention of apps there though? Thanks for the tip on soy sauce!

Jmg Mentor
Jmg
Posted

Just looked, on my phone I have coeliac map (which by spelling is UK based) which lists GF food places, am sure there'll be a US equivalent if you're across the pond :) I also have Find me Gluten free which I've not really used, think I just installed it because it was free!

Coeliac UK do an app which duplicates their safe food guide, recommended if you're a Brit just starting out. 

I edited my post above with some food links whilst you were replying btw ;)

Be careful with soy sauce, it's in so many foods and most sushi places won't use the safe stuff for instance. 

 

tessa25 Rising Star
tessa25
Posted

findmeglutenfree is a great app.

Mellie901 Newbie
Mellie901
Posted
  • Author

Awesome thanks guys!! Yeah..I'm across the pond in usa. :-) 

cyclinglady Grand Master
cyclinglady
Posted

We use "Find me GF", but......we carefully review the comments.  We only trust reviews that mention celiac disease.  Otherwise, the comment could be just a GF dieter who is trying to lose weight and does not consider cross contamination.  Even then, we talk to both the manager and the head chef.  We do not place much faith in wait staff (no offense, I was one all through college).  Honestly, we do not eat out often.  However, we dine with friends.  We just eat before we go and order drinks.  It is really all about relationships and not the food.  

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.