Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intollerance seems to get worse after time abstaining


Alex|xelA

Recommended Posts

Alex|xelA Newbie

Hi there, I'm new here but thought this would be good place to ask for advice. I gave up gluten a few months ago after an interesting interview with Jordan B Peterson. Linked below.

i was also amazed to have had similar results I have had long term depression for as long as I can remember and after giving up gluten it just slowly went away, which of course was amazing but also quite disorientating being such a big change. I also noticed that my temper completely disappeared too which was interesting, I would still get annoyed but it just didn't escalate at all now and instead pleated. I also had bad acne that persisted into my late 20's which for the first time in my life is gone, people with good skin cant appreciate just how nice it was to go a whole week without getting new spots.

Anyway, the question I wanted to ask isnt really related to this stuff, but I have noticed that if I reintroduce gluten now (breadcrumbs are a compelling vice for me) then I will have inconsistent issues in the bathroom, also my stomach would also make gurgling noises etc. What I don't understand is that I have never had any of these kinds of issues before, my physical health is and always has been flawless, no health conditions in any of my extended family, bar mental health perhaps and my diet is very healthy and balanced. What I don't understand is why I seem to be more sensitive to gluten than I was originally?

Thanks if you actually bothered to really all of that.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
On 4/5/2017 at 4:38 PM, Alex|xelA said:

Anyway, the question I wanted to ask isnt really related to this stuff, but I have noticed that if I reintroduce gluten now (breadcrumbs are a compelling vice for me) then I will have inconsistent issues in the bathroom, also my stomach would also make gurgling noises etc. What I don't understand is that I have never had any of these kinds of issues before, my physical health is and always has been flawless, no health conditions in any of my extended family, bar mental health perhaps and my diet is very healthy and balanced. What I don't understand is why I seem to be more sensitive to gluten than I was originally?

Hi Alex and welcome to the forum :)

Hmm where to start. Like me and many others here you've removed gluten from your diet on a hunch, noticed a big impact on your health, mental in this case, and now you're wondering why? 

There are a couple of potential answers. You may have celiac, yes even with 'no symptoms'. In fact the depression could be a symptom, the skin issues etc. There may be some more as well you havent noticed or connected yet.

You may test negative for celiac but STILL react to gluten. That would make you non celiac gluten sensitive.

Take a look at the post in this thread for some more info:

You have some decisions to make. But your bodies reaction to reintroducing gluten is another clue... Your body may have been under attack from gluten ingestion for a long time. With a break, you started to heal, but reintroducing it is provoking a much bigger response. This is very normal and like I say highly suggestive.

Do read that link, check out the linked articles and please post back if you have any questions :)

Good luck!

 

Ennis-TX Grand Master

This is quite common upon reintroduction if you react to it. Where you tested before hand? Are you willing to do a gluten challenge and get tested for celiac and wheat allergies? If so you just need to eat small amounts of gluten for 12 weeks for the blood testing small as in 1 cracker or a half slice of bread a day, before bed to sleep off the symptoms is the preferred method for most. And 2 weeks of this is required for the endoscope where they will check for intestinal damage. Many people with celiac do not even realize they have it as they have just minor symptoms or considered them just a part of life since they have been with it so long.    You could also test negative and just have NCGS in which case the same diet is suggested of going gluten free.

Now you have not mentioned anything else or trouble finding foods but I will go ahead and link or newbie 101 and the alternative food and product list I show to people on the diet, 

Seems your in good health otherwise but these issues that cropped up when you re introduced gluten tend to be proof you have some kind of issues with it. Most of us have much worse responses after going gluten-free and you notice the symptoms you used not to when you bring it back in to your diet. Now that these have been brought to your attention you have some of the proof that you react in a way to it.

Washingtonmama Contributor

Alex, are you serious about your depression slowly going away? If its not too personal, have you stop taking medications now? I've suffered from depression all of my life, even as a baby, according to several of my aunts and my mom. My depression is "treatment resistant", meaning medications don't work well, occasionally not at all. I added Deplin a year ago and for the first time in my life I am consistently off of the couch! Deplin replaces methyl folate, a key vitamin many with chronic depression need but are unable to metabolise. It is already metabolised so your body can get straight to using it. It really helps your depression medications to work better. There is a gene responsible for making your body unable to metabolise methyl folate. Now I'm wondering, could it be the Celiacs that keeps our bodies from being able to use methyl folate in many people with chronic depression? Thinking out loud here. I am so very happy for you that your depression has gone away!!! What a relief it must be for you, maybe a weird feeling for you after all of this time? I know you said you now have some different symptoms, I've heard that happens a lot when people cut out gluten. I so hope my depression goes away like your did! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,408
    • Most Online (within 30 mins)
      7,748

    Angela VT
    Newest Member
    Angela VT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.