Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acid Reflux?!


BarryC

Recommended Posts

BarryC Collaborator

I was very surprised to discover that acid reflux could be a symptom of celiac. I have it and am taking Omneprazole. Just another digestive problem that I have and am actually happily surprised to find out it might be related to celiac. Hoping continuong with my gluten free diet will help. Going to go off the Omneprazole, and give some of the suggestions Poster Boy gave me a try. Anyone else also have acid reflux and did a gluten free diet help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CraftyChristine84 Newbie

I was first diagnosed with Gerd/acid reflux and was put on Pantoprazole for about 3 months, but the meds never really helped. Eventually I was diagnosed (by blood test) with Celiacs. After my endoscope I was on a gluten free diet for about a week and my GI dr told me I can completely stop the acid reflux meds.  Had no problems, minus just the normal recovery, but any acid reflux was very minor and improved with time. I will occasionally take a couple tums and that will help now.

I know exactly what you mean about feeling happy to find the acid reflux is related to celiacs. I wasn't getting better with the acid reflux diet (where I ate a lot of bread) and the meds. I was so happy to find out I can have coffee and the occasional pop AND start to feel better!!!  Hope this helps!

trents Grand Master

I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic stuff ordered that is supposed to help with heartburn. We'll see.

plumbago Experienced
5 hours ago, trents said:

I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic stuff ordered that is supposed to help with heartburn. We'll see.

Hiatal hernia is definitely a risk factor for GERD, and the gastro who did my scopes said that more people than not after a certain age have hiatal hernias.

You're right that an "incompetent" lower esophageal sphincter is a primary etiological factor. And the factors affecting LES pressure include alcohol, certain drugs like anticholinergics, fatty foods, chocolate, nicotine, peppermint, tea, coffee. Other risk factors are obesity, as intraabdominal pressure is increased, cigarette and cigar smoking. So, obviously, avoid things that will decrease the pressure of the lower esophageal sphincter, including the above but also eat small frequent meals to avoid gastric distention, do not lie down 2-3 hours after eating, and don’t eat w/in 3 hours bedtime. People with GERD can sleep with the head of the bed elevated on 4-8” blocks to foster esophageal emptying.

This is from Medscape: "In the upright position, the major stimulus for transient LES relaxation is gastric distention after a meal. This accounts for the increased amount of physiologic reflux after eating, especially following the large evening meal. Thus, a reduction of meal size alone has the potential to be of benefit in the management of GERD. If this meal can be low in fat and high in protein, then this will further augment LES pressure and decrease the amount of acid reflux. Eating a large meal immediately before retiring should be discouraged, as this increases gastric volume, promoting gastroesophageal reflux with associated poor nocturnal acid clearance. I suggest to my patients that they can have a healthy evening meal, but eat or drink nothing but water for 3-4 hours before going to bed."

Plumbago

 

 

 

trents Grand Master

Plumbago has good advice. Several years ago I purchased an articulating bed for back problems and the reflux seems to have benefited from it as well. 

I have difficulty with not eating for 3 hours before bed. I typically get terribly hungry right before bed and can't sleep if I get in the sack that way.

And I know losing about 30 lbs. wold help the GERD and other things as well. I often wonder if malabsorption of nutrients from Celiac disease increases our appetites. There seems to be a growing body of evidence that going gluten-free for many Celiacs doesn't arrest the SB inflammation as was previously assumed so that substantial recovery of the villi doesn't happen.

 

At one point I considered the GERD lap surgery but the potential side effects scared me enough I just concluded that since the PPI worked so well I would just stay with that. Though as we all know, ongoing PPI use has significant long term risks as well.

BarryC Collaborator

Great advice thanks so much. I am hoping that as I continue to lose weight- intraabdominal pressure- it will improve. BTW I used to get up to pee three or more times a night. Since I have lost a bit of weight on a gluten free diet, I am down to one trip or less!  Or, is peeing at night (nocturia) another side effect of celiac?  Also, the constant dull pain in my stomach is lessening.  It suddenly showed up after way too many 'pop's, and since I am pop free, it has improved.  Was it gastritis or celiac related inflammation?  Just another of the multiple digestive issues I have that finally seem to be improving. Hopefully, I just have a more severe form of gluten intolerance, and my body can heal, even pushing 60!  For those of you with true celiac, my thoughts and prayers go out to you. Thanks again, Celiac.com-you rock!

trents Grand Master

I'm not aware that nocturia is connected to gluten intolerance but they are finding more connections all the time.

I too suffered from nocturia but it was mostly related to enlarged prostrate which was fixed with a TURP. As we age most things get smaller but some keep growing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

My trips at night were because of sleep apnea. With my cpap , I just get up once a night!

plumbago Experienced

This may not be super helpful, but according to Recognizing Celiac Disease: Signs, Symptoms, Associated Disorders & Complications by Libonati (RN, BSN), there is an increased prevalence of GERD in celiac disease patients, especially untreated, and that studies show improvement on a gluten-free diet. Gluten is something, they say, that increases abdominal pressure. It goes on to say, "celiac disease may represent a risk factor for the development of reflux esophagitis."

BarryC Collaborator

I also have sleep apnea, have been on a CPAP for years.  The worst was when I had plantar faciitis and had to stumble around to get up and pee. You to get lots of muscle joint pronlems, but those have lessened.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    2. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,994
    • Most Online (within 30 mins)
      7,748

    KimberlyS
    Newest Member
    KimberlyS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.