Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acid Reflux?!


BarryC

Recommended Posts

BarryC Collaborator

I was very surprised to discover that acid reflux could be a symptom of celiac. I have it and am taking Omneprazole. Just another digestive problem that I have and am actually happily surprised to find out it might be related to celiac. Hoping continuong with my gluten free diet will help. Going to go off the Omneprazole, and give some of the suggestions Poster Boy gave me a try. Anyone else also have acid reflux and did a gluten free diet help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CraftyChristine84 Newbie

I was first diagnosed with Gerd/acid reflux and was put on Pantoprazole for about 3 months, but the meds never really helped. Eventually I was diagnosed (by blood test) with Celiacs. After my endoscope I was on a gluten free diet for about a week and my GI dr told me I can completely stop the acid reflux meds.  Had no problems, minus just the normal recovery, but any acid reflux was very minor and improved with time. I will occasionally take a couple tums and that will help now.

I know exactly what you mean about feeling happy to find the acid reflux is related to celiacs. I wasn't getting better with the acid reflux diet (where I ate a lot of bread) and the meds. I was so happy to find out I can have coffee and the occasional pop AND start to feel better!!!  Hope this helps!

trents Grand Master

I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic stuff ordered that is supposed to help with heartburn. We'll see.

plumbago Experienced
5 hours ago, trents said:

I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic stuff ordered that is supposed to help with heartburn. We'll see.

Hiatal hernia is definitely a risk factor for GERD, and the gastro who did my scopes said that more people than not after a certain age have hiatal hernias.

You're right that an "incompetent" lower esophageal sphincter is a primary etiological factor. And the factors affecting LES pressure include alcohol, certain drugs like anticholinergics, fatty foods, chocolate, nicotine, peppermint, tea, coffee. Other risk factors are obesity, as intraabdominal pressure is increased, cigarette and cigar smoking. So, obviously, avoid things that will decrease the pressure of the lower esophageal sphincter, including the above but also eat small frequent meals to avoid gastric distention, do not lie down 2-3 hours after eating, and don’t eat w/in 3 hours bedtime. People with GERD can sleep with the head of the bed elevated on 4-8” blocks to foster esophageal emptying.

This is from Medscape: "In the upright position, the major stimulus for transient LES relaxation is gastric distention after a meal. This accounts for the increased amount of physiologic reflux after eating, especially following the large evening meal. Thus, a reduction of meal size alone has the potential to be of benefit in the management of GERD. If this meal can be low in fat and high in protein, then this will further augment LES pressure and decrease the amount of acid reflux. Eating a large meal immediately before retiring should be discouraged, as this increases gastric volume, promoting gastroesophageal reflux with associated poor nocturnal acid clearance. I suggest to my patients that they can have a healthy evening meal, but eat or drink nothing but water for 3-4 hours before going to bed."

Plumbago

 

 

 

trents Grand Master

Plumbago has good advice. Several years ago I purchased an articulating bed for back problems and the reflux seems to have benefited from it as well. 

I have difficulty with not eating for 3 hours before bed. I typically get terribly hungry right before bed and can't sleep if I get in the sack that way.

And I know losing about 30 lbs. wold help the GERD and other things as well. I often wonder if malabsorption of nutrients from Celiac disease increases our appetites. There seems to be a growing body of evidence that going gluten-free for many Celiacs doesn't arrest the SB inflammation as was previously assumed so that substantial recovery of the villi doesn't happen.

 

At one point I considered the GERD lap surgery but the potential side effects scared me enough I just concluded that since the PPI worked so well I would just stay with that. Though as we all know, ongoing PPI use has significant long term risks as well.

BarryC Collaborator

Great advice thanks so much. I am hoping that as I continue to lose weight- intraabdominal pressure- it will improve. BTW I used to get up to pee three or more times a night. Since I have lost a bit of weight on a gluten free diet, I am down to one trip or less!  Or, is peeing at night (nocturia) another side effect of celiac?  Also, the constant dull pain in my stomach is lessening.  It suddenly showed up after way too many 'pop's, and since I am pop free, it has improved.  Was it gastritis or celiac related inflammation?  Just another of the multiple digestive issues I have that finally seem to be improving. Hopefully, I just have a more severe form of gluten intolerance, and my body can heal, even pushing 60!  For those of you with true celiac, my thoughts and prayers go out to you. Thanks again, Celiac.com-you rock!

trents Grand Master

I'm not aware that nocturia is connected to gluten intolerance but they are finding more connections all the time.

I too suffered from nocturia but it was mostly related to enlarged prostrate which was fixed with a TURP. As we age most things get smaller but some keep growing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

My trips at night were because of sleep apnea. With my cpap , I just get up once a night!

plumbago Experienced

This may not be super helpful, but according to Recognizing Celiac Disease: Signs, Symptoms, Associated Disorders & Complications by Libonati (RN, BSN), there is an increased prevalence of GERD in celiac disease patients, especially untreated, and that studies show improvement on a gluten-free diet. Gluten is something, they say, that increases abdominal pressure. It goes on to say, "celiac disease may represent a risk factor for the development of reflux esophagitis."

BarryC Collaborator

I also have sleep apnea, have been on a CPAP for years.  The worst was when I had plantar faciitis and had to stumble around to get up and pee. You to get lots of muscle joint pronlems, but those have lessened.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    5. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,358
    • Most Online (within 30 mins)
      7,748

    Lorna Wynter
    Newest Member
    Lorna Wynter
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.