Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test your children?


Deades

Recommended Posts

Deades Contributor

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

All first degree relatives should be tested every 2 years in the absence of symptoms or immediately if symptoms present. It is hereditary and can present at any age. Make sure they are eating gluten daily for at least 3 months before testing if they have been gluten free. 

 

Welcome to the club you never wanted to be a part of. Check out our Newbie 101 pinned to the top of the Coping section.

cyclinglady Grand Master

Better to catch a celiac disease diagnosis early.  Experts do recommend the testing of all first-degree relatives even if asymptomatic and while on a full gluten-containing diet.   I had my kid screened and requested a full panel since I test oddly.  She was also screened for anemia.  That was about three years ago.  We are considering running the panel again, but Not until she is back at school and on a daily diet of gluten (our home is gluten free and she is gluten light in the summer).  

Celiac disease can cause long term issues.  You have osteoporosis besides anemia, right?  I bet you might have some other issues that can resolve on a gluten free diet that you just chocked up to getting old.  Wouldn't be nice to prevent such damage in your kids?  Wish I had known about celiac disease a long time ago!  

Fbmb Rising Star
On 6/24/2017 at 5:44 PM, Deades said:

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?

I tested positive in November and immediately had my toddler tested, though he didn't have symptoms (aside from being really little). He has it.

Pegleg84 Collaborator

Yes, definitely! The sooner they find out if they have it, the sooner they can heal up and, as cyclinglady said, avoid a lot of potential long term health issues. Also be aware that, with bloodtests, false negatives are more common than false positives. I'd recommend they get a full bloodwork panel done to check for vitamin deficiencies, which could in itself be a sign of malabsorption problems. I had iron anemia as a teenager, which looking back was probably my first Celiac symptom. My mom and my sister both have Celiac as well.

You could also suggest that your parents or any siblings get tested as well.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    3. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.