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artistsl

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artistsl Enthusiast

I have a rash that is suspected DH. The biopsy results won't come back for another 7-10 business days. I am currently recovering from a gluten challenge where my DH had subsequently turned into a very nasty bacterial infection. It is such a miserable situation. If I eat anything with gluten blisters will form underneath the infection sight. So in addition to not eating gluten, I would like to find a lotion that does not contain gluten. Some of the infection is starting to clear up and is really dry. It definitely could use some moisturizer, but I in no way want to use anything that could make my situation worse. Does anyone have a recommendation for a good lotion that they use regularly?


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cyclinglady Grand Master

Vaseline Intensive Care (white bottle) is gluten free.  You can use coconut or olive oil.  What about just some Neosporin (antibiotic ointment)?  That might help the infected areas.  

Alwayssomething Contributor

Vanicream works great, they have a Vanicream Light as well.  I like the regular one best as it goes on nice and thick and isn't oily, it is what my dermatologist recommended years ago and at that time you needed the pharmacy to order it for you.    I find it at Target and CVS.   My DH did not fully clear until I also changed out all my body products to gluten free as well as followed a low iodine diet (a very helpful tip I found on this site from another DH sufferer). 

 

 

artistsl Enthusiast

Thank you! Words cannot describe how much this sucks. I am about to lose my mind over this rash. I think I'm going to go back to the dermatologist today to have it swabbed again for infection. It seems like either the infection may be coming back, my DH is flaring like crazy or both. While I'm there I'll see if she can prescribe some dapsone. After that I'll run to CVS to find a gluten free lotion. Also, is there a gluten free shampoo you guys recommend?

cyclinglady Grand Master

I use the Costco brand (shampoo and conditioner).    Even says gluten free on the label.  The price is good, which is important when you have a very long-haired teenage girl who most likely uses too much!  We also use Suave because Unilever is good about disclosing ingredients on the product label.  Maybe not the best quality, but again, my teen and I tend to leave bottles at the pool!   

squirmingitch Veteran

Cyclinglady & I must be long lost sisters or something. I use the Vaseline Intensive Care (white bottle) also. I was also going to suggest coconut oil or even olive oil. We don't have a Costco here so no Costco shampoo for me but I use the Suave Naturals shampoo - cheap & I have hair down past my rear; it works great & I have zero complaints about it. 

At this point ice packs might be your best friend for the rash. Especially at night in bed, so you can get some sleep. Helps to take the heat out of it. I feel for you. Been there, done that. {{{{{{{{{{{{{artistsl}}}}}}}}}}}

Kimg10 Newbie

Desert Essence has a line of great gluten free lotions, shampoo, conditioner and other products.  I usually get it online at Vitacost.  I find I need to use products that state "gluten free" on the label to know for sure that I am safe.  


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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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