Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What is going on?


johnojohno

Recommended Posts

johnojohno Apprentice

Hey guys. So this is my story

December had an endoscopy after bloods. Stressed/exhausted/memory Loss/concentration lacking. Turns out after only finding out my results in July I do have celiacs. this proven by the biopsy.

Though I was told at the hospital they didnt think I had it

Anywho. Ive begun the gluten free diet. Ive been at it a few weeks. Started going well. However the past 3 days ive woken up with really painful chest and stomach pains, I started to feel better but now it seems to have got worse.

My mood for a few days was higher then it has ever been. I am a generally psoitive guy, but the drops in mood are unreal and the unbeliveable fatique, memory loss, diziness etc. Is it usually an up and down process> Cutting out gluten I mean?

 

Also, the extreme tiredness after eating is knowing me out! ha ha


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Probably in the withdrawal phase, like a drug addiction withdrawal but with gluten. Keep on going it gets better, there are some supplements to help make it better, and some you will find you might have to start taking. Magnesium, and B-vitamins are common issues among celiacs, and can cause all kinds of fatigue, fog, etc. These become much more noticeable as must gluten free food is non fortified with these nutrients.   It is suggested you eat a whole foods only diet to jump start your healing and to help avoid getting cross contamination. Lactose intolerance is also common, but in some goes away after healing, so we suggest avoiding dairy and oats for the first few months (the enzyme to break down lactose is produced by the tips of the villi in the intestines which are damaged or destoryed by celiac).  Also I take it you cleaned out everything and replaced the pots, pans, utensils, colander, toaster, and threw out the old Tupperware? I might suggest reading over the newbie 101, I will also provide a link of where to find and get gluten free alternatives for some staples.

I do suggest taking Liquid Health Stress & Energy and Nurological support for B-vitamins, it is in a sublingual form you just add to tea, juice, or water and drink it. I take 1 tbsp each 3 times a day to avoid that up and down feeling. Might check with Magnesium and see if your having any issues with it, if so Doctors Best or Natural Vitality Calm is suggested to help with these.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

TexasJen Collaborator

Usually, it takes more than a couple of weeks for the symptoms to really improve. Often times the GI symptoms will improve in a couple of weeks-months but the neuro symptoms like brain fog, mode issues can take 1-2 years. 

So, this may be a silly question, but you said you had the scope in December, but have only been doing the gluten-free lifestyle for a couple of weeks?  

Also, are you getting plenty of sleep and exercise? Are you eating an otherwise healthy diet (mostly whole foods)? Could you be getting small amounts of gluten hidden in your diet - hence not completely healing?  Lots of reasons to consider.....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,748
    • Most Online (within 30 mins)
      7,748

    Becca M
    Newest Member
    Becca M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
    • knitty kitty
      Welcome to the forum, @MagsM, I had Meniere's.  Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D.  Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra.  Having a Folate deficiency suggests other B vitamin deficiencies as well.  Folate needs Pyridoxine B6 and Thiamine B1 to work properly with Cobalamine B12.  Doctors are not required to take many courses in nutrition, and often don't recognize deficiency symptoms or how to correct them.  Blood tests are not an accurate measurement of vitamin deficiencies inside cells.  Low iron correction requires copper and zinc as well as Thiamine and Riboflavin.    Yes, anemia can affect the production of antibodies and cause false negatives on tests for Celiac.  Diabetes and Thiamine deficiency can also cause false negatives.  An endoscopy with biopsy would be a more accurate method of diagnosis for you.   I studied Nutrition before earning a degree in Microbiology because I wanted to know what the vitamins were doing inside the body.  Vitamins are chemical compounds that the body cannot make, so we must get them from food and supplements.  After a few vertigo episodes and suddenly going deaf for a while, I researched and found that supplementing with  Thiamine in the form TTFD (tetrahydrofurfuryl disulfide), Niacin and Vitamin D resolved the issue.   Please ask your nutritionist for further vitamin deficiency tests.  A B Complex, TTFD, Vitamin D should help you recover quickly.   Keep us posted on your progress!
×
×
  • Create New...