Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rate Of Digestion/levels Of Intolerance


jlr

Recommended Posts

jlr Apprentice

Hi all,

This is my first post and I have really learned a lot on these boards - thanks, I was diagnosed about a month ago (just the blood test) and I have an appointment with a GI specialist in a week. I have started the diet and I do feel much better - but I have had some episodes, I am trying to track my diet to see if I can pinpoint what is bothering me but I keep wondering how much of a factor is rate of digestion - I have a very slow rate and I often think I maybe indentifying the wrong triggers.

Could something I ate last night be the trigger of an episode the following night? or is it usually the meal before the episode?

Also, are their levels of intolerance? Are some people more intolerant than others? I have been reading some of the posts and I am amazed to hear that just sharing a plate with someone who had a wheat product on their fingers could cause an attack!! That must be horrible.

Thanks for any help/insight you can provide.

Janet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Janet--welcome in. As you know from reading here a while, we all are different when it comes to our reactions and our levels of sensitivity. Some, like me, get symptoms from gluten soon after ingesting it. Its not uncommon for it to take longer. It is possible for a reaction to be a day or even two after. Some are very sensitive and get a reaction from a tiny bit of gluten or from cross contamination. Some are less so. The important thing to keep in mind is that no matter how you feel after a gluten accident, even if you don't get sick, there is damage being done to your intestine. Keeping track of your food at the beginning is a good idea. Be careful, too, with your shampoo, soap, lotions, etc. Believe me, they find their way into your mouth! Good luck with your appt. next week--feel free to ask anytime :)

RiceGuy Collaborator

It seems that everyone has their own level of sensitivity. You should also take a very close look at the ingredients of everything you eat. Also, skin/hair care products can cause a reaction, so you need to check those too.

It took about six months for me to experience any improvement, while others find relief in a matter of a few days. It may be that you system is still clearing out some stuff. It depends on your particulars, like how much damage has been done to your gut and such. There is no standard measure, so you just need to be careful and patient.

The time to react differs from person to person as well, so it could be any meal you had, maybe even days prior. The general trend from what I've been reading is a reaction within 24 hours, and lasting up to two weeks. Sometimes the culprit is discovered, while other times it is not. Over time you'll get better at it. Just don't get discouraged, and by all means don't ever cheat.

You may notice a reaction from other foods like dairy, eggs, soy, sugar, and many more after going gluten-free. That's quite common, and it seems that it may be that the problem was always there for some, but just overshadowed by the gluten issue. Sometimes it is because the damage to the intestine makes digestion of other foods problematic, at least until some healing takes place. This seems to be the case with dairy. From what I've read, lactose is one of the first things that cannot be digested as damage occurs.

I hope this site helps you get the information you need for full recovery.

jlr Apprentice

Thanks so much for the replies! This really has been overwhelming - I am a single mom of a 5 year old boy (who so far has zero symptoms) so I am always cooking two meals one for him and one for me - it has been hard keeping it all straight!

It definitely sounds like a highly personalized disease - one that I will have to continue to monitor and learn about my own reactions and stimuli.

This site has been great for information and to know that I am not alone in this journey!

THANKS AGAIN.

Janet

traveljunkie Rookie

Hi Janet, and Welcome :)

Yes, everyone has a different level of tolerance. I do not have celiac, but have been diagnosed with a gluten intolerance with no damage to intestines. I also have a dairy intolerance, which I'm sure you've learned usually goes hand in hand with gluten intolerance.

If I eat gluten, I usually get a itchy rash followed by gi problems the next day. I'm the same with dairy. It also depends on how much was consumed. If I accidentally ate a small amount, I usually have no problems.But as you have read on this forum, some people can't even touch things with gluten or use products with it. They'll be sick for weeks. My son also has gluten intolerance, and has the same reaction as me. Diarrhea the next morning. I usually watch what I eat the next day, so I don't further aggravate my gi tract. NO coffee, tea,sugar,etc. I will then be fine the day following. I take my gluten-free diet seriously and will remain on it for life. I don't want to take the chance of future damage to the villi in my intestines.

Good luck, :) and remember this is a healthy change, and it gets easier with time!!

debmidge Rising Star

Hi

There are other foods that my husband who has celiac cannot tolerate. So it might not all be gluten but other sources (like milk, corn, soy, etc.) that are bothering you.

D.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,374
    • Most Online (within 30 mins)
      7,748

    Mamaness
    Newest Member
    Mamaness
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
    • Zuma888
      Negative, although I had most of the symptoms of celiac disease. I now eat as if I had a diagnosis.
×
×
  • Create New...