Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed


DaveCH

Recommended Posts

DaveCH Rookie

Hi im male age 37 and was having maybe every 4 weeks trapped wind loud stomach noises and went for blood checks with GP. All was fine although wasn't checked for Celiacs but my iron ferritin was at 11 and my folate was low. GP put it down to all the marathon training i was doing but I wasn't convinced. Im in the UK so the GP is through the NHS but I went private to see a gastro doctor who performed an Endoscopy and Colonoscopy. A very small polyp was found which is benign and he was pretty sure I was suffering from Celiacs after performing the endoscopy. The biopsies came back and confirmed it was Celiacs. I have to now go for bloods as a second confirmation and to check my vitamin levels etc. I was expecting something really bad so I should be happy with this diagnosis. The only thing concerning me is the increase in Cancers with being untreated. My gastro said people usually have this for 10 - 15 years before diagnosis. Is the cancer thing something to be worried about or is that after a very long time of not being diagnosed later in life, I haven't had a chance to speak to my gastro about this.

Many Thanks

Dave


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Welcome to the forums and the club you never really wanted to join. To address your cancer issues, I am under the understanding that your chances of getting cancer significantly decrease once you start the gluten free diet and stay on it. Funny fact many of us on this diet are forced to eat cleaner and healthier foods if we stick to the whole foods approach which is suggested for your first few months after diagnosis to boost healing. I do suggest reading the newbie 101 section, this is a bit more then a diet change, you have to clean out  the house pretty much and decon your kitchen. New cook ware mostly unless you have a self clean cycle on your oven and can heat it too over 500F and destroy the protein, IE cast iron can be saved by this method. New cutting boards, toasters, throw  out the colander, and any Tupperware or scratched pots and pans. Any condiment that has ad a knife e stuck in it needs to go for crumb CC and you will have to go through your spices etc. I can provide aa list of some gluten-free alternatives to foods, spices, etc and how and where to get them. Many things your just  changing brands. For now focus on whole foods with a just a few ingredients til you get the diet and label reading down. Many suggest removing dairy and oats for a few months.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/119661-gluten-free-food-alternative-list-2017/

Essexman Newbie

I am stunned to read this, DaveCH please listen to real professionals. 

Seeing a comment stating you need completely new cookware is beyond belief. You do not need to 'Decon' your kitchen. 

Just stick to being gluten free, no need to fear someone touching your plate with a 'contaminated' cutting board. 

Live your life, please- you only have one so enjoy it. The fear these quacks create is not healthy. 

kareng Grand Master
10 minutes ago, Essexman said:

I am stunned to read this, DaveCH please listen to real professionals. 

Seeing a comment stating you need completely new cookware is beyond belief. You do not need to 'Decon' your kitchen. 

Just stick to being gluten free, no need to fear someone touching your plate with a 'contaminated' cutting board. 

Live your life, please- you only have one so enjoy it. The fear these quacks create is not healthy. 

I agree - some of this stuff is a bit overboard.  But a person diagnosed with Celiac might want to clean out the drawers (crumbs always fall in them) and colanders that were used for gluten pasta will probably always have some gluten goo in them - its very hard to clean out every little hole.  The basic rule is to get rid or avoid things that retain gluten.  They need to use a separate peanut butter,etc if people put knives with bread crumbs back in them.   toasters are full of crumbs - get a new one for gluten-free only (not expensive)

Ennis-TX Grand Master
36 minutes ago, Essexman said:

I am stunned to read this, DaveCH please listen to real professionals. 

Seeing a comment stating you need completely new cookware is beyond belief. You do not need to 'Decon' your kitchen. 

Just stick to being gluten free, no need to fear someone touching your plate with a 'contaminated' cutting board

Live your life, please- you only have one so enjoy it. The fear these quacks create is not healthy. 

Cutting boards are actually one of the biggies if you had gluten foods on them. The scratches can retain gluten containing food particles, and not easily cleaned out, Scratched pots that were used for something like pasta are going to be a CC issue for while and scratched teflon...yeah that will. Solid piece utensils can be cleaned, stainless steel pots in many cases can if not scratched. But as mentioned some things do not clean out well at all like the pasta colander. I am hyper sensitive and my reactions well, literally scare me. So I go the extra mile. Many of us have found CC to be a ongoing issue with older pots, and pans hince why I brought this up. Many just get new ones and play it safe. The condiments and clean out is due to crumb transfers from a knife/spoon/fork being used on gluten bread then transferring crumbs to the jar. Spices, some blends and companies use gluten flours in them or are prone to CC. As mentioned by Kareng you have the crumbs in the drawers that need to be cleaned out (many just vacuum it out and get a new utensil organizer to hold the clean utensils) , the oven,  and the toaster meets the trashcan as a lost cause. Cleaning all your surfaces, handles, knobs etc really well. And I found freezer paper to make a good clean safe prep surface for food, also makes cleaning up super easy as you just dump the crumbs off or toss it. Foil line your bake-ware, and crockpot liners can also save with CC and cleanup, consider it a dual investment.  Again read the 101

In many ways it is a "Decon" in a way of speaking, not saying call the hazmat team.

Victoria1234 Experienced

When I went gluten-free, we didn't get new cookware. I was super sensitive and luckily was fine. I reacted to small amounts of gluten in food. Even processed gluten-free food. But my husbands dishwashing routine was good enough to clean what we cooked on and ate with.  We did not get a new toaster as I hate toast anyway, lol. 

 

Jmg Mentor
6 hours ago, DaveCH said:

 Is the cancer thing something to be worried about or is that after a very long time of not being diagnosed later in life, I haven't had a chance to speak to my gastro about this.

Hi Dave and welcome :)

Clearly a question your consultant will be happy to answer but all the studies I've seen suggest that if you adhere to the diet your chances of serious complications quickly track back to the national average. So after a certain time gluten free you will be no more likely to get such complications than a non celiac.

It is important however to get a handle on the diet. The other study I saw which made an impression was the risks ran by celiacs who slipped up regularly, say once a month. There stats tracked the other way, although it's important to remember even then that cancer is still rare.

I'm also in the UK by the way.  I think you made a good decision going private. There's a Brit topic in the international room if you want to share notes on what or where to eat.

all the best,

matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - StuartJ replied to The Logician's topic in Related Issues & Disorders
      28

      Gluten Sensitivity

    2. - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    3. - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    4. - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    5. - Rogol72 replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,357
    • Most Online (within 30 mins)
      7,748

    charlesnbarnett
    Newest Member
    charlesnbarnett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StuartJ
      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
×
×
  • Create New...