Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leg numbness


Jherm21

Recommended Posts

Jherm21 Community Regular

Hi guys. It's me Jenny ?I feel like I post every other day with problems or questions. Well I'm here again. I have this problem with my left leg (in particular) at night going numb it wakes me up in the middle of me sleeping and is difficult to fall back to sleep. It's not my bed mattress, it's not the location on how I sleep. I don't know what it is. It only happens at night. The neurologist said I was sleeping on my spine wrong because I sometimes end up on my back wrong! Happens just as much on my side. Don't know if this is celiacs related damage or something else my quality of sleep sucks! Any one experience this? Also I have a mysterious pain that started in my neck atleast 2 years ago got use to it but over the summer I noticed there was pain (unbearable) on the shoulder generating down to the wrist on one side. Any one know what this could be. My doctor diagnosed arthrits but I'm only 30


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Awol cast iron stomach Experienced

Hi Jenny. How long have you been gluten free? Have you potentially come across CC ate away from home, a processed  food that is new to you? 

I get neuropathy issues among many other issues. For me it is my left upper arm goes numb aka falls asleep like sensation and my big toes both feet. Typically this is when I am actively consuming gluten before  went gluten-free and at/after my challenge. As gluten-free if I get cc by gluten I go numb , if  get cc by corn another intolerance I get shooting nerve firing.

So yes celiac and food intolerance s can cause this in some people. It is best to stick to whole foods for now and keep a food diary to suss out any gluten cc or other intolerance.

Edit - also check vitamin b12, other b' s and magnesium also are important. Do you get enough? B vitamins are water soluble so if you have absorption issues and don't consume enough and they are depleted this also should be on your radar. Sublingual b12 maybe necessary so t enters the blood stream vs. Pill /gi route. Lastly some require b12 shots if the prior options do not work.

ravenwoodglass Mentor

Have you ever seen a chiropracter?  I have had issues like this a few times and it turned out to be a pinched nerve. I have a good chiro and he was able to help. I should also note that I do have some nerve damage from celiac that has lead to a loss of feeling and motor signals in my right leg. That was helped with seeing a physical therapist. The numbness remains but he was able to help me retrain muscles so I can walk normally now. That was a constant thing though not intermittent.

Ennis-TX Grand Master

Awol touched on what I thought it could be, night numbness and cramps is often a magnesium issue, Also with gluten ataxia nephropathy is common causing numbness, tingling, or control loss. As you mention a constant I am thinking perhaps more of a deficiency,

Raven goes on another topic, I had a issue in my shoulder messing up and pain and numbness in my back/shoulder with numbness in my arm a while back from some muscle and nerve issues and had to have it worked on by a massage therapist, seems my muscles had healed wrong after working out and caused some issues, she was getting rolling, bands and large knots out of the area around my shoulder blade and neck for over 30mins.

 

Jherm21 Community Regular
7 hours ago, Awol cast iron stomach said:

Hi Jenny. How long have you been gluten free? Have you potentially come across CC ate away from home, a processed  food that is new to you? 

I get neuropathy issues among many other issues. For me it is my left upper arm goes numb aka falls asleep like sensation and my big toes both feet. Typically this is when I am actively consuming gluten before  went gluten-free and at/after my challenge. As gluten-free if I get cc by gluten I go numb , if  get cc by corn another intolerance I get shooting nerve firing.

So yes celiac and food intolerance s can cause this in some people. It is best to stick to whole foods for now and keep a food diary to suss out any gluten cc or other intolerance.

Edit - also check vitamin b12, other b' s and magnesium also are important. Do you get enough? B vitamins are water soluble so if you have absorption issues and don't consume enough and they are depleted this also should be on your radar. Sublingual b12 maybe necessary so t enters the blood stream vs. Pill /gi route. Lastly some require b12 shots if the prior options do not work.

Ive been receiving b12 shots since March and the only difference is my numbers went up to about 400. I'm considering taking a sublingual daily in addition to the monthly injection. I'll start looking into other intolerances as well thanks for the idea!

Jherm21 Community Regular
3 hours ago, Ennis_TX said:

Awol touched on what I thought it could be, night numbness and cramps is often a magnesium issue, Also with gluten ataxia nephropathy is common causing numbness, tingling, or control loss. As you mention a constant I am thinking perhaps more of a deficiency,

Raven goes on another topic, I had a issue in my shoulder messing up and pain and numbness in my back/shoulder with numbness in my arm a while back from some muscle and nerve issues and had to have it worked on by a massage therapist, seems my muscles had healed wrong after working out and caused some issues, she was getting rolling, bands and large knots out of the area around my shoulder blade and neck for over 30mins.

 

Thanks ennis I'll try that for the shoulder issue. How about the magnesium even if blood serum was normal would I still need it? Weird because I have symptoms of low magnesium but that was one of the normal blood levels when vitamin tested a few month ago. Can I still try it? 

Ennis-TX Grand Master
3 minutes ago, Jherm21 said:

Thanks ennis I'll try that for the shoulder issue. How about the magnesium even if blood serum was normal would I still need it? Weird because I have symptoms of low magnesium but that was one of the normal blood levels when vitamin tested a few month ago. Can I still try it? 

VERY much so. as me and poster boy can both attest just because levels are normal does not mean you do not need more. HECK their was even talk about raising the FDA recommended daily value of it as it was the suggested minimum. Either Docters best glycinate before bed or if you have C issues or no D issues then perhaps natural vitality calm citrate version in small doses at first before adjusting up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jherm21 Community Regular
4 hours ago, Ennis_TX said:

VERY much so. as me and poster boy can both attest just because levels are normal does not mean you do not need more. HECK their was even talk about raising the FDA recommended daily value of it as it was the suggested minimum. Either Docters best glycinate before bed or if you have C issues or no D issues then perhaps natural vitality calm citrate version in small doses at first before adjusting up.

Ok great. Should I be Warned of any side effects. I hope not. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,013
    • Most Online (within 30 mins)
      7,748

    Dragon1
    Newest Member
    Dragon1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.