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Please Help "my Hair"

bknutson

By bknutson
in Coping with Celiac Disease

Recommended Posts

bknutson Apprentice
bknutson
Posted

I have been diagnosed since the end of July. It has been a battle and I still am not totally gluten free since I am a stupid idiot and didnt realize I was getting it in some differant places. My hair is falling out. It is getting thinner and thinner. Does anyone have any answers? Also I lost a ton of weight and that was good even though I was way sick. I needed to lose weight. Now I have stopped and I am afraid I will gain it back. I still hurt all the time and sometimes I feel like what the heck. I am gratefull to know that what I

have is so much better than cancer or so many other things, and I am so lucky to have the good health soI dont want to complain to bad. It just gets way frustrating at times.

Thank you to all you for being her

"Barb

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nettiebeads Apprentice
nettiebeads
Posted
I have been diagnosed since the end of July. It has been a battle and I still am not totally gluten free since I am a stupid idiot and didnt realize I was getting it in some differant places. My hair is falling out. It is getting thinner and thinner. Does anyone have any answers? Also I lost a ton of weight and that was good even though I was way sick. I needed to lose weight. Now I have stopped and I am afraid I will gain it back. I still hurt all the time and sometimes I feel like what the heck. I am gratefull to know that what I

have is so much better than cancer or so many other things, and I am so lucky to have the good health soI dont want to complain to bad. It just gets way frustrating at times.

Thank you to all you for being her

"Barb

Sorry to hear you're still having problems. Are you feeling any better at all? Maybe you have something else going on - some of the posters here mention leaky gut. Are you taking supplements? If so, are the gluten-free? And whay kinds? You may be still getting glutened from hidden sources.

bluelotus Contributor
bluelotus
Posted

There's been quite a few discussions on this exact topic. Trying searching the forum for hair loss. If I had more time this morning, I'd pass on some of the main points, but I am in a bit of a rush. Don't get too worried though, many women with celiac disease have this problem (including me), and I was told that if you are completely gluten free, hair regrowth should begin within a year. ........its the being totally gluten-free that is hard, since I seem to get hit more with cross contamination than many of these folks. Anyway, best of luck to you and you are not alone.

KaitiUSA Enthusiast
KaitiUSA
Posted

Do you use a gluten free shampoo? Some people have said when they use a shampoo with wheat or something in it then that happens.

I hope you feel better soon..just make sure you are 100% gluten free it can take some time...if after a long time goes by and you see no improvement you should check all your foods and products to make sure nothing it slipping in and then maybe check for other intolerances.

LauraZ Rookie
LauraZ
Posted

I had the hair-falling-out symptom, too. It's the most frightening thing!! Every morning in the shower, handfuls would come out as I shampooed. Mine was a very slow process of discovery -- at first I was told it was just wheat, so I still ate oats, barley, kamut, etc. And the hair kept coming out, although some of my other symptoms abated. Once I got the full gluten understanding and went total gluten-free, the hair loss slowed down, but it did take about 6 weeks before it finally stopped.

It's now growing back in (thank goodness) but I have different length hair all over my head! You have to be so vigilant on this diet and I am very grateful that it isn't anything like cancer, or renal failure, but sometimes I just want to be able to eat a hamburger in a restaurant...

And the shampoo point that other posters have made -- I also had trouble with this... I used to use a lot of grain-based hair products (there are a lot of them out there!) and once I got rid of those, it helped a lot.

Best of luck!

darkangel Rookie
darkangel
Posted

Could there be a thyroid problem?

jenvan Collaborator
jenvan
Posted

thyroid issues, anemia/low-iron, recent surgery? all possible causes for hair loss

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jerseyangel Proficient
jerseyangel
Posted

Hi Barb--Please don't be so hard on yourself. All of us go through a learning period where we try our best to be completely gluten free, but things get through and we learn (rather quickly!) what we can and can not use. I had hair loss, too. I was sick for a long time, and slowly lost about 1/2 of the hair I had when I was younger. There were spots that were noticable on the top and front. As I began to feel better and absorb my food and vitamins, I made the decision to cut my hair short to let the new growth blend in better. Now, as its growing, my hair is healther looking and the obvious spots are grown in. I will probably never get the rest back, but I'm happy with the way it looks now. (yesterday, my husband commented on how nice it looked :D ) Make sure that your hair products are gluten free and as mild as possible. Keep the gluten out of your diet (it will get easier) and if possible, take vitamins to help your body heal. I was also very anemic--have you been checked? More iron, if needed, will help. :)

Carriefaith Enthusiast
Carriefaith
Posted
I have been diagnosed since the end of July. It has been a battle and I still am not totally gluten free since I am a stupid idiot and didnt realize I was getting it in some differant places. My hair is falling out. It is getting thinner and thinner. Does anyone have any answers?
Before I was diagnosed, I was experiencing hair loss. I would have liitle chunks of hair fall out in the shower. Hair loss occurs in people with celiac disease because the intestines cannot absorb the vitamins and minerals that keep hair healthy. Gluten damages the intestines so that we cannot absob nutrients. Once you go 100% gluten free, the hair loss will stop, and the hair that fell out should grow back. My hair loss stopped after I started the gluten free diet.
  • 8 years later...
CELIAC? Newbie
CELIAC?
Posted

Hi Barb--Please don't be so hard on yourself. All of us go through a learning period where we try our best to be completely gluten free, but things get through and we learn (rather quickly!) what we can and can not use. I had hair loss, too. I was sick for a long time, and slowly lost about 1/2 of the hair I had when I was younger. There were spots that were noticable on the top and front. As I began to feel better and absorb my food and vitamins, I made the decision to cut my hair short to let the new growth blend in better. Now, as its growing, my hair is healther looking and the obvious spots are grown in. I will probably never get the rest back, but I'm happy with the way it looks now. (yesterday, my husband commented on how nice it looked biggrin.gif ) Make sure that your hair products are gluten free and as mild as possible. Keep the gluten out of your diet (it will get easier) and if possible, take vitamins to help your body heal. I was also very anemic--have you been checked? More iron, if needed, will help. smile.gif

How long did it take for you to notice your hair growing back once on celiac diet ? Did you have other symptoms?

GF Lover Rising Star
GF Lover
Posted

Hi and Welcome to the Forum.  Please note that you replied to a post that is 8 years old.  Products change over time and I advise you to start a New Topic or Search more current Topics.

 

Thank You

 

Colleen

bartfull Rising Star
bartfull
Posted

Hi Celiac? This thread is nine years old. Why don't you start a new thread, introduce yourself, and let us know about your symptoms? We'll be glad to help you in any way we can.

 

And welcome to the forum. :)

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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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