Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

23 and Me- Celiac Gene Testing

desirun

Recommended Posts

desirun Explorer
desirun
Posted

Has anyone done this genetic test yet?  My daughter has Celiac, and hoping this is an accurate/less expensive way to determine if my husband or I are the gene carriers for the rest of our family.  Any thoughts/knowledge on results vs. traditional blood genetic testing?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
11 minutes ago, desirun said:

Has anyone done this genetic test yet?  My daughter has Celiac, and hoping this is an accurate/less expensive way to determine if my husband or I are the gene carriers for the rest of our family.  Any thoughts/knowledge on results vs. traditional blood genetic testing?

You might find out you both are.  :D

 

why not just do the regular gene test?  Then you know they test the correct things.  And if our doctor orders it, you might get your insurance to pay for it

desirun Explorer
desirun
Posted
  • Author
2 minutes ago, kareng said:

You might find out you both are.  :D

 

why not just do the regular gene test?  Then you know they test the correct things.  And if our doctor orders it, you might get your insurance to pay for it

True, we could both be!  TTG testing approved, genetics are not in our case.  

Vegasgirl2007 Newbie
Vegasgirl2007
Posted

I did the 23 and Me test when it first came out (before the issues with the FDA that caused it to be changed up bit) just out of general curiosity-nothing to do with celiac disease. It showed that I had a substantially higher likelihood of having Celiac Disease than normal. I’m not sure how it words things now. A couple of years later, I was diagnosed after having problems for years but never putting the pieces together and never having a doctor that recognized the problem. I ended up decideing that I needed to lead a doctor in that direction and eventually found one who tested me for it.

  • 2 months later...
Sienna2013 Apprentice
Sienna2013
Posted

It's not error-proof and doesn't test all variants; it reported, correctly, that I have one of the variants, and kid2 has one of the variants, but kid1's report did not note a higher risk (and she is oh-so-celiac - off the charts TTG IGA when diagnosed). So, don't take a negative report as an all-clear - it's limited in scope, and honestly I wish their materials were clearer about this. 

  • 1 month later...
jetladuke Newbie
jetladuke
Posted

We found out that our 10 year old daughter has celiac disease about a month ago.  My cousin asked how our 23& me profile looked for it, I had totally forgotten about it.  Anywhooooo my husband and daughter both have one of the markers but not both.  They do however test for different genes than what the Dr mentioned wanting to test so we might opt to do that too.  

The nice thing about the 23&me test is that it isn't something that your Dr has or that your insurance can use against you for higher rates, etc.  having a diagnosis of chronic diseases makes you a higher cost to insure.  

RMJ Mentor
RMJ
Posted

Does the current 23andMe test give results for celiac?  I know they had to stop saying so much about health due to the FDA.  Some people take their 23andMe raw data and put it into other websites to get health results.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.